More bad news

I am in total shock and can't stop crying. I was originally told that my lobular breast cancer was about 4 centimeters and the the consultant said he did not think it had went in to the lymph nodes so I had a lumpectomy last Thursday and had the mind set that it was going to be ok with some radiotherapy after wards because they hopefully had got clear margins. I have went back tonight to see my consultant who has confirmed that the tumour was actually 6 centimeters and it was in one or two of my lymph nodes as he felt the others and didn't think there was in any of them. I was absolutely shell shocked. He has said beacuase the tumour is the size it is he wants to undertake a mastectomy next tuesday and will remove quiet a number of my lymph nodes knowing as a clearance. He has also said about having radiotherapy afterwards. It's like my world has come crashing down. I keep thinking that's it I am going to die and not see my sons settled with families of their own. I am shaking all the time and can't stop crying. Please any advice on this would be greatly appreciated as I don't know if I can cope with this. I just need some form of reassurance from some of you lovely people who have been through this

  • Please don't think you are going to die! They have found out what needs to be done to rid you of the cancer and they will do it. 

    I had a mastectomy from choice, a week ago and I'm glad that they have got all the tumour and I won't have to go back to get clean margins.  I am in my seventies and don't feel as attached to my boobs as I did when I was younger, so I just wanted the cancer out.  The mastectomy isn't that bad, the wound site is a bit tender but all pain is made manageable by the medication I take.  I've been fine, my drain might come out today, but it might not, but it's not that annoying!

    i don't know yet if my lobular cancer has gone into the lymph nodes, I will find out next week, but if it has then I shall probably have radiotherapy, not something to get excited about, but not the end of the world either. Please realise you are on the right side of it, you are getting rid of it, which is what has to be done. 

    You will be fine. It's a nuisance that your life will be dictated by hospital appointments etc and it is hard to think about anything else at this stage but it is far worse for your loved ones if you fall apart.  My kids are middle aged but have suffered far more than I have with worrying about me and have driven me crazy with their questions but even they are relaxing now they realise that I am being given all the treatment I need.

    Good luck, you will feel so much better later on. 

    Christine

  • Thank you so much for you kind reply. I know that there is good success rates for breast cancer now, but I just keep thinking the type we have is hard to pick up and how long it has actually been there. The mastectomy is part of the course with the tumour being so big, but what I worry about most is that it has spread in to my lymph nodes and to other parts of my body.

    glad your surgery went well and wish you all the best 

     

    please let me know how your doing 

    thank you again xx

  • hi lovely I’m so sorry you had this news thrown at you it’s bad enough what you’re already going through but look on the positive side girl and let the doctor do whatever he needs to do remove all the cancer cells I know mastectomy sounds horrendous but I’m sure it will be fine  and you’ll have a good recovery have they asked you about breast reconstruction? they can do it at the same time as the mastectomy a friend of mine had it done and looks amazing I had my lumpectomy on Friday and now awaiting for results it’s not knowing what’s coming next is the hardest take care now and try not to worry 

    best wishs marie x

  • Thanks for,your kind reply Marie.

    Reconstruction wasn't mentioned at this stage as I may need radiotherapy. Sitting here at 4.40 in the morning as can't sleep due to my nerves being shot. Then there's the wait for the results a week later to see what's happen to my lymph nodes. I am just keeping my fingers crossed that it's not another shock. I keep thinking that it may have spread, every little ache and pain I think omg has it. My husband has been a great support and keeps telling to try no it to think like that, but it I suppose hard not to.

    let me know how your results go.

     

    christine xxx