Stage 1b Cervical Cancer

Three weeks ago I was giving the horrifying result of my Biopsy taken due to severe results of my recent smear.

 

My emotions have been all over the place.  I keep having the conversation in my head when I first found out the news.   I can't sleep at night it's on my mind all the time . 

I have a wonderful family.  My husband has been so supportive bless him . We also have two young children so we do have to carry on with life as normal as we wouldnt want them to know.  

My MRI is tomorrow and I am really anxious about it as I am so clostrophobix.  I have Diazapan off my doctor should I need it . We have been told to arrive an hour early then I will be able to find out if I can go into the Scanner feet first or not. If not it gives me time to take my Diazapan.

One thing that is really worrying me though however.  Despite me having regular smears (despite me not having my first smear until I was 30 - I know that was really bad.  I am now 44 and I have had lots of smears since then.  The first one though when I was 30 was aborbmal but no action was needed and I was retested a bit later on . I cant remember when that was though however.  

So despite having regular smears how have I been diagnosed with Stage 1b cervical cancer.  How has it not been spotted in other smears as Abornmal Cells and all the different stages the abormal cells go through.

I am so confused.

 

Worried Mummy

 

x x x

  • Anything I can do to help just send me a private message :)

    Cancer is such a lonely place even with friends and family supporting you. Isn't just amazing how many weird thoughts you can have seemingly at the same time in less than a minute? And how can anyone understand all those thoughts unless they have been there right?

    I'm here for you if you have any questions, dear 1b1 sister :D oh and get that kitchen finished asap, no lifting for 3 months after radical hysterectomy ;)

    Oh and I just realized I forgot to answer one of your questions. The surgeon told me about the study as I was originally  planned for keyhole surgery. I was 100% in control of what surgery to choose but it was a simple choise for me. Open up, get it out, leave me with a scar but peace of mind :)

    Xx Maria

  • Aw hello my 1b1 Sister aw bless you how lovely are you Maria! 

    You do gt a a lot of weird thoughts, endless, and a minute seems so long too.    Absolutely nobody would never know that fear, scared, postive, happiness, crying thoughts that you have in your head all in one go.   Your walking through a supermarket, driving, your head is thinking thinking and thinking.  

    Kitchen is almost finished, putting off the decorators and the plasteror for now, who knows when this operation is going to be.   I just want an empty and quiet house especially when the children at school.   When the children are home we have to act completely normal and act as happy as we can.   

    It will be a simple choice for me too, open up, get it out and leave me with a scar and absolute peace of mind.   I dont like the sound of keyhole surgery anyway to be honest, especially with the chance of it coming back oh my goodness.  Just knock me out and get on with it.   I have never been put out in all my life lol, and when I had my Biopsy taken, prior to that day I had never had a local anesthetic.. 

    Yes I will personal message you loads my 1b1 sister bless you.   You wont beleive how much you have helped me and reassured me.     I wasnt going to go to work today but I read your message and I instantly felt better. 

    Take care my lovely 1b1 sister. 

    Rachel 

    x x x x 

  • Many thanks for your messsage and I am sorry to hear of your news also.   

    I got graded from my Biopsy.   Does that mean I will get staged again from the MRI results do you know? 

    Wow thats quickness for you, no time for thinking about it.    Yes it is an early stage.  And all I can say is thank goodness for smears because without these you wouldnt have an absolute clue what was going on in the inside until it was too late. 

    Keep in touch and let me know how you get on. 

    Thinking of you, and if you have any questions feel free to ask me on here or send me a personal message.

    Rachel 

    x x x x

  • Hiya Maria just to let you know I had my appointment today with my results and we are both very positive now.

    The cancer is 3cm and is stage 1b1.

    Operation booked for the 20th May with a pre op next Thursday.

    A Radical Hysterectomy to include the lympnodes and ovaries . Only a 5% chance I will need radiotherapy once they have looked at the Lympnodes.  

    How did you feel about the operation in general was you nervous?  I have never had a general anaesthetic before what is it like .  Sorry for all the questions . 

    And I didn't want Keyhole surgery and the scarring doesn't bother me one thing.

    Hope you are feeling well my beautiful friend and how are you getting on?

    Rachel 

     

    x x x

  • Awesome news Rachel!

     

    I actually just now got my all clear from the doctor. Totally cancer free :)

    I was strangely calm before my op. Kept thinking" one thing at the time". You will have pre op meeting with a nurse to make sure you are healthy then you will see the sleepy doctor as I called her. If you have any questions write them down so you don't forget.

    On the day you show up, they will ask you your name 200 times and if you have diabetes 200 times lol. Fit you with amazing stockings and then you will wait your turn. I walked into the preproom for the theater and they were amazing. When they inject you with the drug you might feel a bit dizzy and then you will wake up in what seems seconds later. You might be a bit confused and they will insist that you eat ice lollies :)

    First few days will be a bit difficult.. You might feel emotional. You will be so very tired. Sleep when you need and have a cry if you need. Drink as much water as you can.

    And what ever you do, don't be afraid to press that bell to get help even if it makes you feel like a diva :)

     

    Xx Maria

  • Aw Maria massive congratulations to you wow cancer free how amazing!!!!!!

    Yes I got my pre op for next Thursday.

    You were brave very brave infact walking into the preproom that's all official then it's definitely happening.

    Feeling dizzy sounds ok and then waking up what feels like minutes later sounds brilliant . I just can't imagine being out out lol do you dream in this time I wonder. Sorry for all the questions lol.

    I'm weepy now did you feel like it then too?  It's my birthday today too I've hardly noticed been low today . Strange because yesterday I was fine.

    Looking forward to the ice lollies lol!!!

    Yes the first few days sound tough.  Pain as well what's that like? I can imagine your hormones giving you hell mind especially with everything taken away.  How quickly do they start HRT?

    You must be on top of the world now my lovely lovely friend so happy for you.

    Lots of Love and Hugs

    Rachel

     

    x x x

  • Pain is so individual. For me I was just numb everywhere. Struggled a bit to get out of bed at first but do try. The sooner you sit up or even walk a tiny bit the better it is :) on day three I was on paracetamol and ibuprofen only!

    I don't actually think you do dream as you are knocked out lol but my friend was having amazing dreams and visions when she woke up and was trying to catch the fairy lights :D

     

    I still have not started with hrt as my surgeon said they increased the risk of blood clots. My nurse however told me he is full of crap so not sure lol they put me on patches.

     

    Happy birthday sister :)

    Enjoy every day and try not to worry too much. They know what they are doing :) massive hugs XX Maria

  • Hiya Maria.  Just checking on my lovely friend . How you getting on bless you thinking of you getting stronger and stronger every day.

    I had a call off the hospital on Friday and they want to bring the operation forward now so going in a week today . I was afraid to ask why I'm guessing they have a cancellation spot . 

    Thanks for all your help and advice you have helped me through all this so much.

    Hope your enjoying your bank holiday weekend.

    Lots of Love

    Rachel

    x x x

  • I hope everything goes well with your op. Just a quick note to say my op last year was brought forward because they’d had a cancellation. It is quite common apparently, I was told. I was actually at my pre-op when the cancellation came through so was asked there and then.

    Sundial

  • That makes me feel better and thank you!

    How are you feeling now a year on bless you. 

    Rachel

     

    x