Hi

i know this was over a year ago now but unfortunately at the age of 36 my suspected fibroid adinoma was cancerous. I too was shocked, as the sonographer had reassured me it was very unlikely to be cancerous. They called it a mouse as it moved.  However due to family history I did eventually find out I have the BRCA 2 gene.  
 

I really hope yours was benign but if anyone else reads this it is very very rare to not be benign so please try not to panic x

Hi,

I have been following this thread, sorry to hear about your misdiagnosis. It sounds very similar to mine. 

I'm 36 and was told 3 times I had a fibroadenoma until a biopsy confirmed it was actually breast cancer. I'm now half way through chemotherapy and will be having a mastectomy afterwards as the tumor had split off any caused another smaller cancerous lump in the same breast. Which strangely when I went for that biopsied was originally told it was also probably nothing. I did have spread to my lymph nodes but nowhere else in my body and am awaiting my results from my genetic testing. 

I had a third lump that a CT scan picked up and was told again it was a fibroadenoma whwn i went for the biopsy. I didn't want to be awkward as everyone was lovely but I just didn;t want to listen to them say that again. Turns out the third lump was actually a fibroadenoma thankfully. 

Good luck to all in this thread. 

Hey, I hope your treatment is going well. Sorry to hear you are going through this and really hope treatment has worked out well for you. 
 

I just wanted to ask if when they did your ultrasound they picked up that lymph nodes were larger on one side than the other? I have just had biopsy and the lady doing scan initially said it was fine ("that's a good sign") but on looking at my other side she returned to first side and noted the lymph nodes were larger. She said the lump was quite deep so that was why she needed to biopsy in case "there was something nasty in there we could get out early". Tbh piecing  together the lymph nodes, size of lump and fact she mentioned it's depth I am starting to really worry. I mentioned the lumps x2 to GPS over the last two years and each time it was dismissed. It's only this third time that GP did full exam and decided to send me and even then she said she thought probably benign. I'm 46 btw and had a FNA before and been told by HK doctor I should have a mamo every year.

i had trouble sleeping last night and am dreading tonight aswell. Though I know rationally there is nothing to be done and no point worrying it really is impossible not to!!!

Hi,

To answer your question my lymph nodes were not scanned at ultrasound. I'm assuming that was because I was told I had a fibroadenoma so they didn't check. It was after I'd had an MRI that I was told my lymph nodes looked swollen on the side I had the cancer. I was informed that large or swollen lymph nodes could be because my breast had been prodded and poked or because I'd had a biopsy which can cause the nodes to swell. I then had another biopsy to check if there was cancer in the nodes and I found out there was. I was reassured that just because there was spread to the nodes it didn't mean the cancer had travelled elsewhere. After that I had a CT scan which showed no further spread. I'll have surgery early October and it's then that they can tell me the extent of how many lymph nodes are involved. 
 

As you say it can be very difficult not to worry and it sounds like it's been very stressful for you. I hope you don't have too long to wait until you can get some answers. Trying to find ways to distract yourself as hard as it can be can sometimes be helpful. I'd always try to think no matter how much I worry it won't change the results. It's good that things are been investigated now in the event anything needs to be done. 
 

Hope all goes well for you.

Hi,

Thanks for your message which really helped me. 
 

Unfortunately they have found cancer but it's early stage dcis high grade. Again, slightly shocking since all the Doctors and even surgeon told me they thought it was benign. 
 

Am really glad to know and have found out but obviously nervous now in case there will be other sites shown on MRI or post/surgery, but I know I'm super lucky that stats for this type are great. I asked surgeon about the lymph nodes and he said ultrasound last recorded them as "reactive" rather than swollen. He said only likely to biopsy them if something showed up on MRI. 
 

They are currently thinking lumpectomy in October followed by radiotherapy, though I told them I would be happy to get mastectomy if that reduced risk of recurrence but surgeon and nurse said that wasn't necessary in this case so am really praying the lump size won't be too big. They said they aren't b doing genetic testing or hormone testing at this point as it's non-invasive. 
 

i hope everything is going well for you and thanks for replying before xxx

Hi,

Sorry to hear it was cancer, it is always a shock. Glad to hear it is early stage and it sounds like there is a plan for you that is going to be implemented quite soon. Good luck with the MRI and hopefully lymph nodes are OK for you. 

I'm also having surgery in October then i'll know what's next, I'll be having a single mastectomy. I did have genetic testing but it showed no abnormalities which is good news. 

Hope all goes well x

Hi,

Sorry to hear it was cancer, it is always a shock. Glad to hear it is early stage and it sounds like there is a plan for you that is going to be implemented quite soon. Good luck with the MRI and hopefully lymph nodes are OK for you. 

I'm also having surgery in October then i'll know what's next, I'll be having a single mastectomy. I did have genetic testing but it showed no abnormalities which is good news. 

Hope all goes well x