Oesophageal Cancer

Hi Everyone, 

I am new here and hoping for some advice/support. My Mum has recently been diagnosed with cancer in upper osephoagus (not sure if spelling it right). She can't swallow liquid or food and is being fed through pic line. She's vomiting lot of blood and has pain in upper back. She's in hospital currently and we are waiting on the staging full prognosis. These symptoms to me seem very advanced? Does anyone have any advice or thoughts? She is due to try have a stent fitted tomorrow. 
Thanks all, Rose

Parents
  • Hi Rose, 

    I don't like to comment because everyone's story is different and unfortunately my dad 58 wasn't lucky with this type of cancer, but only because it had spread. Praying your mums is still in one place and can be treated. 
    I wanted more to comment on the eating and drinking, this was the most painful part for me to watch and my dad refused a line and continued to struggle every single meal, it was horrible. He did have a stent which worked and opened up for a short time but unfortunately he didn't have any appetite by then. 
    Sending all my love and hope for your mum though. Every story is different and there are positives x

  • Thank you for the reply, I really appreciate you taking the time to do so. My mums has spread and is inoperable. She's having a stent fitted today, if it doesn't work then feeding tube to get her home. Did he have any radio or treatment? I think this week we will get to understand how long she's got. So very sad. Sorry to hear about your Dad xxx 

  • I'm so sorry for my slow reply. 
    My dads had not spread when they found it and he was going to have the major operation, he went through intense chemo and radio every day for 5 weeks to be told only a few weeks before the op that it had spread everywhere. He was the strongest fittest man so it shows how aggressive this is. 
    How did it go with the stent? Have you had anymore news? 
    Soft with calories was so difficult and I know it's hard at the moment to get things, but marks and spencer do a full fat custard which is calorific. Have you had any of the meal replacement shakes from the doctor? Xx

  • Hi, how is it going for your mum? My husband was diagnosed with this cancer last April and passed away 2 weeks ago.  he was stage 4 when diagnosed  ( large tumors already in liver), had chemo which shrunk it for a while,  but unfortunately it took off again...some people do better then others with it, I wish her luck xx

  • Stent was successful, she's doing well at home. I'm making lots of high fat puréed dinners. She has shakes from doctors too. She's meeting her oncologist now, I'm in car park as can't go in because of covid but I'm hoping she will dial me in. She's trying to protect me but I need to hear it so I can support her fully. I'll keep you posted and thank you again for support x

Reply
  • Stent was successful, she's doing well at home. I'm making lots of high fat puréed dinners. She has shakes from doctors too. She's meeting her oncologist now, I'm in car park as can't go in because of covid but I'm hoping she will dial me in. She's trying to protect me but I need to hear it so I can support her fully. I'll keep you posted and thank you again for support x

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