Scared and can't stop crying

I have Just been to see my consultant who has informed me that I have invasive ductile carcinom, it is also Hormonal ER+  which he says is better as it can be treated with hormone related medication. He wants me to have a breast MRI scan on

Wednesday and said following getting more results back he wants to carry our a lumpectomy the following week, but has said if the margins are not clear enough that he might have to undertake another  lumpectomy operation to take more breast tissue away and then it could possibly lead to a mascetomy furthers down the line

What I am more mixed up about is he could not give me the stage of the cancer as he Is waiting for the results. He hasn't also said that I would have to wait around 10 days after the lumpectomy to see if it,had went in to my lymph nodes. 

I cant stop crying as I thought when I went today I would have all the results of the biopsies and even know what stage it is so I am still in turmoil 

i feel so scared that I am going to die that the outlook is not good

 

 

  • Hello love,

    wanted to pop by and try and put your mind to rest. I too was her2 pos ductal carcinoma ( with a bit of mucinous thrown in ) 

    Everything happening now is protocol, it's only when they have removed the gremlin that you will get a definite way forward....it is pretty common not to have clear margins on the first op, I was very lucky and she got clear margins....

    The gremlin will then be sent away for examination, these results will be discussed at an MDT meeting, and a treatment plan will be put in place....when you have the scan they will be able to see if any lymph nodes are enlarged, they will be particularly interested in the sentinel node as this is the gateway to the rest of them....

     

    There are lots of targeted therapies for her2 pos, but try not to get swept away by them, it can be very overwhelming! These therapies are marvellous and we are so lucky to have them available to us. 

    Just try and take it day by day, don't be looking for the ifs and buts and what ifs . Put your trust in the NHS, I know your scared, but we have to squeeze our eyes shut and jump in.....the outlook for our cancer type is excellent, take comfort from the fact that I was in your position at Christmas, now I'm out the other side getting my life back.....I promise you....you will be ok ️ 

  • Thank you so much for your reply. I know  it's very scary and all of these things are going round in my head, why me, what have I done, but I know your right about the jumping in. It is comforting to know that you have come out the other side. I know people are saying keep positive and I do try, but just wish this horrible thing was out of my body, which probably would make me cope a little better. Again thank you for giving me some reassurance that people do come out the other end xx

  • I totally understand, I've never drank alcohol, I've never smoked and I've been a vegetarian for about 40 years....but it seems my body has let me down ( well, that's how I felt at first) 

     

    you will feel loads better once the gremlin has gone, it's also a good thing surgery is coming first....I'm always here if you need to chat....xx