Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • Hi [@WarriorWilko]‍ welcome to the thread but so sorry you find yourself here . This group of ladies have been a fantastic support to me and will be to you also . 

    I’m 45 was diagnosed in March IDC her2 + , Ed &pr+ , and it’s in my lymph nodes . Had chemo and have had mastectomy and auxiliary clearance last Thursday. It’s a tough long road but you will get there . We have all been there when you feel every little ache and pain and you imagine the worst . I’m sending you positive vibes and support. 

    Hope all goes well for you with your results . 

    Take care 

    j xx

  • Hello BigJean

    It’s good to hear from you - thank you for replying. It’s so good to know we’re not on our own on this journey, although I wish none of us were on it in the first place. I really hope you get your drain out today or tomorrow and that you can catch up on some sleep. You sound very positive though and I know that will really help, both physically and mentally in our recoveries. I’m trying to get there and today has been fractionally easier than yesterday. 

    Sending you too my best wishes

    Helen xx

  • Helen

     

    Just checking in to see how you are? It can be tough sometimes with everything that's going on, it feels like you go from one appointment to the next with no time to think about the enormity of what's going on.

    anyway - always here if you need a chat.

    WL

  • Morning Woollylamb

    Unfortunately my operation was cancelled last Friday due to my blood test results.  Currently being treated for that and have more results tomorrow to see if operation can go ahead yet or if we need to wait a bit longer.  Will let you know.

    How you doing?  Is the recovery from skin graft progressing well? xx

  •  

    Hi Rosie,

    You must have been very disappointed to have your operation cancelled last week because of your bloods. I sincerely hope that tomorrow's results will be better and that you can go ahead with surgery.

    Fingers crossed.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

     

    Thank you, I was gutted but understand they have to ensure everything is right before they go ahead.  Roll on tomorrow..............

     

    You know what the one positive of all this, I have lovely long nails, something I've always dreamt of so hoping I now keep them to Christmas!!!!

     

    Will let you know how tomorrow goes!! xx

     

  • Hi

    yes all going well, reviewed today and the graft has taken, . Also got my appointment for the radiotherapy oncologist next week. So we are motoring on.

     

    Sorry to hear it was cancelled but it all needs to be right before it can go ahead. Fingers crossed  it all can go ahead. I have lovely nails for the first time ever as well which is a bonus. 
     

    Thinking of you for tomorrow. 
    WL

  • Hi Woollylamb and [@Jolamine]‍ 

    Well all is good, the treatment has worked, blood results were good and I've been told I can now go ahead and have my mastectomy!!!

    Now just to wait for the phonecall telling me when to go in, hopefully it won't be long but in the meantime there's always something to do so will be ticking things off my list.

    Wishing you both a fabulous weekend.  Mine is going to start at 6pm with a glass of white!

    Rosie x

  •  

    Hi Rosie,

    This is great news. I hope that you enjoyed that glass of wine to celebrate.

    Don't forget to let us know when your appointment comes through. It doesn't usually take long  at this stage.

    Kind regards,

    Jolamine xx

  • Thanks Jolamine

    I hope I know soon, I can cope with any wait when I know the date, it's not knowing as we all know that is difficult!

    Glass of wine was amazing so will have another tonight!!

    Have a great weekend.

    Rosie x

  • [[ ]]Hi everyone

    Just wondering how everyone is getting on? 

    How are your Christmas preparations going? We've put all our decorations up with the exception of the tree this weekend, and bubbles the elf arrived last night. Only need to come up with 23 more ideas for it!!!! 
     

    Wl

     

  • Hi Woollylamb

     

    Great to see your post!!!  How are you doing and how are you feeling?  You are amazing getting all your decorating done, when will you do your tree?

     

    I have my mastectomy on Wednesday 4th so not long to wait now..........  Not sure about our decorations and trees, will get this week out the way and see how things are then.......

     

    You take care but update me!! Rosie 

Reply
  • Hi Woollylamb

     

    Great to see your post!!!  How are you doing and how are you feeling?  You are amazing getting all your decorating done, when will you do your tree?

     

    I have my mastectomy on Wednesday 4th so not long to wait now..........  Not sure about our decorations and trees, will get this week out the way and see how things are then.......

     

    You take care but update me!! Rosie 

Children
  • Hi

    We need to go and choose the tree and the weekend, then we will decorate it listening to Christmas songs and drinking hot chocolate. 
     

    I am doing ok, skin graft is doing its thing which is good, saw the radiotherapy oncologist last week, we agreed I could have December off from treatment as I'd been through a lot, so will start that in January. Started tamoxifen, and they also want to have zoladex and bisphosphonates at some point. And back to the hospital tomorrow for the results of the nipple removal I had when they did the skin graft. So all going ok at the minute.

    Pleased you have the date for your mastectomy,    you will feel better when it's done, and you can recover over Xmas. I'll be thinking of you on Wednesday. 
     

    x

  •  

    Hi Woolylamb,

    Wow, you are doing well to be putting up Christmas decorations! I'm glad to hear that you've had no problem with your wounds this time and, that all is healing well.

    How are you coping with Tamoxifen? I am sure that you'll be feeling pretty nervous about your results tomorrow, but I hope that they go well.

    Will be thinking of you.

    Kind regards,

    Jolamine xx

  •  

    Hi Rosie,

    Well, not long to wait until Wednesday. I sincerely hope that it all goes well.

    I shall be thinking of you.

    Kind regards,

    Jolamine xx

  • Hi Rosie

     

    Just a quick note to say I'll be thinking of you tomorrow, I hope it all goes well. Remember to take it easy in your recovery. 
     

    X

  •  

    Hi Rosie,

    I have just finished a post to you and it has dsappeared into the ether - I don't know how I manage to do this so frequently!

    I just want to wish you all the very best for tomorrow and to say that I am hoping and praying that you have no further complications this time.

    Kind regards,

    Jolamine xx

  • Hi [@Woollylamb]‍ [@Jolamine]‍ [@BigJean]‍ 

    how are you lovely ladies? Hope you are ok x just letting you know I finished my treatment today - last radiotherapy session. Just tablets for next five years which I’ve already started. Wooolylv I think you said you started them? How are you getting on with them? Not sure if it’s them that is increasing my hot flushes under my arm is quite sore from rAdio and my arm is tight like it was after lymph nodes removal but they have said to do exercises and it should be ok. Also tip of arm is swelling but got to keep an eye on that and phone breast nurses if it continues or gets worse but you know what I can deal with all these little niggles x what I’ve got to do is get my head in the right place to look forward and not fear the future. Please all have a lovely Christmas and let me know how you are doing. Without you lot on here especially jolamine and her knowledge I would have sent myself crazy. You ladies have listened to my fears etc and for that I’m eternally grateful xx 

  •  

    Hi Mejules,

    Finished your radiotherapy just in time for Christmas? - Fantastic! What tablets are you taking? It is possible that they are causing the hot flushes, but if these are bad , there is other medication that can be prescribed. It's just a case of having a chat with your breast care nurse.

    Sorry to hear about the pain, stiffness and swelling in your arm. Make sure that you keep doing the exercises regularly, as this should settle.

    You are soon starting a new year, a good time to put this ghastly experience behind you and, to move forward with positivity.

    I am doing well thank you, although still waiting for my brain scan. I was told that it would be 5-6 weeks, but so far it has been 10 - I just want it over with, so will phone the hospital on Monday.

    Are you all prepared for Christmas? I hope that you have a Wonderful Christmas and a Healthy and Happy New Year.

    Kind regards,
    Jolamine xx

  • [[ ]]Hey [@BigJean]‍ , [@mejules]‍ [@Jolamine]‍ 

    Happy New Year. Hope you all had a lovely Christmas and here's to a healthy 2020.  How are you all doing? I switched off from eveything over December and didn't have any appointments and it did me the world of good. 

    I start radiotherapy next Friday for 3 weeks, started tamoxifen which I am coping with and have agreed to zoladex and bisphosphonates which I'm a bit anxious about but will see how I go. 
     

    Other than that I've been trying to improve my wAtercolour painting. 
     

    wl

  •  

    Hi Wollylamb, @BigJean , @mejules ‍

    A Very Healthy and Happy New Year to all of you too.

    I am glad to hear that you managed to switch off for Christmas Wollylamb.  I'm sure that this did you a world of good. I hope that you other ladies managed to do the same. It is good news that you are coping well with Tamoxifen so far - I hope that this continues and that all goes well with your radiotherapy next week.

    Keep up the painting and enjoy!

    Kind regards,

    Jolamine xx

  • Hi ladies

     

    just wondering how you are all getting along? I have finished all of my treatment and had a ct scan a couple of weeks ago and was given the all clear!!!!! It's been a tough year but got there in the end, I'm still recovering but hoping to start back at work in a couple of weeks....from home. 
     

    let me know how you all are. 
     

    wl