Hi please try not to worry my husband had two lobes removed from his right lung last February the cancer had not gone anywhere else his operation was followed by a bit of chemotherapy what they call a mop up , he is now cancer free just has to have six monthly check ups his first one is next Monday so fingers crossed. 

Hi,

Well back home after my upper left lobectomy. I think all is as it should and despite pain, coughing and shortness of breath I'm actually feeling ok.

Can anyone tell me how  long the breathlessness lasts and if its normal to have unusual sensations or feeling in the area where the lobe has been removed? I find it difficult to breath in  deeply and get a strange rattling popping scraping feeling just inside my chest on my upper left side  it also feels as if i need to clear or cough something up but obviously there's nothing there now?

Thankyou again

Lorna

Hi there

I can only give you support as my cancer was breast. I have had a masectomy and lymph node removal. After surgery you will have treatment, Trust in your team, there are there to do the best for you to get you through this, mine have been wonderful and I ask so many questions to my doctors and nurses. 
Sending you healing hugs

Silver

hi. My husband had his first routine X-ray. Since his lobectomy last February and all was clear so great news. Can I just assure you that all the feelings and sensations you have are normal try not to worry 

Well i had the surgery and was released within 3 days!! I'm good but got a call today and it kinda didn't sound so good. 

I have a very rare lung cancer and looking it up made me well really upset!

Its a large cell endocrine carcinoma which Apparently has a short life soan despite the fact I'm stage 1b???

Any help here would be appreciated. 

L xx

Hiya,

So sorry to hear the results weren't what you were hoping. It does look like quite an unusual sort of cancer. Have they given you any idea how they want to proceed? Hopefully once they do then you might start to feel a bit more in control, with something to focus on and a bit of a plan.

Also, having googled, ask about immune-checkpoint inhibitors - a drug called nivolumab, I think - as these are suggested to be effective, though I don't know how available they are (early days in the research) and it might be very difficult to get that particular treatment. Having an unusual type you might find you are able to get referred to somewhere that is interested in testing treatments on this sort of cancer - it's hard for them to get enough patients with the right illness!

But I'm not medical and I don't know how it works, so I don't want to give you the wrong information. But maybe just ask about it in case, you never know.

Best wishes,

AK

Much appreciated. I will ask.

Thank you 

Lorna

Hi Lorna,

I also have a very rare lung cancer. It's called pleomorphic carcinoma and when I looked it up it said         "aggressive with a poor prognosis" The surgeon had told me not to google it so I was expecting as much, but it is very frightening. 

What I would say is that stage 1b means that it is quite early stage and it has been removed,  so hopefully you will be told that there is not a high risk of it having spread. Operations to remove lung cancer are done with curative intent and the doctors treating me stressed that at the beginning (before it was ascertained that mine had in fact already spread). If there is any significant risk of spread, you might be offered treatment and there are lots of new treatments now for lung cancer as Angie said. A lot that you read on the internet is out of date and things are moving quickly, so wait to hear what they say. 

Just one other thing. I am stage 4 and incurable but I'm having treatment which might work to keep it at bay and today I want back to the gym for the first time 10 weeks after my lung was removed! You will find that life feels more normal and you feel more in control when you have recovered from your operation and you have a treatment plan for your cancer. 
 

Best wishes

Joy 

Thankyou for this. I loose a grip on reality occasionally so thankyou fir grounding me. Need to leave the house at some point but weatger has been too dramatic and its only been 10 days.

Thanks and well done with the gym.

Lorna