Partial Cystectomy, urachus removal and umbilicus removal

Hi!

 

I was diagnosied in November with Adenocarcinoma of the Urachus, i am booked in for Monday to have Partial Cystectomy, urachus removal and umbilicus removal surgery, has anyone on here had this and how did you find living with a cathater, daily life after, recovery etc?  I thought i wa sok but as it gets closer im starting to get really nervous (I know i shouldnt be as hopefully they are going to remove everything) and panicing about the recivery and life after

Parents
  • Hi, Hope all is well after the op. I had a similar diagnosis three years ago, low grade tumour and had urachus removal and partial cyctectomy. I understand that this a a fairly rare diagnosis. All went well with my op except for the two weeks with a catheter which was very uncomfortable. I have a yearly check up with blood tests and a CT scan, I am fine with no re-occurance or re-growth. I have a normal life with no complications or discomfort from the problem. I am told that if the next  tests ( 2020 ) are clear I will not have to undergo any furthe testing. Keep positive and you should be fine. All the best for the future.

  • Hi, how is it going? My partner is due to have the same procedure. 

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