Hi Nina this is Hazel I am 12 month post radiotherapy for tonsil I had 35 radiotherapy sessions and 2. Chemo was given  the all clear in January. Radiotherapy isnt easy  but if I can do it a 61 year old wimp at the time anyine night can ,mine obv isn’t the same as yours but area wise uts similar plus I’ve got dry mouth as a lasting side effect from my glands being fried. I have a blog where I detail my experiences justvremeber we are all different even people with the same illness a me reacted slightly different .also in here Is a thread Radiotherapy for Throat cancer where Ian aka anchor 1707 posts his experience hope they help if you decide to read them . Try and keep off dr google as the fact so on there are not alway in fact rarely  are accurate .

Hazel 

Thanks Hazel. You are so right about google. It’s terrifying!

Nina

Hi Nina as my oncologist said to me if he went in with a cold symptom within 5 mins he could diagnose himself dead. Stick to recognised site on her Macmillan or peoples blogs who can prove like me they’ve been there gotvthe t shirt so to speak. .the American Cancer site and Canadian one stop are quite good as well keep in touch  .

Hazel

Hi Nina,I was diagnosed with cancer of the Parotid gland and also in my inner ear on the RHS in Jan 2019. Since then I have had 6 weeks of radiotherapy, daily for 5 days a week plus Chemotherapy weekly. This unfortunately had no effect on the cancer. This was in February and March. Since then I’ve been on immunotherapy since end of June. This does appear to be having a positive effect. Next dose on wed. Oct. 2nd. It has been one helll of a year. More to follow

Mike

Hi, I’m Shirley

I had total parotidectomy 18 months ago, facial nerve was involved and lymph node.  This followed 30 radiotherapy sessions and a rollercoaster ride.  Forward to today..... face, scars and life is much much better.  Any questions?. Just ask.

Good luck, presume you have had the operation? Have you started radiotherapy?

take care

Thanks. I am glad you are doing well. In the end, I was lucky - the operation went well, the facial nerve was not damaged and they then decided the tumour was benign. I therefore don't have to have radiotherapy unless I want to eliminate the small risk (7% over 20 years) that the tumour may recur, even though it is benign, at which point I would very likely be facing facial nerve injury. I really don't want to undergo radiotherapy so I think I will have to run that risk, since it is quite low. 

hi Nina

great to hear it was good news, all the best for the future and don’t blame you for passing on the radiotherapy!!

take care 

Shirley

great  news. Carry on living 

Hazel x