Newly diagnosed with stage 1 breast cancer

hi 

anyone out there ? I feel so alone right now 

diagnosed last week with stage 1 BC after routine mammogram- how can I feel so well yet have this in me ? 

I realise stage 1 is early, I am lucky etc etc but right now I don’t feel it

Family being ultra positive whilst I am falling apart inside 

so feel like I can’t scream and cry like I want to!

anyone else feel like this 

  • Hi, just joined this chat for the same reason. I am with you. Diagnosed early BC a few weeks ago and feeling the world has fallen apart  However, I just had my surgery yesterday and feel more positive something can be done. 

    During the very few moments of solitude so fare (family has been amazing with me) I cry, a lot, but then I think it is me suffering and it would be much harder seeing a beloved one suffering this. However it hits me harder seeing my son, husband and parents, suffering for me. I try to remain calm to not cause them greatest sadness.

    I am going one step at the time as the surgeon wisely suggested. Reading what is coming just now and leaving the next step for later. A lot is coming and i feel the best I could do right now is be grateful for everything life has given me, spent time with all people I love, trust modern medicine and look after myself as much is possible. I am positive yes, but also I am conscious I need making my mind and body strong for what is coming. With the surgery I thought the worse, but here I am calm, resting although thinking (but no worried) about the next appointment when I heard from the next biopsy. 

    Let's be strong ad enjoy being alive. 

    Hugs to you Esta and all people out there,

  • Hi Esta and Altapia

    Better out than in I say ! If you need a good cry or scream you should. 

    I was also diagnosed yesterday. I don’t have the full picture yet. I’ve had two biopsies, and was told yesterday that the mass they’d seen on my routine mammogram was just normal tissue but I have a small area of non invasive cancer and another area which is probably invasive. 

    I’m having a lumpectomy and two lymph nodes removed on 11th September. I might need radio therapy and further surgery, will have to take medication for 5 years (tamoxiphen ?) but won’t need chemo.

    I wish I’d asked more questions - I was just so relieved that it wasn’t worse news! The woman before me came out in floods of tears.

    I will definitely ring the breast nurse in a couple days when it all sinks in properly and I can order my thoughts well enough to ask questions.

    Hugs and positive thoughts to you both 

    ( and chocolate if it helps)

    Jo

    x

     

     

  • Thank you both - its good to not feel so alone.

    I have sooo many questions now - has anyone had an MRI ? Dr Google tells me this is common with BC yet I havent been offered one as yet... so worrying about that now!

    Have pre op tomorrow and op booked for 05th Sept also includes lymph nodes removal..then they say 3 weeks for the final results. THREE WEEKS ! how am I going to cope that long..they have told me to expect 4 weeks radiotherapy and have ?? next to chemo (thats the one that really scares me!)

    And yes I agree chocolate as wine is off the menu now to 

    Thanks again x

  • Hi both, 

    I have not had an MRI, trusting is not necessarily urgent at this stage. I have been told after yesterday's operation results for the lymp biopsies it will take two weeks. Yes, a lot to wait I agree, but in the meantime, before your surgery please take time to sorting things you urge to, as I have been told not to lift things for 4 weeks now for example. I have a sore arm and chest (not as bad as expected) also because of the wire, and because of this and the nuclear injection, I can not cuddle as much my son and I miss that very much. So, go out and spend quality time with yourself and family,  lots of cuddles  and come in good spirits for the surgery. Wondering why so much delay for you Teesider? Perhaps is worth asking if the surgery can be done earlier, I agree is a lot of time to wait....

    Let's keep in touch, my best wishes for both. God help us. 

  • Hi I’m Jackie,and had my operation a week ago today with same as you Stage 1.....

    had a lumpectomy and also checked nodes which were clear thankfully but like you everyone positive it’s now gone but I feel empty inside,I didn’t cry but boy you need to and when I did it was a floodgate opening and still feels like more to come...

    Being told its gone yes it’s been removed but still got to face all ahead with everything else...

    Much Love and here for you Jackie xxx

  • Altiapa and jackie 

    thanks so so much for replying, seems your both a few weeks ahead of me in the treatment stage.

    few more questions - Altiapa why can you not hug your son is that because dye injection ? How long is that for ? I have 5 grandchildren that are the light of my life and not being able to hug them will be awful

    And jackie I agree just because it’s “gone” it’s hasn't really has it ? Why do people not understand that ! 

    If one more person says you are a strong Woman i may scream 

    Did they say when you could drive again after op ! 

    hopefully we can help each other through this horrible journey just so surreal 

  • Hi Esta,

    I have been very lucky if you can call it that,I had my biopsies,saw Consultant a week later and the following day I got a phone call to say I could have it done 7th or 28th August,needless to say I went for the early date and it was a rush to get all the pre operation checks done but did it,so many different hospitals.... 

    The dye injection when I went blue was the day of the operation but the radioactive injection I had the day before my operation so having got 3 IVF grandchildren it was only that one day before my operation and the more you drink water the quicker it comes out,so maybe see if you can have the radioactive injection the day before your operation so you can get your cuddles in....

    mine was so quick that my tears and fears have come out now,even though I know it’s gone out of me and got to have radiotherapy in a few weeks time which I’m petrified off and then the tablets for years and years but hey it will keep it away Much love and always here Jackie xxx

  • Hi Jackie

    Yes I am dreading radiation too - but chemotherapy is my worst nightmare. They have putt ??? on that in my papers so hoping it isn’t needed.

    wish mine was that quick - didn’t get letter until 4 weeks after mammogram then went in two days after to have biopsy etc then another 10 day wait for results.

    now 4 week wait for operation then 3 weeks after that for results it’s an awful waiting game.

    my kids have all grown now and have families of their own but telling them was the worst thing - seeing grown men cry is awful when you are the reason 

    so we have to get throughthis journey one step at a time - no other choice have we . 

    But **** I am scared

  • Esta,

    I’m absolutely petrified about the radiotherapy,being in that room on a bed with a machine going round and it looks quite high to me,and got to lie totally still but everyone telling me that it’s a doddle!!!

    Yes I dreaded telling my kids who are grown up too, and said it’s just a blip....some blip eh!!! 

    We must support each other all the time,I need help same as you lovely....

    Which Hospital will you go into? My consultant mentioned Chemotherapy but I think that’s to cover themselves as my BCN hasn’t mentioned it since...

    Much love Jackie xxx

     

  • EHi Jackie

    have a confession - that’s my name too ! Used my moms as a username don’t even know why ! 

    I’m in bham - to be fair they have been amazing so far just the waiting that gets me ..

    have you heard of the moisturising tip ? Everyone says we must use as much as possible after surgery and before radiotherapy as it helps (?!?) anything is worth a try 

    I’m told it’s only 4 mins in machine - **** we can do that if we have given birth !!! And raised kids !! 

    Where are you under ? 

    Hope your family are supporting you chick - it’s a really ***.  Time in our lives but as my nurse said it’s not a battle it’s an inconvenience! Let’s try and hold onto that...

    sat at down with my lot and told them I can’t cope with all the positivity that seemed to have helped although no one  really understands it do they 

    Happy to to swap emails if that would be good for you to - must be a kind of private message thing on here we can do that??

    Or to chat on here - us jackie’s have to stick together

    we can do this ! 

    Xxx