Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • Hi [@WarriorWilko]‍ welcome to the thread but so sorry you find yourself here . This group of ladies have been a fantastic support to me and will be to you also . 

    I’m 45 was diagnosed in March IDC her2 + , Ed &pr+ , and it’s in my lymph nodes . Had chemo and have had mastectomy and auxiliary clearance last Thursday. It’s a tough long road but you will get there . We have all been there when you feel every little ache and pain and you imagine the worst . I’m sending you positive vibes and support. 

    Hope all goes well for you with your results . 

    Take care 

    j xx

  • Hello BigJean

    It’s good to hear from you - thank you for replying. It’s so good to know we’re not on our own on this journey, although I wish none of us were on it in the first place. I really hope you get your drain out today or tomorrow and that you can catch up on some sleep. You sound very positive though and I know that will really help, both physically and mentally in our recoveries. I’m trying to get there and today has been fractionally easier than yesterday. 

    Sending you too my best wishes

    Helen xx

  • Hey WL , 

    omg you seem to be having a really hard time lately . Sorry to hear you are still not 100% . Hopefully things will improve for you over the next couple of days . It must feel like you are taking one step forward then 2 back ! The antibiotics should do their job and you will get back to “normal “ . 

    I got the drain out yesterday, much more freedom now and delighted it’s out . Still not sleeping great as I’m still afraid to lie on that side !!! Trying to do the exercises but at still quite sore . 

    Im back on Wednesday for results too , Vety best of luck with yours . 

    Sending you hugs and lots of love and positive thoughts. 

    Take care 

    j xxxxx

  •  

    Hi Woolylamb,

    I'm sorry to hear that you are back on antibiotics and, am praying hard to the wound goddess to keep you out of hospital.

    I'm glad to hear that you now ha date for your results.

    Fingers crossed that it's good news.

    Kind regards,

    Jolamine xx

  •  

    Hi BigJean,

    I’m delighted to hear that you have now had your drain taken out and, that you are feeling a lot freer now. The soreness should soon settle down. There is nothing to worry about by lying on the affected side. I didn’t have any choice with a double mastectomy and, slept on my side from the day of my operation.

    I am glad that you don’t have long to wait for your results.

    I shall be hoping and praying that you get good news on Wednesday.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, 

    Thank you so much for your kind words. You are right I’m sleeping on my right side now ! Not getting very much sleep, I think it’s worrying over what they will say to me on Wednesday.

    im just praying that it’s good news. I’ll let you know how I get on . 

    @ Woollylamb hope all went well with you . Let us know how you get on too . 

    Hope everyone doing ok 

    take care 

    j xx

  • Hey

    my results are a week today. I may have to go back in for another op as some of my wound hasn't healed properly, will find out on Thursday. . So I'm a bit gutted about that , but I've got to think about the long term. Other than that I am good, sleeping much better, up and about more. 
     

    I'll be thinking of you on Wednesday. X

  •  

    Hi BigJean,

    I'm glad to hear that you are now able to sleep on your right, although sorry to hear that you are still not getting much sleep. To be honest, I didn't either until I got the pathology results.

    I'm hoping and praying that it will be good news for you on Wednesday.

    Kind regards,

    Jolamine xx

  •  

    Hi Woollylamb,

    I hope that you don't have to go in for another operation. I can fully understand why you feel so gutted about this. You've not been all that lucky with your operations, have you?

    Here's hoping that things will look better by Thursday and that you won't have to have another procedure.

    I'll be thinking of you on Thursday and keeping my fingers crossed.

    Jolamine xx

  • I’ll be thinking of you both, Woollylamb & BigJean, & praying that you both have good results tomorrow & Monday. Jolamine, thank you for your continued positivity & support, & Lorraine, I hope you’re having a relaxing time with your sister & mum. Thoughts and prayers are with you all. Xx

  •  

    Hi Helen,

    Your lymph node operation should be coming up soon. Do you have a firm date yet?

    Kind regards,

    Jolamine xx

  •  

    HI BigJean,

    I just want to let you know that I shall be thinking of you tomorrow and hope that it all goes well.

    Fingers crossed.

    Kind regards,

    Jolamine xx

Reply Children
  • Hi Jolamine, 

    thank you so much that really means so much . 

    Thank you for all your kindness and support. 

    I’ll let you know how I get on. 

    Take care 

    j xxx

     

     

  •  

    Hi ladies , 

    [@Jolamine]‍ [@Woollylamb]‍ [@mejules]‍ [@WarriorWilko]‍ 

    just wanted to let you all know I had a complete response to treatment. Cancer is gone . I broke down crying when she told me. Such a huge relief. They still want me to do radiation . I’m so so happy. Thank you all to you amazing ladies I couldn’t have got through this without you all . 

    Hope everyone is doing ok and I pray that you all get as good news as I did . 

    Take care 

    j xxx

  • Hi [@BigJean]‍ 

     

    That is the most amazing news, I got emotional just reading it. I am so so pleased for you. I hope you are going to celebrate somehow.

     

    I'm going back into theatre this morning for them to tidy up my breast wound as a bit of it hasn't healed the way they want it to. Nothing major but they want to get it right. I'm hoping I'll be out to go to my results appointment on Monday as I'm quite anxious about it and want to get it out of the way.

    You've made my day with your news.

    wl

  • Hi WL,

    thank you so much . I’m praying and sending positive thoughts to you while you are having surgery this morning. This will be you next week saying the same thing I just know it . It’s been a long road but we will all get there , 

    let me know how your operation goes . 

    Take care 

    j xx

     

     

  • Hi BigJean

    What fantastic news you have received and I have a feeling you must be walking on "Cloud Nine" today.  My goodness you are really going to be celebrating now after all you have gone through....

    I have been reading your posts and you truly are inspirational and to read your message today is just wonderful.

    Looking forward to hearing when the other ladies, myself included, feel as good as you do today.

    Rosie

     

  • Hi

    Op went well, consultant is pleased I've got a special wound vacuum on, but will need a skin graft next week, so I have to stay in hospital until that's done which I'm frustrated about, but what's one week out of the rest of my life.  
    I'm going to call my breast nurse about my Monday appointment as I'm in a different  hospital so can't get there, holding they will give me them over the phone instead. 
     

    I am still proper chuffed for you. I was thinking about you when I went all woozy for my op. 
     

    wl

  • Hi WL , 

    so thrilled your operation went well . It’s all over now so just concentrate on getting better . 

    You never know you might get out quicker than you think but if you don’t it’s not a big deal as you said what’s a week out of the rest of your life . 

    Im really hoping they give you your results over the phone . 

    You are so good I’ve found we have been a very good support to each other while we are going through this journey. 

    Sending you a huge hug . 

    Sleep well and take care 

    j xxxx

  • Hi Rosie , 

    thank you so much for your lovely words . 

    I still can’t believe it . It has been a very tough 8 months but with the help and support, especially emotional support I’ve gotten here has been amazing. 

    There is some amazing and courageous women here . 

    Im hoping that all goes well for you and sending you positive thoughts . 

    Take care 

    j xx

  • [@BigJean]‍ I have cried many tears over this journey but I have bawled like a baby after reading this. This is fantastic news and I am delighted for you. Sending you massive virtual hugs xx 

  • [@Woollylamb]‍ hi so glad your op went well although being in hospital awaiting your skin graft isn’t the best it be worth it on the end. Fingers crossed you can still get your results Monday will be thinking of you on Monday x take care and try and recover from op well x