Breast MRI - tumour is bigger and nodes look enlarged

I was on her a few weeks back while I was nervously awaiting biopsy results on a suspicious looking lump in my left breast.  It turned out to be breast cancer. I was told it was: grade 2, 18mm and that according to the ultrasound and mammogram my lymph nodes looked fine.    The consultant told me that they’re confident that they will be able to successfully treat me. 

 

I very quickly started to get my head around the diagnosis.  Yeah it was *** that I had cancer but it was caught early and treatment wouldn’t be too gruelling.  Based on all of my Dr Google research - I was under the impression I’d be looking at a lumpectomy followed by radiotherapy and hormone therapy.  Oh, I wasn’t told the receptor status but the doctor told me it’s unlikely to be triple negative or HER2 because it isn’t grade 3 therefore she suspects its hormone receptive. 

 

Fast forward 1 week. I go in for an MRI. I had been reassured by the consultant the week before that the MRI was just to get a better view of the breasts ahead of surgery.   3hrs after the MRI I get a call from the hospital telling me they’d like me to come back in tomorrow for an ultrasound.  I completely freaked.  Couldn’t eat or sleep for the rest of that day.  Went to the appointment and met a radiologist who explained that the MRI had flagged up three more areas of concern. Oh and that according to the MRI the tumour was now 28mm and not 18mm as originally thought.  Of the three areas of concern 1 turned out to be a lymph node close to the tumour which she said had probably just reacted to the biopsy if had two weeks prior. She wasn’t worried about that one but still did a biopsy.  The other two we’re lymph nodes in my armpit area.  She said they were enlarged. Her words were “they’re not huge but they’re bigger than the others”. She then did a fine needle aspiration of one of the enlarged nodes and told me I’d get the results the following week when I am due to have treatment plan meeting (this Friday). 

 

I have fallen to pieces upon hearing this additional news.  I didn’t think the goalpost could just shift like that.  I thought anticipating or hearing the words “I’m sorry, you have breast cancer” was the worst thing ever. Turns out - it can get worse!  

 

I suppose I’m looking for some reassurance from fellow breast cancer girls on here.  Has anyone had wildly different sizing of their tumour and if so, which turned out to be most accurate out of MRI, ultrasound and mammogram?  I also wanted to know if anyone has had swollen lymph nodes that have turned out to be nothing? 

 

I just didn’t think the goal post could shift. I was originally diagnosed as stage 1a.  Now, depending on how many lymph nodes are involved I could be looking at 3a! 

 

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  • hey

    Sounds like you are having a bit of a tough time at the minute. I’ve got some experience of new things being thrown up when I was going through my diagnosis, I have a large tumour, they can’t agree on the size even with the scans ( I had mammogram, ultra sound, mri, ct and pet ct scan) I’ve accepted that and moved on to focus on what I can do about it, and its in my lymph nodes, I was originally told, mastectomy and reconstruction straight away and chemo, then chemo first, mastectomy then radiotherapy and reconstruction in a years time.  My scans also threw up a couple of other things to keep me on my toes, an inflamed appendix (no symptoms) which I had to have taken out before treatment could start and an internal mammory node that looks suspicious!!! 

    I know it’s frustrating but the good thing about the scan is that you will know what you are dealing with, you can get your plan sorted and it’s a step forward to getting this thing beat.

     

    let us know how you get on on Friday. X

     

  • Will do.  

    What became of your suspicious mammory node? 

    Do you ever feel like you’re on a run away train and you just want to say “ok, that’s enough now. I want to get off”. That’s how I’m feeling now. No more surprises please. 

    So have you not undergone any treatment yet? 

    X

  • it’s still there being suspicious.  So we agreed to deal with things in order, first was to get the appendix out which I had done in May. Then get on with treatment, so I have my 5th cycle of chemo out of 6 next week.  They will keep an eye on the node so will probably need another scan, if it’s responded to the chemo then it’s likely it is cancerous if it doesn’t then it’s likely it’s just a dodgy looking node.  It’s on my list to talk to my surgeon about to see if he can take it out, but having spoken to the breast nurse I don’t think it’s that simple because of where it is.  I think I got to the point where I couldn’t deal with anything else popping up.  

    I described it as a *** rollercoaster that you can’t get off and it keeps going round and round. You do get to a point where you don’t want to play anymore.  But it does get easier to deal with, and you get a new normal and then before you know it your half way through treatment. 

     

    X

  • Your 5th round of chemo out of 6.  Well done you!!!!  It’s looking more and more likely that I will need chemo now. How have you found it. I have an 18 month old so I am dreading it. I will have the support from my family but I’m most worried about having to be absent from him being laid up in bed all the time. 

    Did you have positive nodes anywhere else or are the shrinking your tumour before removing it. 

    Is your tumour hormone receptive and or HER2 or triple negative? 

    When does your dodgy rollercoaster ride stop?  

  • I’ve actually found it ok to be honest, the first three relatively few side effects but the ones I did have were manageable, the last round was a bit tougher.  I’ve got two children aged 7 and 10, they understand that I need some chill out days.  I’ve not spent that much time in bed, just takes me a little longer to get out of bed in the morning for the week after the treatment.  And I do different things with them, so snuggling in bed for book time or sitting watching a film.

    They are shrinking the tumour before they operate and it had reduced quite a lot after my 2nd cycle so the treatment is working. It’s also in my lymph nodes in my armpit.  So operation next, then radiotherapy, all being well all done for Xmas, then reconstruction at some point next year, and it’s hormone receptive so tamoxifen for 10 years.  My mum had Bc 17 years ago and had the same treatment and is still here.    I’m starting to worry about the op, it’s been playing on my mind a lot this past week, but I know I have to just get on with it.

    This forum helps, reminds me that it’s all doable, there are some amazing people on here.

    X

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  • I’ve actually found it ok to be honest, the first three relatively few side effects but the ones I did have were manageable, the last round was a bit tougher.  I’ve got two children aged 7 and 10, they understand that I need some chill out days.  I’ve not spent that much time in bed, just takes me a little longer to get out of bed in the morning for the week after the treatment.  And I do different things with them, so snuggling in bed for book time or sitting watching a film.

    They are shrinking the tumour before they operate and it had reduced quite a lot after my 2nd cycle so the treatment is working. It’s also in my lymph nodes in my armpit.  So operation next, then radiotherapy, all being well all done for Xmas, then reconstruction at some point next year, and it’s hormone receptive so tamoxifen for 10 years.  My mum had Bc 17 years ago and had the same treatment and is still here.    I’m starting to worry about the op, it’s been playing on my mind a lot this past week, but I know I have to just get on with it.

    This forum helps, reminds me that it’s all doable, there are some amazing people on here.

    X

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