Newly diagnosed with stage 1 breast cancer

hi 

anyone out there ? I feel so alone right now 

diagnosed last week with stage 1 BC after routine mammogram- how can I feel so well yet have this in me ? 

I realise stage 1 is early, I am lucky etc etc but right now I don’t feel it

Family being ultra positive whilst I am falling apart inside 

so feel like I can’t scream and cry like I want to!

anyone else feel like this 

  • Yes I’m hoping but just always have that worrying thought that maybe it had gone to all my lymph nodes after I’ve had the ultrasound about 3 weeks ago. 

    Did you feel a numbness under your arm pit? I feel quite numb and my dressing are starting to peel away even though the nurse said to keep them on for a week. 

     

    Yes posotive thoughts dor the 16th!!!!!

  • Thanks Jackie,

     

    I’m starting to feel really apprehensive now. 

    I went to see my GP today and she made feel better. She told me that the hospital and my surgeon are both very good. I did have a real wobble though. I know it’s early, treatable etc blah blah blah - bit fed up of hearing that. It’s still a big deal to me !

    I hope i find out about the lymph nodes straight after surgery - most people seem to .

    Has everyone else been given the anti bacterial body wash ? We all have to use it for 5 days before and are supposed to have clean bedding every night . I’ve heard of people using the wash the day before and the morning of the op, but 5 days ! We don’t have that much bedding ! 

    Xx

    Jo 

  • At my hospital I had to sign consent forms that if first 2 were positive they would go on and would have removed them all..,, Yes my under arm started to peel but just left them until went back and what a mess they were but as healed well they took them off!!

    everyone says underarm is the worst so your the same as us all.....don’t stretch too much until stitches are healed but move gently!! Love xxx

     

  •  

    Hi girls 

    had op yesterday and as you can see from time I am up at 4am as can’t stop being sick and feel very giddy.

    for me I think it has hit home now and I am wobbling - they didn’t mention lymph nodes tho so don’t know how many they took or what initial thoughts are 

    no follow up appointment either ... waiting starts again it seems !

    much love to you all xx 

  • Hi,

    that feelings horrible isn’t it! I hate that feeling of sick! 

    Before the op my consultant said that he would take the first to check to see if it had gone there. No one spoke to me afterwards so I’m not sure if they were clear. I was in theatre for a long time though- 3 hrs! He said it would only be about hour an half but apparently had trouble finding the first lymph node. 

    I’m currently on day 3 recovery and feeling lots better just can’t pick up my 6 month old. My throats been hurting too from the tube. 

    Hope you feel more human soon x

  • Hi Altiapa Just wanted to check in and see how you are doing ? X
  • Dear Esta, (all) 

    Glad your op went well. Oncologist said it is around 80-90% of our chances, therapy etc will top up the rest.so that's great news. 

    It has been a while and although reading about you, I couldn't log to reply until now. Anyway  lots happening. Op went well, 3 lymphs removed. Sore but three weeks after I am almost normal. care was key, not strong movements,rest and please do yourselves the therapy recommended (simple exercises given from a leaflet). However, nearly faint after surgeon said one lymp is positive so chemo for 6 months would sort it. Grateful oncologist didn't agree so going to second op next week and tamoxifen and radios (well, that's so far the plan). 

    I found it very difficult to sleep this days, what do you people do to stop thinking on this? Day time is ok but nights are sad. 

    Much love to all. Everyone ask me to be strong but I feel the most vulnerable person in the world right now  

  • Oh no that’s crap .... thank heavens oncologist didn’t agree - my worst nightmare is chemo 

    i am absolutely dreading the results and 3 weeks seems so long to wait 

    I’m only sleeping because of painkillers knocking me out - I just can’t get my head around it at all .., how can this come out of nowhere and blow our lives up like this 

    and if ONE MORE PERSON TELLS ME I AM STRONG I MAY JUST KILL THEM !! 

     

    But hun we have no choice but to do this ... one step at a time ... please keep talking to us all as I think it honestly really helps.

    we are all in same boat and understand how you feel ...

    i am in agony today (day 3 post op) did anyone else get worse before better ??

    loads love xxx

  • Hi Lovely, Sorry to hear you are still in lots of pain.... it’s awful the waiting but I’m thankful my Surgeon gave me my lymph nodes results immediately after operation so can understand how you are feeling as it was a wait to get results of tumour biopsy...I must have been lucky if that’s the right word (NOT) that all I took was paracetamols and managed ok,but mood was very low.... shaky,scared,panicky although the crap had been taken away Totally agree with you about what folk say you are strong well you aren’t in my shoes so you try it.... love and squishy hugs xxx
  • Totally understand how you are feeling,I go up and down with all that’s ahead but so pleased that Oncologist disagreed about the chemotherapy for you...it’s a damn mindfield isn’t it? 

    Just go with how you feel and let the tears out as and when you need too

    ive had trouble sleeping at night as it all rears it’s ugly head again but found no iPad or phone after about 8ish and if you can stomach it a mug of hot milk has helped me a bit.

    Much love xxx