Hi catlady macmillan aren't always good to people. I was having cemo and not very good I'm also looking after my disabled wife. A friend suggested macmillan i phoned explained everything and was told i could pay for someone.. (not very helpful) I was being sick everywhere. Another time i was struggling cancer problems and told i didn't kneed any help this was over the phone nobody could tell what was wrong apart what i told them.. I've not much faith in them now....

Billy 

Hello,

I would have to say I wasn't really impressed with our Macmillan nurse during my late husband's lung cancer journey. We only saw her once during our 6 month journey and my husband said to her that he hoped he would just go to sleep and not waken up. Her reply was - well you have lung cancer so I don't think so. She was so right but I think it would have been nicer if she had just said, well that might be the case.

It is good that yor Mum is going to be able to have treatment. If you have a look at the Stay Strong thread on here you will see Carols blog, she writes most days. Her husband was diagnosed with stage 4 lung cancer in 2017 and is presently having immunotherapy treatment. 

Kind regards.

Lynne. 

Hello Catlady,

                     the grading is an indicator of the current spread, not the success of treatment.Your mothers care team will only be able to assess this by monitoring her progress during treatment, everyone is different as could be their response.

                                           That the consultants seem positive about ongoing treatment seems to be of greater significance than an opinion of a MacMillan advisor on a telephone commenting on a complete stranger to them.In these circumstances they will stick to generalties and avoid being too positive for fear of spreading false hope.

                                       l would certainly pay a sight more heed to what the professionals personally attending to your mother have to say, than some telephone operative in a distant location speaking from a regulated crib sheet designed to fit one and all,however well meaning.

                                                                                                                 I think you are correct in being aware of the possibilities,but it strikes me that at the start of your treatment journey you should place more emphasis on the postive potential and the improvements that are constantly resulting in better outcomes.

                 l wish you and your mother well on your journey and hope that its destination is the one you hope for, mine like many others was , which have helped to make the figures you quoted outdated

                                                                                              David