Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

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  • I’m sorry to hear you’re going through this, I am 27 found a lump last week and have been referred to breast clinic on Thursday. I am petrified and I still have a chance of being lucky. I have found myself analysing every inch of my body to the point that I’m convinced I’ve just found a dodgy mole above my hip in the same side as the breast with lump, so now my head is being all stupid. 

    I hope you’re appointment went well today and it was some positive news. Thoughts with you xxx

     

  •  

    Hi Kmj,

    Welcome to the forum.

    I am sorry to hear about your lump, but glad to hear that you have been referred to the breast clinic and, that you are due there on Thursday.

    Don’t forget to let your GP look at your mole, as this will need to be referred to a dermatologist if anything suspicious is noticed. It can take longer to get an appointment with a dermatologist, so the sooner you see your GP, the sooner you’ll be seen by one.

    I do hope that all goes well on Thursday, but please don’t expect to get a definite diagnosis straight away. You will possibly have tests done to see if your lump is malignant or benign. The results of these tests then take 1-2 weeks to come back to the clinic, so you are likely to have an anxious wait for that time.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • hi

    Quick update. I was discharged on Wednesday , they’re not sure what caused my temp to rise, nothing came back on the tests. Think the back pain is just the side effects of chemo so I’ve got some stronger painkillers for the next round and was sent home with antibiotics.

    So just taking it easy for the next week until round 5, hopefully it will be bette than round 4.

     

    hope all is ok with everyone.

    x

     

  • I am so pleased you got tested out your mind at rest I know chemo takes a lot out of you as it kills bad cells but also your good cells just rest eat healthy black grapes is especially  good for stopping cells spreading I am always looking 5hings up in google having cancer in my breast a second time think after my heart assessment b3 in for operation in 2 weeks *** myself hate getting put to sleep you got antibiotics as well for your temperature glad  hope next round slot easier take care x

  •  

    Hi Woolylamb,

    Thanks for your update. I'm glad to hear that you are back home again. I am glad to hear that the tests you had showed up nothing untoward with your back. It's not good news that this seems to be the result of chemo, but it's the better of the two options.

    I'm glad to hear that you've got stronger pain killers for round 5. It sounds as if the antibiotics are just precautionary. I can understand why you're dreading  your next session, but hope that it all goes better than your last.

    Kind regards,

    Jolamine xx

     

  • hi everyone, hope all is well.  

    Well 5 down and 1 to go. In 3 weeks time I will have finished chemo....yippee.

    oncologist couldn’t find my lump today so I’ve been referred for an MRI to check the size and whereabouts of it.  So I’m taking that as a positive, even though I hate MRI’s. 

     

    Not looking forward to the side effects over the next week or so bit just need to get on with it.  Starting to think about doing something to mark the end of the chemo before I have my op. Maybe a hot air balloon ride as a family, it’s on my bucket list of things to do and the weather might be good enough for one in September.

    speak soon

    WL

  •  

    Hi Wollylamb,

    I'm glad to hear that you've got no 5 behind you and hopefully, without any nasty side-effects this time. How fantastic that your oncologist couldn't find your lump today, so here's hoping that your MRI doesn't find it either. I don't like MRI's myself but it'll be worth having one if it confirms your oncologist's findings.

    A hot air balloon ride as a family sounds like a fantastic way of celebrating the end of your chemo, or would be if we can ever get this rain to stop.

    Kind regards,

    Jolamine xx

     

  • That’s great takes the stress of you I’m getting my tumour removed on 3rd September 2 biopsy thank god right breast was just scarring from operation 9 years ago I had breast cancer then now. I have it in the left the mammogram section said one swollen lymph node but I got ultra scan 2 weeks ago no cancer under arm thank god still *** myself hate getting knocked out  I have had this tumour since 1 st week in June was pea size when I found it surgeon felt it 2 weeks ago just over the inch he said 3/4 weeks  be glad although I will ask to get more sedated this time I wish you well a hot air balloon lol no use for me terrified at heights but I like your spirit I’m glad like myself keeping positive good luck my friend hope you get best results you can get good luck x

  • So a few ups and downs since my last message.  The downs....I ended up being admitted again after my 5th cycle due to a temp spike again, and it was over the gorgeous bank holiday weekend! I have a feeling that this will happen again for my 6th cycle next week.

    Had my MRI, I cried as they asked me to take my wig off which I wasn’t prepared for, sounds ridiculous but I had worked myself up so much that it just came out.

    Not had the results of the MRI yesterday but met my surgeon today, he did and ultrasound and couldn’t find the tumour, and said I had responded brilliantly to the chemo, so much so that if the MRI confirms this then I have a choice between a lumpectomy or a mastectomy, and I can have immediate reconstruction which was never an option before.  This was just the boost I needed before I head into next week.

    Hope everyone is ok, would be good to hear how you are getting on.

    WL

  •  

    Hi Woolylamb,

    I am so sorry to hear that session 5 caused you to end up back in hospital. What a pity that you didn't even get out for that lovely weather. Here's hoping that session 6 is less dramatic.

     Have you got your MRI results yet and what have they shown? It will be really great if it coincides with the findings of your ultrasound.

    To be able to choose between a lumpectomy and a mastectomy is more than you expected, so it must be even better to hear that you can have your reconstruction done at the same time, if you need one. Of course, if you have a lumpectomy, you may not even need reconstruction.

    I am keeping my fingers crossed for you that your MRI results concur with your ultrasound ones.

    I am on holiday at present with limited wi-fi access, but am thinking of you and hoping for more good news.

    Kind regards,

    Jolamine xx

     

  • Hi woollylamb big jean jolamine and all 

    sorry not posted for a while . Have struggled with chemo on the low days. Didn’t want to drag anyone down with me especially if you are on good days x had my fourth chemo yday. They thought I had a clot in my arm as I’m getting a random skin rash where I thought I’d been bitten a few weeks ago but it keeps coming back and spreading up the arm. They weren’t concerned about rash but just by my join on the elbow I was quite tender so they wanted me checked out. So after having. Blood test which came back positive then luckily the sister at the ward pulled some strings to get me fast tracked for a scan on the arm I was given the all clear. Had been in for chemo at 930 got it started at 230 but it’s done and that’s the main thing. Slept and today it’s just the normAl sicky and tired feeling x I can’t believe how sick I feel but still have an appetite . I have put on so much weight I dread to think what I will end up being. I’m worried re money as my wage wil half this month how I pay the bills, two children birthdays coming up and the other dreaded x word Christmas! X counting the days til the good days return on this cycle then they change the chemo and then it’s every two weeks not thre. Dreading it as I guess just as I’m feeling ok I’m back in for next cycle but I’m looking at it that it will be over quicker x hope you are all sending my love to each and every one of you amazing inspirational women/men xx 

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    Hi Mejules,

    I am sorry to hear that you have been having such a hard time with chemo. Have you mentioned how sick you feel to your care team?  There are a number of different medicaments that can be prescribed for this. If one doesn't work for you, it's always a good idea to try another.

    Finance can be a big consideration for many cancer patients. There are some benefits available, and not all of them are means tested. Most hospitals have a Macmillan advice centre within them. They can help you to decide what to apply for. If they don't have a presence in the hospital, you can phone them and arrange to meet up.

    I also found the.local Citizen's Advice Bureau very helpful. I do hope that you get some help from one of these sources, as you could certainly do without money worries on top of all that you're going through.

    I am glad to hear that your arm scan didn't show up anything untoward. Here's hoping that all this chemo will be worth it in the long run.

    Thinking of you and hope that you get some of the better days back soon.

    Kind regards, 

    Jolamine xx

Reply
  •  

    Hi Mejules,

    I am sorry to hear that you have been having such a hard time with chemo. Have you mentioned how sick you feel to your care team?  There are a number of different medicaments that can be prescribed for this. If one doesn't work for you, it's always a good idea to try another.

    Finance can be a big consideration for many cancer patients. There are some benefits available, and not all of them are means tested. Most hospitals have a Macmillan advice centre within them. They can help you to decide what to apply for. If they don't have a presence in the hospital, you can phone them and arrange to meet up.

    I also found the.local Citizen's Advice Bureau very helpful. I do hope that you get some help from one of these sources, as you could certainly do without money worries on top of all that you're going through.

    I am glad to hear that your arm scan didn't show up anything untoward. Here's hoping that all this chemo will be worth it in the long run.

    Thinking of you and hope that you get some of the better days back soon.

    Kind regards, 

    Jolamine xx

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