Lost.

Hello everyone,

My son Daniel (16) was diagnosed with a brain tumour 12 days ago after a Ct scan confirmed it.

He then had an MRI Scan and then a couple of days later a biopsy.

We learnt today that it's stage 4 , inoperable and incurable.

Every parents worst nightmare has just come to darken our door and my wife and Daniel's younger brother are all totally devastated.

Daniel has been the strongest of us all by some distance.

He is going to undergo radiotherapy soon and then chemotherapy in order to stop it growing and try to control it.

The experts are telling us it can't be cured.

 We are all lost , devastated, confused and quite frankly saying to ourselves "why us" , why give this to a boy who is due to turn only 17 next week?

We will in due course seek professional counselling in order to try and cope as best as we can.

Can anyone offer any advice on how to cope mentally and also we are trying to look at alternatives with other pioneering new developments that we will explore to the maximum.

Has anyone experienced or heard of incurable  cases that have been reversed through new inovative 

proceedures?

Thanks.

  • Hello Brian. 

    I'm so very sorry to hear about Daniels news. I know that this must be an incredibly difficult time for you all as a family. 

    I hope that some of our members here will stop by to share their experiences and words of support with you but in the meantime I wanted to suggest that you also had a look at The Brain Tumour Charity website. 

    They have a number of different online and phone support services and whilst you're most welcome here on Cancer Chat, I thought that you may be able to connect with others who are likely to be in similar circumstances via a specialised group. They do also have a young adults community and this might be something that Daniel may find helpful. 

    We have a team of nurses here at Cancer Research UK and you're most welcome to give them a call to talk things through. They are available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that Daniel's treatment goes smoothly. Please know that if you want to post here at any point that we will do our best to support you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hello Brian,

    I am so sorry to hear your son Daniels news.

    Although i have no advice for you, i just wanted to let you know i am thinking of you and your family.  Hope you find some answers or advice from others.

    Best wishes

    Sam