Hi Julianna,

I am doing ok thanks. I have been having rigors for a couple of years now and, have been waiting 12 weeks to get an appointment for a brain scan to see if there is anything untoward there or, if these are just a reaction to some of the medication that I'm taking. I finally got my scan yesterday. The results will be with my neurologist in 10 days time and, it will then depend on how he prioritises my return date.

Cancer journeys are never the same. we liken them to roller coaster rides, because we get to a stage when we are sailing along cancer free, then something comes along to upset the apple cart again. I'm just keeping my fingers crossed that these turns are due to medication.

Kind regards,

Jolamine xx

Hi Jolamine , 

I wish you all the best xx

Hi Joanieb, 

Thank you for your reply. I'm glad to hear you are 3 years behind your surgery. Thanks for all the kind advice . Do you feel able to relax that it's all been taken away? 
 

xx

Thank you.

Jolamine xx

Hi 

yes it took a while to except my new normal 

but I don't think about it everyday 

I'm happy with my life it's different than it was 

 I have a good relationship with my partner he's very supportive 

the worst time for me is the annual mammogram I get very stressed 

I guess that's natural it's the fear of the cancer coming back 

keep positive x

Would you mind me asking if you were given the option to have mastectomy on the healthy breast? My consultant says that I have the same chance as anyone without breast cancer if it affecting other breast. 
x

Hi J 

no I wasn't offered a double mastectomy 

im 67 now at my last appointment I asked if I could have the genetic testing as o have a 26 year old granddaughter but they said no 

as even though my mum had breast cancer many years ago it's unlikely I have the gene 

I'm a woman and in the older category th as is where my risk is from 

if I did develop a cancer in the other breast this will be nothing to do with the first one as Mets into the other breast doesn't happen x

Thank you x

Hi Juliana

i was diagnosed with early grade invasive bc on 27th November. I then requested to change my consultant as my friend had bc last year and had recommended her consultant to me - like checkatrade! . I was lucky enough to be able to get him but unfortunately, he had a holiday booked so it meant waiting until 7th Jan for my Double mastectomy. I’d requested to have the healthy breast removed as symmetry was important to me and I Suffer with anxiety and didn’t think I could cope with the Annual mammograms. I had to have a psych assessment and that was approved on 30th Dec. 

The wait was hard but I was lucky to have Xmas as a distraction. I encourage you to keep busy. I concentrated on my fitness and used the time to up my exercise which also helped my mood. I also did loads of batch cooking and got it all in the freezer. I then used the time to research my recovery and bought bras, pyjamas, cushions, pillows, dry shampoo, sponges for bathing, vitamin c with zinc, and fibre rich snacks. Try and see this time you’ve been given as an opportunity to get fully prepared, though I know it’s hard. 

Surgery was on 7th. I had ovaries and tubes removed at the same time (another story), home on the 8th and here we are today. I’m getting plenty of rest and doing my exercises and managing on 1 codeine and 2 paracetamol every 6 hours. Drains are a palaver but hey ho!

You can do this. 

Caz x