Stage 1b Cervical Cancer

Three weeks ago I was giving the horrifying result of my Biopsy taken due to severe results of my recent smear.

 

My emotions have been all over the place.  I keep having the conversation in my head when I first found out the news.   I can't sleep at night it's on my mind all the time . 

I have a wonderful family.  My husband has been so supportive bless him . We also have two young children so we do have to carry on with life as normal as we wouldnt want them to know.  

My MRI is tomorrow and I am really anxious about it as I am so clostrophobix.  I have Diazapan off my doctor should I need it . We have been told to arrive an hour early then I will be able to find out if I can go into the Scanner feet first or not. If not it gives me time to take my Diazapan.

One thing that is really worrying me though however.  Despite me having regular smears (despite me not having my first smear until I was 30 - I know that was really bad.  I am now 44 and I have had lots of smears since then.  The first one though when I was 30 was aborbmal but no action was needed and I was retested a bit later on . I cant remember when that was though however.  

So despite having regular smears how have I been diagnosed with Stage 1b cervical cancer.  How has it not been spotted in other smears as Abornmal Cells and all the different stages the abormal cells go through.

I am so confused.

 

Worried Mummy

 

x x x

  • You’re very welcome.

    I had my all clear three weeks ago but still on regular check ups. I’m fine, back to normal, I had two major ops within twelve weeks of one another followed by three sessions of internal radiotherapy which finished in October. It took a while to fully recover but everything ok now. I’ve also been type 1 diabetic for 57 years so that took a while to get back on an even keel. 

    I hope all goes smoothly for you. One thing I’ve learned over the last year is that everything is doable and determination and positivity go a long way towards getting back to normal,

    Sundial

  • That is awesome news! Get that cancer out it you :) remember: one day at the time and sooner than you know you'll be looking back at all of this as one of those key moments in your life that made you stronger.

    Massive hug sister. You'll be fine now :)

     

    Xx Maria 

  • Hi this is my first post. I have been having abnormal smears for 3 years under the colposcopy clinic. At first they was low grade changes and so they left me a year until next smear which was this feb. The results came back as CIN2. I was invited to have a Lletz loop. After a few weeks the results of that was CIN2 and high grade CGIN. I got invited back for another Lletz loop as not all been removed in one of the margins. I usually have the same consultant but this time the head of department performed it. I am currently waiting the results of the Lletz. It was explained to me that the changes had not been coming from the cervix as they thought but by glands that had been dripping down bad cells. I asked what will they do when these results come back, remove the glands and was told no it's glandular cancer and rare and it is hard to detect. A full hysterectomy as they do not mess about with this cancer. I am very nervous and anxious. I can't get anything else out of my head. I feel like I'm going mad. I have had my family and am age 38 so the hysterectomy part is fine. I am more concerned if it has spread with them not finding it due to being higher up than the cervix. 

  • Oh bless your heart!

    Of course you are worried. Totally normal! Now take a deep breath and try think like this: they are on it. They found it. Now they just need to figure out exactly what stage that is and then they will do something about it. I know it is so very easy to say and oh so hard to do when you are there right in the middle, mind racing with every single possible and impossible outcome but

    Deep breath.

    One day at the time

    One appointment at the time.

    Try your best to find the silver linings (believe me there are some you just have to find them)

    If you have any questions with regards to hysterectomy please shout and I'll do my best to explain how it was for me. You can do this Hun. I bet you are a thousand times stronger than you think :)

     

    Massive hugs <3

    X Maria

  • Yes It takes 2 weeks for results to come back from lab, then they will have a MDT meeting. (Think it called that) and I will be called back in. I have been eating lots of vegetables. I am just in shock I suppose. I never even knew there was 2 types of cervical cancer either. I am glad they have found it tho. Just praying It be ok. I think once I have a complete diagnosis I will feel a bit more in control with my feelings. The waiting is horrendous . Thanks for replying. I will post when I know more. x

  • Hi ive just been diagnosed with 1a1 and I'm going out if my mind with worry over been forced into having an hysterectomy, do they give you other options? It might sound strange it isn't the cancer worrying me it's the thought of losing my chance to ever be a mum again. 

  • Hi try not to panic too much. I had stage 1a1 and was told that a hysterectomy was an over treatment I had it done as I was 41 and had completed my family. Has all the cancer been removed during the biopsy? If it has and you results were stage 1a1 with clear margins you will be given a smear test every year for the next 10 years.  If you need to ask me any more questions please feel free too x

  • Thank you for replying I'm not sure yet if it was all removed, I was told over the phone it was 1a1 with clear margins but am having an MRI on Wednesday x

  • If you have clear margins it's gone. The mri is just boots and braces and hospital policy. You will find you will need to further treatment and will be followed up with yearly smears x

  • I really hope so I don't know, if I'm imagining it but I keep getting a niggling feeling in my lower pelvis, it could be something to do with the cone biopsy though x