Tonsil and lymph node treatment

Hi I have just been diagnosed with Tonsil and lymph node cancer, I have my first oncologist meeting next fri with hopefully starting radiology and chemo middle may

if anyone has any useful information and advice be great to chat at this difficult anxious time

thanks 

  • Im not quite numb at the moment, paranoid I think is closer lol.

    Do you have any idea why they changed their minds about surgery?  I think in some kind of way I would prefer surgery as it seems like an instant relief to me, kind of, get this thing off of me!! Then RT and chemo to dot the i's and cross the t's.

    I guess as long as we all end up cancer free it doesnt matter how we get there, all the best for your treatment

    Pamela x

  • Yes numb to start with the like you say your feeling the paranoia, I don't think this feeling will go away entirely but will shall we say soften over time.

    The thoughts I have on why they changed their minds is the Bupa consultant thought the NHS would remove tonsil & maybe lymph. Anyway after a painful wait of 3 weeks the NHS consultant confirmed it was in my case a better option to do chemo/radio as he thought I may have some complications if they removed tonsil when he said there will be no need too.

    my take on this is we all have different permutations  surrounding this dreadful desease and no 2 people are the same.

    Paul x

  • Absolutely right, there seems to be many ways looking at some of the blogs on here, as long as we all get there in the end x

     

  • Hi Pamela

    As someone that has been through the mill and over a year out now I was presented with the same course of treatment. It was to be a combined tonsillectomy and modified neck dissection followed by chemo/rad.  I had volunteered for one of the current studies to determine what level of treatment works best. However after the operation they found I fell outside of the study guidelines. So then was dropped into the established (standard) chemo/rad. treatment. It appears the science is not yet established with regards the optimal treatment to reduce  side effects as much as possible. Another guy (‘Vatch’) on this forum was treated by the same teams at the same hospital a few years before me. gammaraygary.wordpress.com/.../

     It was interesting to compare our different treatments. It appears this horrible disease is very responsive to radiotherapy/ chemo and so good results are obtained without the usual invasive surgery. 

    Btw  I only had two sessions of chemo. It really made me feel rotten and thankfully they decided to stop it without me asking. 

    Paranoia is healthy! I had too many questions and dark thoughts. Yet here I am well beyond it now with few side effects and glad I put my trust and faith in the medical teams. The results are pretty much as I was told by the medics and had been told the prognosis was excellent. 

    It is a difficult few months and hope all goes well. 

    For now eat eat eat and drink. Getting liquids in when things get tougher is really important. No doubt you are in good hands and will get this over and done with. 

    Paul B