Hey Chills 

I am in the exact same boat as you . Cancer is on the base of my tongue only seen in an MRI I don't know any staging yet but my lymph is swollen so I am having a biopsy & CT scan . Oncologist said I wouldn't have surgery ( not sure why I should have asked ) and will be treated with Radio and chemo . 
I also have a sore ear not to touch but a horrible nagging pain but in the other side of me head .  .. I'm thinking its stress . It's an awful time I will send you a friend request . 
hugs Ginny x x x

Thanks Ginny,  so sorry to hear your news.  I think it's the not knowing that makes it worse.  Please let me know how you get on.  If i find anything out regarding why the pain is in the ear I will let you know! I'm waiting for a CT scan and MRI then see the consultant on the 16th to put everything together.  Good luck, Kate xx

I will Kate ... I will also ask about the ear . I go next week . I hate all this . My husband had vocal chords cancer this time last year ! I can't believe this is happening again .  Where is your cancer ? X x. Hugs Ginny x 

Hello Ginny,  oh my goodness, how awful for you to be going through it all again.  I hope your husband is ok.  I did some research last night and have found something called TMJ, you may want to google it.  I don't know how relevant it will be for your case but some of the symtons certainly match my ear pain.  I had a biopsy on my tongue which showed cancerous cells.  Consultant needs to know if it has spread hence the mri and CT scan. I've got my CT scan booked for Saturday.

When is your appointment? Please do let me kow how you get on.  Sending lots of best wishes and positivity your way.  Kate xx

Morning Kate 

so yours is on your tongue too ? Kate my ear pain and the pain same side back of my head started when the consultant told me I had dysplasia ( we know now it's actually cancer ) . As a precaution he sent me for an MRI and while waiting for that result these symptoms started . I think it's stress related as it doesn't keep me awake at night but is there all day . And it's on the opposite side to my cancer . I find this ear pain awful and the pain behind  my head feels like someone pressing on a nerve . I have my dental exam next week and biopsy's of my lymph nodes . 
my husband is fine he had radio no chemo , he lost over a stone in weight and coughs a little and some food is tasteless but he is in remission now . He was stage 1 , oncologist has already said mine will be higher guessing she could see on the MRI . 
 

Anyway I am on my way to Devon to spent the weekend with my old lovely school friends of 40 years , I had to cancel last year because of Chris  and really think it will do me some good .

I hope that you are ok Kate well as OK as can be . 
 

hugs Ginny x 

Hi this is Hazel I am now 19 months post radiotherapy for tonsil cancer with several affected lymph nodes. Can’t help with the ear problem or giddiness but I do have a blog where I detail my experiences with radiotherapy and chemotherapy.There are various questions to ask  is the cancer h p v positive? Also after your mri plaunct scans what’s the tumour status is I was T2N2NM which meant tumour side between 2-4 cm n 2 2 lymph node s and no no metastasis.plus h p v 16+ which does have an effect on the treatment plan 

Blog is www.radioactiveraz.wordpress.com

Well one to the club that none  of us want to be in butbwe are a friendly lot who are also always willing to help .

keep in touch Hazel x  

Hello Ginny, hope you had a good time in Devon with your friends. Hopefully it would have given you a boost for the upcoming week. Just wanted to wish you the very best for your results this week. Please let me know how you get on. Thinking of you and sending best wishes. Kate x

Hello Hazel. Thank you so much for your message and the links. I'm so pleased to hear your results are now clear. There are so many positive stories and I'm hoping I will also be one! Yes, I'm getting a list of questions together to ask. Fingers crossed tfor this time next week! Kate x

Hi Kate 

no,problem go in held hugh and don’t be rushed by the consultant s ask them to explain anything you dont  understand .

come back and let us know, same tomGunny

Hazel xx 

Thank you x