Pregnant and diagnosed with high grade CGIN

hi there, 

I don’t know if this is right but I’m just wanting to get information or support from others that have gone through similar to me. 

I had a routine smear on April 16th that I had to literally keep calling and eventually managed to get it done by a gp as I was told there were no appointments and in the end I had to say it wasn’t good enough to be seen

During  the smear I would have been early stages of pregnancy but not be known to myself or be detected on a pregnancy test. 

10.5 weeks later I receive a letter with my smear results saying I have a high grade abnormality.

i contacted the colposcopy unit and shared that I was now pregnant etc. 

I’ve then had my appointment on the 1st July and two biopsy’s taken of the abnormal cells identified with the use of the dye. The area highlighted was small and not a quarter of the cervix.

i was then told I would be called the following Thursday with the results etc. 

yesterday I’ve had to call to find out about my results as I hadn’t been contacted and eventually managed to be seen today by a doctor on the pregnancy ward today.

my results say I have high grade CGIN and CIN on the cervix too. 

They are discussing me next Tuesday at the multi disciplinary meeting but I’ve been told mixed messages about what treatment they may decide. 

they’ve  shared it’s a rare case and CGIN is not seen as much as CIN etc 

Im now 16 weeks with my 4th and last pregnancy but have been told that I have to think about my other 3 children even though it isn’t cancer. 

I’m in bits as I can’t mentally go through with terminating and seen the information online that states in pregnancy it doesn’t usually change and monitoring can happen. 

I saw another poster posted this exact situation last November and just wondered the outcome as I feel so alone and like I’m the only one whose ever been in this position.

 

I hope this is ok and I’m so grateful for any support or information.

 

Thank you

 

 

Parents
  • Hello and thanks for posting.

    I am so sorry to hear about your situation, and can't imagine what you are going through at the moment.

    You are asking for other people to comment who may have been in a similar position as you. You have posted on the ask the nurses thread so whilst people are welcome to post comments here, you may find you get responses posting on other threads too.

    You are right in saying that usually if abnormal cells are found during pregnancy they are often monitored and treated after baby is born. Very occasionally the doctors will recommend treatment if they are worried about not treating the abnormalities and what this might lead to. 

    Try if you can to talk to your doctor about this and how this is making you feel, and if there is any possibility of delaying treatment.

    This must be such a difficult time for you and I do hope you have good supportive friends and family around you to help you at this time.

    Please get back to us if you feel it would be useful, or if you would like to talk to a nurse on our helpline our number is 0808 800 4040, we are here Monday to Friday 9am till 5pm.

    Take care,

    Naomi

Reply
  • Hello and thanks for posting.

    I am so sorry to hear about your situation, and can't imagine what you are going through at the moment.

    You are asking for other people to comment who may have been in a similar position as you. You have posted on the ask the nurses thread so whilst people are welcome to post comments here, you may find you get responses posting on other threads too.

    You are right in saying that usually if abnormal cells are found during pregnancy they are often monitored and treated after baby is born. Very occasionally the doctors will recommend treatment if they are worried about not treating the abnormalities and what this might lead to. 

    Try if you can to talk to your doctor about this and how this is making you feel, and if there is any possibility of delaying treatment.

    This must be such a difficult time for you and I do hope you have good supportive friends and family around you to help you at this time.

    Please get back to us if you feel it would be useful, or if you would like to talk to a nurse on our helpline our number is 0808 800 4040, we are here Monday to Friday 9am till 5pm.

    Take care,

    Naomi

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