Hello and thanks for posting.

I am so sorry to hear about your situation, and can't imagine what you are going through at the moment.

You are asking for other people to comment who may have been in a similar position as you. You have posted on the ask the nurses thread so whilst people are welcome to post comments here, you may find you get responses posting on other threads too.

You are right in saying that usually if abnormal cells are found during pregnancy they are often monitored and treated after baby is born. Very occasionally the doctors will recommend treatment if they are worried about not treating the abnormalities and what this might lead to. 

Try if you can to talk to your doctor about this and how this is making you feel, and if there is any possibility of delaying treatment.

This must be such a difficult time for you and I do hope you have good supportive friends and family around you to help you at this time.

Please get back to us if you feel it would be useful, or if you would like to talk to a nurse on our helpline our number is 0808 800 4040, we are here Monday to Friday 9am till 5pm.

Take care,

Naomi

Hello! 
 

how are you? I realise it's been a while since you posted but I was wondering what the outcome of MDT was? 
 

im in a slightly similar position - I had a abnormal smear in the summer that was decided it was ok. Then at my 6m check I said about trying for my 2nd child. Dr was great and thorough and suggested MRI and internal after taking a sample. 
 

Mri was fine - and internal ultrasound there was an informal diagnosis of pcos - I was ovulating that week so without the biopsy result we thought why not try... chances are slim.

I then found out I had some high grade abnormalities- probable CGIN but not confirmed (inner part of cervix I believe) so they scheduled me for LLETZ and a camera up there so I'd go under general. I then was at my preassesment and was suggested I took a pregnancy test - which I took with my husband - and it was positive!

initally I was so excited but then have had mixed messages about how safe it would be to delay this treatment - I now have to wait 7 days for the MDT meeting. I'm only 5w but I'm really struggling with the wait/ and the potential choice. Mum of 1 and I'm not done! 
 

thanks

Good morning, 

Thank you for commenting and this is why I'm happy I have posted as others can see and contact as I found such limited info online or others going through similar being pregnant.
 

The MDT saw me get transferred to a Brighton specialist who I was then under and he was happy to review and monitor me as the biopsies taken were pre cancerous at that stage. I did have to have another internal and he examined me though as the doctor who did my biopsies had expressed a concern that it was cancer but he was happy it looked like a normal pregnancy cervix and I went on to full term with baby being 1 week late. 
 

She was born Jan 2020 and I had LLETZ in March 2020 which removed 5 cm of cervix. But the histology on that did come back as stage 1a2 cancer. it was caught early though and no spread. 
 

Hope you're ok and sending lots of love to you xxx 

Thank you so much for replying - congrats on your LO - my 1st was born Feb 2020 - what a crazy time! 
 

I feel a little better this morning now feeling a bit more balanced (not all consumed with pregnancy - knowing there's still more conversations to be had) it's lovely to hear of this outcome though. 

Hello!! 
 

so I realise I am replying to myself here (and to you Hayley) with an update because it does seem this situation is rare and wanted to make sure anyone else looking could find other stories.

After posting last time my initial surgery date was cancelled and I had 2 telephone consultations with the consultant. The 1st was to explain the situation (wanted pregnancy but understood the my health needed to be considered) she said she would discuss the case with the MDT and get back to me.

The next 2 weeks was very odd, as I was pregnant but couldn't celebrate and was nervous of 'acting pregnant' in case it jinxed it (daft I know) 

2 weeks later I had a lovely chat with another consultant who explained my options. 1 was to proceed with a monitored pregnancy and get treated 3 months after baby was born however they couldn't say if and how the cells might develop in this time. 2nd option was to have LLETZ after 1st trimester at 14-16weeks. It posed a risk for miscarriage and infection slightly higher but hopefully should treat me. The lat option was termination and procedure and try again for baby later in the year. 
we were both pretty sure the 2nd route was the way we wanted to go but took the evening to weigh up the options.

I am now writing this after having had my lletz surgery at 15 weeks - the team were fantastic and very communicative throughout. They said it was a success in terms of my cells and they popped the cervical stitch in just in case (as I was there and under general) I was sent home on antibiotics to help hold off the infection and hoping to have follow up in a couple of week. They scanned the baby before and after which was lovely too

i know I'm not out of the woods with the recovery yet and still a long way to go in the pregnancy but I feel really happy with the decision I made and that the cells are all removed.