Hello Scotlady and welcome to Cancer Chat 

I am glad you have found the forum informative but I can imagine some things can sound a bit frightening at the moment as it is a lot for you to have to take in after your husband's diagnosis. You have come to the right place though to talk to others who have been through all this before and get some tips and advice based on their own experience. You can find information on our website on tonsil cancer which I hope will answer some of the questions you may have at the moment. Our nurses are also only a free phone call away if you ever felt the need to talk things through with them and you can ring them on 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

You may have come across the incredible [@RadioactiveRaz]‍ on our forum. As you can see from her About Me and the discussions she started she knows a thing or two about tonsil cancer, HPV+ so I hope she will drop by and share her insights with you. 

I hope everything goes well with the tonsillectomy next week and wishing the very best of luck to your husband with the start of treatment in December and the high doses of chemotherapy he will be receiving in hospital. We're all here for you if you need a chat! 

Best wishes, 

Lucie, Cancer Chat Moderator

Hi Scotlasy this is Hazel aka RadioactiveRaz I am niw 15 month post radiotherapy for tonsil cancer also with spread to several lymph nodes also h p v 16+.at the min am writing this whilst in ferry back from Spain so if I do t reply straight away I will do as soon as I am online. 

I had 35 fractions of radiotherapy and 2 chemotherapy.no I wasn’t kept in over night the chemotherapy is delivered iver a day in my case started 0830 had first radiotherapy session later that day git hime for 2100 in my case 2 hours a day travelling to and from hospital.

i have a blog www.radioactiveraz.wordpress.com  where I detail my experiences, just remember we aren’t all the same some but will give you something idea. Ok the treatments are brutal it’s our mouth area but the end results are very positive. I am niw suffering dry mouth mostvdays but am eating quite well and have justbcycled over 850 km I am a wimp of a female standing 5 foot if I can do it any anyone can. Any questions please feel free to ask if you want send me a friend request and we can chat privately .

good luck just be there for your hubby as I am sure yiu will be .

regards 

Hazel x

Hi Scotlady,

Maybe also have a read of my blog as well.

Was diagnosed with tonsil cancer and kept a blog from the get go as well as starting a thread here (Anchor 1707 my thread name) titled Radiotherapy for Throat Cancer and under Living with Cancer.

Lots of contributions and tips and advice there.

I also had the tonsil out and teeth extraction before radiotherapy but avoided the tube feed.
Some challeges ahead but as I always said, there is light at the end of the tunnel.

Let me know if I can help further

radiotherapythroat.home.blog

kind regards
Ian