Hi gebbie welcome to the forum the club nobody wants to join, I'm afraid I've never heard of it, but I've been incurable for years now and got a lot more to go, remember you can still have treatment, to slow it down they just can't get rid completely you can still have a life, treatment is not nice but it does work some people are living twenty or more years nowadays you'll need treatment now and again best wishes. 

Billy 

Dear Billy thankyou so much for your message tbh IV little symptoms ATM just bad fatigue and night sweats so I'm lucky I'm keeping positive IV read you can live with Lgll leukemia for up to 10 years can I ask what type of cancer you have or is that too personal

Hi gebbie, that's fine, I've prostate C it's gone to the lymph nodes, ribs spine, pelvis and I lung, I'm on permanent hormone therapy and have hot flushes all the time, it helps to keep it down a bit, then when count goes up more cemo to bring it back down again,. I didn't have any symptoms, i was being sick it's a hernia but blood test showed C, i was lucky if not for hernea it would have been to late to stop it, best wishes to you

Billy 

Hi Gebbie,

Sorry to hear your news.  I have heard of it but only because I read a lot, don't know of anyone that has it.  It's a slow-growing type I think?

Like Billygoat, and many others on here, I am also incurable, so even if we can't help with your specific cancer feel free to talk to us as we will understand what it's like suddenly having a more obviously looming end to our lives.

Cancer is, even with the best family and friends, a very lonely illness, it seems it can't be anything else.  So it would be a good idea to get acquainted with your local Maggie's Centre or MacMillan Centre or whatever cancer resources are in your area.

Some people assume that do that means to make your life about the cancer, but our local MacMillan centre is the one place that when I'm there chatting away I consistently forget about the cancer for a period of time.  Sounds a little weird as cancer is the whole purpose of MacMillan, but I swear you end up talking to folk there about normal everyday things and walk out realising you haven't thought about the cancer for a couple of hours.  There's something comforting about knowing that everyone there has an idea what you're going through and that means you don't have to talk about it specifically.

I'm not in the UK, others may be able to advise better about what services are available across the UK.

What I will say for now is just take each day at a time.  Don't ask too much of yourself, don't be hard on yourself if you get down, or angry, just take it as it comes.

LJx