Ocular melanoma

I have recently been diagnosed with ulveal melanoma.  It's near my optic nerve and about 10mm x 100mm and 2.5mm deep. Booked for proton beam therapy in March. I have been asked about taking a sample for genetic profiling to give me some idea in my prevalence on when it may mastitis . I am unsure whether to have this information.  Has anyone had this and found it helpful to them . 

  • Hi Charlie08,

    I haven't had this done (I'm Stage 3 subcutaneous melanoma) but my niece had genetic profiling and I know others who have had it or considered it. I will send you a friend request - if you accept it I can send you more information by private message. Meanwhile, have you joined https://www.ocumeluk.org/ who are very good for information and support.

    Good luck with your treatment,

    Angie