Newly diagnosed with breast cancer...

Hey everyone, 

I hope whoever reads this is well xx

On Fri I found out that I have breast cancer, they said that the lymph nodes looked clear, however they want to do another biopsy to double check. 

And I have to go for a full body scan. 

I'm panicking because of the full body scan, are they sending me to this because they think it's spread?

I don't know what cancer I have or what grade... I see my consultant again on the 8th November and that's when he said he will have all the information for me and a plan to move forward.

If anyone is going through this or can offer some advice I'd be extremely grateful xxx

Tasha

  • Sorry Tasha, 

    It's me again .. but just wanted to say .. once they know it's cancer, the normal thing to do is a full body scan .. it's not they think it's spread .. but they want the whole picture to know exactly what they are dealing with ...  when they get all results back the oncology team,  have a weekly meet, and they discuss every case and the whole team have a conflab on the way forward ... 

    So having that scan is really useful .. it's always good to have the whole jig saw puzzle then have pieces missing ... trust they are covering all angles my hunny ...  Chrissie x

  • Hey chrissie, 

    How r u?? X

    Thank u for messaging, I can't help thinking that what if its spread, 

    They told me that is curable but I just can't help wondering if I'll get more bad news with the full body scan. 

    With the lymph nodes if it came back negative when I had the biopsy 2 weeks ago is there a strong chance it will be positive this time. 

    So much rushing around my head, I'm trying to think positive but at the same time trying to prepare myself for the worst case. 

    I feel like people must literally be sick of me going on and on about it but I'm finding it really hard to just carry on with my normal life and put it to the back of my mind xx

    Big hugs to u hun xxx

  • Hi ...

    Really don't think any one will think wer "sick" of anyone ... we know how scary this time is .. it was the worse part for me ... so that's why I stay on here, coz anything to ease those early days for anyone, means I'm "paying it forward" from those that helped me ...

    Now I'm not sure what I've told you .. but me and my son were in panic mode .. esp my laid back son who takes everything in his stride ... then my daughter in law sat us down and said no more panicking... no more what ifs... no more looking ahead .. well live in the day .. well take things as and when they come up ... and we'll do it together... wow .. best advice I ever got ... what a wonderfull daughter in law to have .

    And she was there holding my hand through those early days ..  yes this is one of the scariest things you'll ever go through .. but get those pink boxing gloves on... and know your team are looking after you ..  breast cancer has come a long way .. me , then my untie got this two years ago .. now her son was diagnosed with breast cancer a month ago .. and he's just had news his is low risk .. and just needs radiotherapy... 

    You know once we get this diagnosis ... every headache, belly ache .. every pain , there's always a little voice in our heads saying , oh no .... but that's normal ... we change ... wer never quite the same .. which in my case is good .. I wake up every day and look up, and go "yep still here" every day to me is a tiny miracle,  l never hoped I'd have ... 

    But to get there, we have to go through a long dark tunnel, with a little torch light . ... there in the distance is a tiny light .. keep looking at that .. you can give up any time .. sit down ... stay there .. but just one day at a time, one step at a time .. the light grows bigger and brighter .. and the view from the other side .. wow ... I'll ask @Marlyn  to pop on .. she's just at the end of her tunnel .. 

    But you must try to stay in the day .. don't do the what ifs .. once we realise panic won't change the outcome .. but know anything you want to ask , or get off your chest (pun intended) wer here .. stay here .. ask anything .. vent .. cuss (in code) and know wer be here till your out the other side ... 

    Big hugs .. your braver then you believe ..stronger then you think .. more beautiful then you imagine .. and loved more then you know ...

    My young niece gave me that in a heart shape before my masectomy .. every time I was having a weak moment , I kept that with me, and looked at it .. held it to my heart and got the strength to box another day ...  big vertual hug... Chrissie  

  • Wow chrissie, 

    Thank u so much, ur words really uplift me and I can't tell u how much I appreciate u and ur support. Ur so right that's how I feel at the moment, everytime I feel anything within my body I'm panicking if it's the big c xx

    Ur family seem amazing and Im so glad u have them by ur side... 

    U my lady r one strong and wise person and ur so so right... I'm going to save ur message and anytime I'm having that little panic I will read over it xxx

    Thank u so so much xxxx

    Big hugs xxx

  • Hi i was diagnosed on Thu and sounds like we are going through exactly the same. I too have to wait for my mri and for my treatment plan. It's horrifying I'm avoiding everyone but my family at the moment till the news settles in. You are not alone!

  • Hello there,

    we hear the word cancer and the first thing we see in our panic is a death sentence....then we settle down ( eventually) and realise that we're actually going to be ok...

    i have never had a ct scan but would really like one! Lol...I'm going to ask my onco for one at my next appointment....I'm virtually through all the muddle and haze of treatments now, the only way I coped was to take it daily, I didn't think too far ahead, I ticked off each thing as they came....

    i know it doesn't feel like it now but I'm telling you you can and will get through this, there will be highs and lows, it's a scary ride for sure but it's one that you have to jump on and do.....being brave is being scared witless but jumping in anyway...

     

    come on now love, pull those big girl pants up .....we're here to catch you....xxxxx

  • Hello, 

    so your on the ride too, boy, there's so many of us on it! We're here for each other, it's amazing the strength we get from each other.......do pop in when you get a mo, it's always good to chat.....xxx

  • Thanks how does this work do you have to add friends or just openly chat. Reassuring to see others on her going through this. It really is a brand new world I'm entering. 

  • Hey lovely, 

    So sorry to hear about ur news, 

    I'm always here if u need a chat hun, we can get through this together...

    Have u got an appointment date for ur mri..

    With the help, support and advice from everyone on here and at home I'm trying to take one thing in at a time... So at the mo I'm just trying to focus on my biopsy on tues and then I will tackle the rest as and when it comes x

    Every now and again I feel a sense of panic and I start to worry and my head races... But I just busy myself or come on here to talk to someone or call a friend.... 

    I know its hard but I have felt the more I talk about it to family and friends the more I'm coming to terms with it.... Everyone is different tho and u just need to do what u feel is best... Just don't give up hope.. U have got this hun.... As hard as it is try and stay positive hun xx

    Big hugs and kisses for u xxx always here for u xxxx

  • Hey marlyn,

    Thank u for messaging, bless ur heart... Glad ur making ur way through it and I want to send u a giant hug... 

    U sound so strong and confident....

    I am generally tough and take on the world... This has taken the wind out my sails at the mo but I don't plan on staying like that. 

    Each day and with all the positive words from lovely people like u I'm starting to to believe I've got this.... 

    Defo agree with taking one thing at a time and try not to stress about the things that may happen, deal with the info that we know now xxx

    Loads of love for u marlyn and thank u xxx