Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • I’m sorry to hear you’re going through this, I am 27 found a lump last week and have been referred to breast clinic on Thursday. I am petrified and I still have a chance of being lucky. I have found myself analysing every inch of my body to the point that I’m convinced I’ve just found a dodgy mole above my hip in the same side as the breast with lump, so now my head is being all stupid. 

    I hope you’re appointment went well today and it was some positive news. Thoughts with you xxx

     

  •  

    Hi Kmj,

    Welcome to the forum.

    I am sorry to hear about your lump, but glad to hear that you have been referred to the breast clinic and, that you are due there on Thursday.

    Don’t forget to let your GP look at your mole, as this will need to be referred to a dermatologist if anything suspicious is noticed. It can take longer to get an appointment with a dermatologist, so the sooner you see your GP, the sooner you’ll be seen by one.

    I do hope that all goes well on Thursday, but please don’t expect to get a definite diagnosis straight away. You will possibly have tests done to see if your lump is malignant or benign. The results of these tests then take 1-2 weeks to come back to the clinic, so you are likely to have an anxious wait for that time.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • hi everyone 

    I’ve been away for the week near Whitby, we booked a last minute holiday cottage as I was feeling ok. It was great to be away as a family and we had the best time and the best weather. No WiFi and limited phone signal so I’ve had a good break from everything.

    glad to hear the head shave went well and you are styling it out. 

    I too feel low the day before my treatment as I know I’m going to be tired and a bit useless for a while, I’m a bit more apprehensive this time as my cocktail changes on Tuesday so I’ve no idea how I will react. I also hate the smell on my skin for about a week afterwards.

    But it’s zapping the nasties so we just have to focus on the good rather than the bad as it’s only temporary. 

    Jolamine, I’m sorry to hear about your son it must be a worry for you, I hope the operation was successful.

     

    big hugs for everyone 

     

    WL

  • Hi all [@BigJean]‍ [@Woollylamb]‍ [@Jolamine]‍ 

    jolamine oh my days you must have been beside yourself with worry. How is your son’s recovery going? And on top of it all your liver too - you are doing so well coping hun x 

    ive had a few real low days since chemo Friday and not too sure why it’s hit me like this as it’s only my second one but I think it’s my hair still coming out even though I’ve had it shaved. I don’t want to look “ill “ I want to look like I’m fighting this and bloody winning! But today is a good day and so I’m feeling better about it all.

    take care me lovelies and speak soon x 

  • hi [@mejules]‍ 

    I think it’s ok to have low days, we all have them, you are going through a significant life event. But remember that you every day you are one day closer to the end of treatment. I don’t like the days straight after treatment it’s like I’m waiting for something to happen, I also found the first two dragged, the third and fourth have whizzed by.  My stubble was falling out too but I gave my head a good rub and wore my wig so I couldn’t see it most of the time. 

    It also sounds like you have an amazing life team around you so get your positive energy from them.  And of course we are here to listen and help where we can. Don’t be too hard on yourself you are doing amazing. 

    Big hugs coming atcha. 

    X

  •  

    Hi Mejules,

    This certainly terrified us, but his surgery is over now and all seems well. He still hasn't got the feeling back in his fingers, but this might still return sometime in the next year. Regardless, we feel incredibly fortunate that we still have him.

    From previous posts , I gather that the second chemo can be the most challenging. I am so sorry that you have had difficulty getting through the down days, but hope that these are fewer as you move forward with your treatment and, that, with time you get more good days like today.

    Kind regards,

    Jolamine xx

  • hi everyone

    Just thought I would pop in, round four has been a bit of a tough gig for me. Struggling to get any sleep because of the joint pain and lower back pain. My taste buds are gone and I don’t feel like eating tbh. I’m definitely going to ask for some stronger painkillers for the next round, but at the minute I don’t want to have round 5 even though I know I have to have it.  Sorry for the download but it’s driving me bonkers.  

     

    Hope ypu are all ok.

     

    WL

  • Hi I am the same waiting for operation hope I’m not going to lose both m6 breasts I was it sleeping go to a lady doctor ask her for dizapane to relax you until your treatment is finished doctors are strict about it as they are addictive but my doctor gives me 14 a month that way can’t say I would get addicted I only take it if I can’t sleep I am on codiene for pain but take a sickness pill as with me they can make you feel sick as I am getting wee pains from tumour now tell surgeon today good luck x

  • I spoke to the helpline and they have admitted me to hospital as a precaution, want to keep an eye on my wbc levels and make sure they come up again, and an X-ray on my back to check if there is any infection there. 

    I’m a little bit scared tbh, as even though I’ve been through every scan possible, I worry that something else will pop up, which I know is irrational but my mind is working overtime at the minute.

    Fingers crossed it’s something of nothing. 

    Hope everyone else is ok. 

    WL

  •  

    Hi Woollylamb,

    Sorry to hear that you are finding things hard at the moment. With the pain you are having, it sounds as if you need stronger pain killers for next time. I can understand why you don't want to go through round 5. Many people feel like this as their treatment advances, but it is still wort perservering.

    I don't envy you being in this situation, but we are always here if you want to chat.

    Kind regards,

    Jolamine xx

     

  •  

    Hi Wollylamb,

    I am sorry to hear that you have been admitted to hospital as a precaution, but it sounds as if this may be the best place for you at the moment.

    With more tests on the horizon, I can understand why you're scared, but it is best to check out what is causing your wbc levels to fall and, also why your back is so sore.

    Our thoughts nearly always run away with us when waiting for tests and results, but I sincerely hope that nothing untoward is found.

    Remember that we are always here for you.

    I have my fingers crossed for you.

    Kind regards,

    Jolamine xx

  • Hi WL , so sorry to hear you finding things tough at the minute . I’m glad that you are in hospital getting checked out this is the best place for you now . I also find that I get a bit down with each treatment but I look at it as one step nearer the end and I cross off the treatments on a calendar this is good for the kids too . 

    I too still worry about every little ache and pain and I mentioned this to my dr he told me it’s perfectly normal to have aches and pains on chemo . I would love to give you a big hug so sending you really good positive thoughts and I will say a prayer for you . 

    [@Jolamine]‍ I hope your son is doing well and he makes a full recovery, you must have got an awful shock . Hope you are keeping well also , you are a fantastic woman with all you have to deal with and still take time to talk to us too . 

    [@mejules]‍ hope you are keeping well too . 

    Thinking of you all and sending positive thoughts. 

    Take care 

    J xx

Reply
  • Hi WL , so sorry to hear you finding things tough at the minute . I’m glad that you are in hospital getting checked out this is the best place for you now . I also find that I get a bit down with each treatment but I look at it as one step nearer the end and I cross off the treatments on a calendar this is good for the kids too . 

    I too still worry about every little ache and pain and I mentioned this to my dr he told me it’s perfectly normal to have aches and pains on chemo . I would love to give you a big hug so sending you really good positive thoughts and I will say a prayer for you . 

    [@Jolamine]‍ I hope your son is doing well and he makes a full recovery, you must have got an awful shock . Hope you are keeping well also , you are a fantastic woman with all you have to deal with and still take time to talk to us too . 

    [@mejules]‍ hope you are keeping well too . 

    Thinking of you all and sending positive thoughts. 

    Take care 

    J xx

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