Hi there and welcome ...

This is a wonderful place to share thoughts and feelings and know we understand as we've all been effected by cancer ... so your not alone ... so sending positive vibes strait over your way ... 

This cancer journey is like a scary rollercoaster ride .. we jump on, and hold on tight, with lots of ups and downs along the way ... a bit like emotions .. be ready for anything ... and if you get scared along the way, just look round... wer all on there with you ... so sending you a vertual welcome hug... chrissie xx

Hi there Rosie and welcome to our small but friendly group of those going through or have been through treatment and their supporters ( friends and loved ones) 

This is the worst time - heading into the unknown with all the fear and anxiety that brings but thats where we come in to answer any questions and offer support.Hopefully you have some support at home as I wont lie the treatment is truly arduous and difficult so having someone to help along the way is really useful. 

My hubby was diagnosed with stage 3 tonsil cancer with lymph node tumours in Dec 2015 and after 5 cycles of Cistplatin chemotherapy, 30 sessions of radiotherapy and a neck dissection has been cancer free for 3 1/2 years. Like you he had a PEG/RIG which was a life saver especially towards the end and after the active treatment finished ( the worst time is 10-14 days post treatment) as we used it for all his meds, nutrition and fluids.

Im sure some of the other members will be along soon such as Hazel aka [@RadioactiveRaz]‍  and she also wrote a blog which Im sure she'll point you in the direction of should you want to read it. 
Feel free to ask any questions you may have and Im sure the group have lots of helpful tips to offer aling the way. If youd like to send a friend request then please do.

Wishing you loads of luck and please keep us posted how your getting on .

best wishes 

Emma 

 

Hi Rosie7 thus is Hazel aka RadioactiveRaz I am 18 month post radiotherapy for tonsil cancer with affected lymph nodes. I too believe in knowing about it helped me process everything plus I am a bit of a control freak ! 

I had 35 radiotherapy sessions and 2 chemotherapy, no peg but had a feeding tube fitted week 4 has that jn for 44 days . It’s no use lying the treatment is brutal yiu onky have to think what we do with our mouths and Throat ,the recovery can be long but the outcome can be excellently I have a blog pop by it May help you facewhat’s to come ,I don’t hold anything back it’s a warts and all but now  am living my life and adaptating to the challenges I still face mostly eating I may add particularly meat.

blog www.radioactiveraz.wordpress.com

hope this helps send me a foremd request if you want to chat 

good luck keep in touch Hazel 

Hi Rosie,

Sorry to hear of your diagnosis and wish you well on your treatment.

I was diagnosed with throat cancer and have been on your jouney and wish you well.

I too kept a blog from the get go and have posed a link to this is you feel up for reading and I also started a thread here called Radiotherapy for Throat Cancer ( it's under Living with Cancer, Anchor1707 ) and there are over a thousand posts with many comments/tips etc from so many who were on the same journey so hopefully that might help as well.

I always tried to stay as positive as I could and always said there is light at the end of the tunnel and you will get there too. Some challenges with the traetment and recovery but has the highest success rate and cure so lots of positives from that.

Please keep in touch with your progress and help is only a message away on here.

radiotherapythroat.home.blog

Kind regards

Ian