I can’t cope - dad diagnosed with cancer of the oesophagus

My dad has felt a bit under the weather and the doctors thought he had gall stones, my dad had an endoscopy on Father’s Day and found out that he didn’t have gall stones but he had cancer of the oesophagus, since then dad had an mri and they found out he has secondary cancer in the liver.

 I just wanted to know if anyone could give me some hope, I can’t bare the thought of living my life without him, operating is now not an option because it’s gone to the liver, all he can be offered is chemo.

i have never experienced pain like this and I don’t know what to do

  • Hi Hun my dad was diagnosed with oesophagus cancer on Father’s Day so over 3.5 weeks ago and he only had the MRI to determine if it had spread on Thursday last week, we had to wait until Monday this week to learn it has gone to my dad’s liver, and we only found out today that it was at stage 4 and that he will be given chemo next week, so that’s the sort of time scale we had between appointments.

    My dad also cannot eat solid food, we were buying complain milk shakes and soups for him but now have been given prescription for ensure milk shakes and juices they are high in calories and vitamins, get your dad’s doctor to prescribe them for him to help him get some calories, they are 300-330 cals per bottle.

    I’m sorry and I’m always open to a chat if you want to x

     

  • Hi Lauren , im lost for words my emotions are so low im crying like a baby daily , thank you so much for the information as im so scared and worried for my dad . I hope your dad beats this and you have all my best wishes for him and you and your family , this is the worst time in my life and i am in the deepest sympathy with you on this , please send me a private message if you want to chat further , this is so emotional its untrue

  • Hi Lauren and yes thank you , we got the shakes from his GP yesterday , thank you , and again i feel your pain totally . X

  • i have cried a million tears and my heart is truly broken, my dad won’t survive it but we have the chemo to buy us some more time, yesterday any amount of time was not enough and today some time is better than no time, it’s gut wrenching and it’s only just the start. 

     

    I hope you and your family get some answers regarding your dad’s treatment very soon. The wait is agonising it really is x

  • Well that is not strictly true, he did have some treatment. 

    Basically he was diagnosed in August last year, he chose the 5 week intense radiotherapy and chemo everyday over Christmas. He was set to have the op in Feb and at the end of January he went for a routine scan to be told it had spread to his liver, then to his lungs and stomach, even through that intense treatment. His cancer was aggressive and acted in a way they did not expect spreading. 

    Until the last few weeks he looked so well, he struggled to eat for a long time and also lost a lot of weight, but he picked me up in the car for the baby’s 36 week scan and said I’m fine, they’ve got the wrong person! 2 weeks later he went to sleep. 

    I cant pretend it’s easy, my life is shattered. We bought our wedding forward to sept which he made me promise to go ahead with and like you the thought of him not walking down the aisle is unimaginable. 

    All I will say to you all is to have hope for as much time as possible. To be given the chance of chemo is a positive that I didn’t have and I read lots of peoples stories who did have months and months with that. 

    Watching a loved one battle this vile disease is the hardest thing you will ever go through, but like I said spend that precious time. 

     

    It also shocks me to see how many people have this cancer, before my dad I had genuinely never heard of it, it makes me so angry and sad for everyone x

  • I agree with you I have never heard of it until my dad and I’ve come on here and seems I’m not the only one! 

    You are amazing everything you have overcome and your dad will be with you in spirit on your wedding day for sure.

    My dad’s cancer is also aggressive I’m praying he responds to the chemo he’s going to have it every 3 weeks I don’t think they suggested intense chemo for him. 

    I just don’t know what to think or feel, when I saw him today I felt so positive and then the night time dread sets in and I start to ache. xx

     

  • Lauren i am absolutely gutted for your dad , please someone up there please save him . Thank you my dad is in no man's land at the moment , i do blame the NHS for waiting to long to act , if my dad is terminal i will never forgive the NHS and their cancer treatment . Im so scared for him , yes the wait is horrific , i can only prey for him and your dad too . Life is so cruel to good people .x

  • You will be the same. You don’t know how you will cope, but you do, I promise. 

    He only had intesnse as he was very strong and fit and it was to shrink the tumour for surgery.

    Im literally praying your dad responds well to the treatment (I’m not even religious, but I found myself praying left right and centre and promising the world if my dad would just be ok!) 

    I found I felt better when I was with them and the moment I came away I felt awful. I don’t know if it was having to go there every day and re live it all again. I cried so so much and the anxiety of the unknown was horrible, I actually thing that was the worst part. 

    Do you have brothers and sisters? I have one sister. 

    I worried so so much about how my mum would cope x 

  • Mikkey has your dad been assigned a nurse yet? We had to chase and chase the nurse to get his appointments sorted. I prey your dad isn’t terminal Hun because then he can have the operation, my dad can’t because it’s in his liver, it’s so unfair! 

    Keep chasing those appointments Hun, call every one you can and say you are angry that no one is moving fast to help, we had to do the same xx

  • I am not religious either but I’ve Prayed to anyone that may be listening too, I am also the same I’m ok when I can see him in front of me laughing and crying sometimes because he doesn’t want to leave us he’s not ready to, but the moment I come home to my own place I feel sad and I dread night time because of the pain when I wake up again is going to be there.

    I have 3 brothers I am the youngest.

    how is your mum doing? I don’t know how I’m going to get my mum through, she says she doesn’t want to live without my dad xx