Hi there ..

Well firstly that's really positive news .. so hang on in there ... 

I mirrored yours but don't think mine was papilary one ... not heard of that, but I had a grade 3 her 2 negative oestrogen positive lump... no lymph node effected...

And yes mine was sent to the U S A ... funny thing was I was there when I found my lump while on holiday there ,. And that's where it finished up .. though I had a full masectomy on right boob ..

Mine came back low risk ... which I think is the best sinario... that was 3 years ago in July... so didn't need chemo and couldn't have radiotherapy because of my weak bones ... sorry can't remember how long it took .. but fingers crossed for a good result for you too ..

Chrissie x

Hi Chrissie

Thanks for the reply. I hope all is good with you now. Yes I'm hanging on to the positives on my position, I know it could be a lot worse. I just hate the waiting around.

Jo x

Hi,

I had a sample of my tumour sent off last summer. Think it took around 3 weeks. Mine came back with a score of 16, so didn't need chemo. I was 48. X

Hi Jo 

I just got diagnosed papillary breast cancer from my core biopsy today.  I will wait for another two weeks for MRI to check if it spreads or not. Have you done yours? Totally shocked and don't know what shall I do now. I was 40 on this Monday. I didn't expect this. When I had my ultrasound and core biopsy, Dr said it looked like papilloma just low risk of cancer.  I burst into tears on the way home.  My husband thought I should take it easy but I can't.  Hope to hear some good news from you. 

Catherine

Hi Catherine 

Sorry to hear your news. It's always such a shock.  But being on this chat is a great help and the ladies here have great advice and tips xx
 

Mine actually turns out to be Grade 3 Invasive Ductal Carcinoma and not Papillary Carcinoma.  The consultant at the clinic just told me it was Grade 3 and i assumed it was the encapsulated/papillary carcinoma they originally thought it was.  Then a letter came through the post confirming it was invasive and it is ER highly positive 8/8. HER2 negative. I go back to oncologist on 6 March when my Oncotype results are back from America.  She thinks I probably will need Chemo due to high oestrogen receptors so has booked me in to start chemo the following week just in case.  It's not what I was expecting. It's like a double whammy because I went to the breast clinic originally thinking it was a cyst!! The worst bit is the waiting I think. It's like I'm in Limbo. I look and feel fine but everyday chores etc are tarred with this "thing" in the back of my mind.  I get told often that I am a strong woman, I just want to get on with whatever needs getting on with.  I haven't had or been offered an MRI but have seen from other threads that others have been.  

I know it's a silly thing to say, but try not to over think it. We are all hear for each other. 
 

xxx

Hi Jo 

I think you are awaiting an Onco score between 0-100? They send a sample of your breast tissue to Boston USA. 

Yes I had this done too which gave me score of 9. I was quite pleased with that. Hopefully yours will be low too. Whatever the score though future decisions rely on this information so the medics are sure they are going in the right direction. It’s a great facility to have. Think they only do it when they are unsure of the next most appropriate treatment. We are lucky the NHS will provide this as it’s a very expensive test. 

Test results took just over over two weeks to come back. 

Good luck!! Please keep me posted on your progress.  

Wishing you well  

Kebbs 

Hi Jo,

Grade 2 but I was initialy told it was very small but it unfortunately it wasn’t. Got clear margins (just) and no lymph node involvement which I was relieved by of course but it’s been a scary ride really. Good news followed by not such good news. Talk about a roller coaster. 

I am going good now. 9 radiotherapy sessions down and 6 to go. 

Main thing with the Onco test you won’t  be given chemo unnecessarily as so many are. 

Hoping you get a low score but even if you don’t the medics will really know what IS required  or not required  

Much love to you .  It’s not easy I know but onwards and upwards  

Kebbs x x 

Hi Kebbs

Thanks so much for sharing. Yes it's been a proper rollercoaster here too. Initially after biopsy results I was told pre cancer or encapsulated so not invasive and probably wouldn't even need radiotherapy.  Then to find out Grade 3 invasive was a shocker and possibly chemo. I guess no one really knows until they take it out and have a good look.

Sounds like you're smashing the radiotherapy. How are you feeling with it? Any side effects?

Jo x

Hi Jo,

well so far not a lot. I am 67 and expected it to be really debilitating. I am not tired at all yet. Well no more than I am usually by the end of the day. My breast is just beginning to show signs of going pink. 

The thing I struggle with is the breathing when I am on the treatment table. I THINK it’s because I overthink everything. I have to hold my breath at a certain pitch to keep my heart and lungs away from the radiotherapy beam. (This only applies to those with cancer in the left breast)  I just can’t seem to perfect this very well. It went better today though. It’s not difficult but somehow it is for me. Always have been a slow learner!!!! 

So radiotherapy in my experience isn’t overly tough. The regime of travelling every day is more of a burden I would say. My round trip is just over 35 miles. Doable but a pain nevertheless. 

Sending you positive vibes. 

Kebb x