Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • I’m sorry to hear you’re going through this, I am 27 found a lump last week and have been referred to breast clinic on Thursday. I am petrified and I still have a chance of being lucky. I have found myself analysing every inch of my body to the point that I’m convinced I’ve just found a dodgy mole above my hip in the same side as the breast with lump, so now my head is being all stupid. 

    I hope you’re appointment went well today and it was some positive news. Thoughts with you xxx

     

  •  

    Hi Kmj,

    Welcome to the forum.

    I am sorry to hear about your lump, but glad to hear that you have been referred to the breast clinic and, that you are due there on Thursday.

    Don’t forget to let your GP look at your mole, as this will need to be referred to a dermatologist if anything suspicious is noticed. It can take longer to get an appointment with a dermatologist, so the sooner you see your GP, the sooner you’ll be seen by one.

    I do hope that all goes well on Thursday, but please don’t expect to get a definite diagnosis straight away. You will possibly have tests done to see if your lump is malignant or benign. The results of these tests then take 1-2 weeks to come back to the clinic, so you are likely to have an anxious wait for that time.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • hi Jolamine

    i do feel a difference, obviously not in weight but I feel lighter, which probably doesn’t make any sense. I don’t feel like I’ve got heavy carbs and meat in my stomach, my skin is great, nails are healthy etc so it must be doing something.  In fact I’d rather have a meat free meal to be honest. I’m not strict with it but I definitely think about what I’m putting in my body now. 

    [@mejules]‍ how are you feeling?  Have you managed to sort out the nausea? 

    [@Kmj1217]‍ I’m just checking in to see how you are? 

     

    WL

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    Hi Woolylamb,

    I'm glad to hear that you feel that it is making a difference.

    Kind regards,

    Jolamine xx

  • Hi all [@Woollylamb]‍ [@Jolamine]‍ [@BigJean]‍ 

    sorry not been on. It’s good to hear you are all doing ok x woollylamb I’m trying to take more care/notice what I’m putting in my body too. More like though not drinking cows milk as much and eating pomegranate blueberries etc . Might invest in a juicer to make smoothies too x I’ve managed on the good days to get out and do a slow backward plod not far not fast but it makes me feel good although in this heat I haven’t done anything as I just feel sick. Saw oncologist Tuesday and he said nausea is part of the course and when my chemo changes in cycle five the sicky feeling should be less x to be fair if I’m looking at it as a positive 10/11 days of feeling sick is good as i got nearly two weeks that were good x however day before my next cycle I’m feeling rather low as I know what’s coming tomorrow x had my hair shaved on Tuesday and I’m rocking this eleven from stranger things look haha x said to the kids GI Jane but they didn’t know who she was ‍♀️ So we are going with eleven haha x good time to get it done too in this heat x hope you are all doing good. Sounds daft to say I’ve missed you when I’ve never met you but honestly I have missed you all and your updates x take care everyone xx 

  • Hi Everyone, 

    [@mejules]‍ I know exactly how you are feeling the AC is the hardest one . I’ve also started doing smoothies every week especially before treatment and bloods have been great every week . I too get down the day before treatment as we know what’s ahead of us , but I look at it as it’s making us better . 

    Delighted you got on well with the head shave and kids doing well seeing it gone . Think that was my worst worry !! 

    I too miss everyone’s updates suppose it’s the summer hols . 

    Great to hear from you and stay strong sending positive thoughts and prayers. 

    [@Jolamine]‍ hope you are keeping well ??

    [@Woollylamb]‍ hope you are keeping well too and doing well on your treatment?

    take care everyone 

    j xx

  • Hi Woolylamb, mejules and Big Jean,

    Sorry I've not been on the forum as much as possible. I am away from home at the .moment and am relying on my mobile. This is my third attempt to write to you all, but it keeps disappearing. My son broke his neck 8 weeks ago and had surgery on Friday to stabilize it.

    I am glad to hear that you are all still fighting this hard. I can empathise with you all dreading going for each session of chemo. I have problems with cirrhosis of my liver and feel constantly nauseous - not a pleasant feeling! Still, as Jean says, " it's making you better". 

    Jules, I'm glad to hear that the timely haircut went well - a great time to get this done with the hot weather. I hope that all continues to go well for you all. I may not be in touch so much,  but I am still thinking of you all.

    .Kind Regards,

    Jolamine xx

  • hi everyone 

    I’ve been away for the week near Whitby, we booked a last minute holiday cottage as I was feeling ok. It was great to be away as a family and we had the best time and the best weather. No WiFi and limited phone signal so I’ve had a good break from everything.

    glad to hear the head shave went well and you are styling it out. 

    I too feel low the day before my treatment as I know I’m going to be tired and a bit useless for a while, I’m a bit more apprehensive this time as my cocktail changes on Tuesday so I’ve no idea how I will react. I also hate the smell on my skin for about a week afterwards.

    But it’s zapping the nasties so we just have to focus on the good rather than the bad as it’s only temporary. 

    Jolamine, I’m sorry to hear about your son it must be a worry for you, I hope the operation was successful.

     

    big hugs for everyone 

     

    WL

  • Hi all [@BigJean]‍ [@Woollylamb]‍ [@Jolamine]‍ 

    jolamine oh my days you must have been beside yourself with worry. How is your son’s recovery going? And on top of it all your liver too - you are doing so well coping hun x 

    ive had a few real low days since chemo Friday and not too sure why it’s hit me like this as it’s only my second one but I think it’s my hair still coming out even though I’ve had it shaved. I don’t want to look “ill “ I want to look like I’m fighting this and bloody winning! But today is a good day and so I’m feeling better about it all.

    take care me lovelies and speak soon x 

  • hi [@mejules]‍ 

    I think it’s ok to have low days, we all have them, you are going through a significant life event. But remember that you every day you are one day closer to the end of treatment. I don’t like the days straight after treatment it’s like I’m waiting for something to happen, I also found the first two dragged, the third and fourth have whizzed by.  My stubble was falling out too but I gave my head a good rub and wore my wig so I couldn’t see it most of the time. 

    It also sounds like you have an amazing life team around you so get your positive energy from them.  And of course we are here to listen and help where we can. Don’t be too hard on yourself you are doing amazing. 

    Big hugs coming atcha. 

    X

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    Hi Mejules,

    This certainly terrified us, but his surgery is over now and all seems well. He still hasn't got the feeling back in his fingers, but this might still return sometime in the next year. Regardless, we feel incredibly fortunate that we still have him.

    From previous posts , I gather that the second chemo can be the most challenging. I am so sorry that you have had difficulty getting through the down days, but hope that these are fewer as you move forward with your treatment and, that, with time you get more good days like today.

    Kind regards,

    Jolamine xx

  • hi everyone

    Just thought I would pop in, round four has been a bit of a tough gig for me. Struggling to get any sleep because of the joint pain and lower back pain. My taste buds are gone and I don’t feel like eating tbh. I’m definitely going to ask for some stronger painkillers for the next round, but at the minute I don’t want to have round 5 even though I know I have to have it.  Sorry for the download but it’s driving me bonkers.  

     

    Hope ypu are all ok.

     

    WL

Reply
  • hi everyone

    Just thought I would pop in, round four has been a bit of a tough gig for me. Struggling to get any sleep because of the joint pain and lower back pain. My taste buds are gone and I don’t feel like eating tbh. I’m definitely going to ask for some stronger painkillers for the next round, but at the minute I don’t want to have round 5 even though I know I have to have it.  Sorry for the download but it’s driving me bonkers.  

     

    Hope ypu are all ok.

     

    WL

Children
  • Hi I am the same waiting for operation hope I’m not going to lose both m6 breasts I was it sleeping go to a lady doctor ask her for dizapane to relax you until your treatment is finished doctors are strict about it as they are addictive but my doctor gives me 14 a month that way can’t say I would get addicted I only take it if I can’t sleep I am on codiene for pain but take a sickness pill as with me they can make you feel sick as I am getting wee pains from tumour now tell surgeon today good luck x

  • I spoke to the helpline and they have admitted me to hospital as a precaution, want to keep an eye on my wbc levels and make sure they come up again, and an X-ray on my back to check if there is any infection there. 

    I’m a little bit scared tbh, as even though I’ve been through every scan possible, I worry that something else will pop up, which I know is irrational but my mind is working overtime at the minute.

    Fingers crossed it’s something of nothing. 

    Hope everyone else is ok. 

    WL

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    Hi Woollylamb,

    Sorry to hear that you are finding things hard at the moment. With the pain you are having, it sounds as if you need stronger pain killers for next time. I can understand why you don't want to go through round 5. Many people feel like this as their treatment advances, but it is still wort perservering.

    I don't envy you being in this situation, but we are always here if you want to chat.

    Kind regards,

    Jolamine xx

     

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    Hi Wollylamb,

    I am sorry to hear that you have been admitted to hospital as a precaution, but it sounds as if this may be the best place for you at the moment.

    With more tests on the horizon, I can understand why you're scared, but it is best to check out what is causing your wbc levels to fall and, also why your back is so sore.

    Our thoughts nearly always run away with us when waiting for tests and results, but I sincerely hope that nothing untoward is found.

    Remember that we are always here for you.

    I have my fingers crossed for you.

    Kind regards,

    Jolamine xx

  • Hi WL , so sorry to hear you finding things tough at the minute . I’m glad that you are in hospital getting checked out this is the best place for you now . I also find that I get a bit down with each treatment but I look at it as one step nearer the end and I cross off the treatments on a calendar this is good for the kids too . 

    I too still worry about every little ache and pain and I mentioned this to my dr he told me it’s perfectly normal to have aches and pains on chemo . I would love to give you a big hug so sending you really good positive thoughts and I will say a prayer for you . 

    [@Jolamine]‍ I hope your son is doing well and he makes a full recovery, you must have got an awful shock . Hope you are keeping well also , you are a fantastic woman with all you have to deal with and still take time to talk to us too . 

    [@mejules]‍ hope you are keeping well too . 

    Thinking of you all and sending positive thoughts. 

    Take care 

    J xx

  • hi

    Quick update. I was discharged on Wednesday , they’re not sure what caused my temp to rise, nothing came back on the tests. Think the back pain is just the side effects of chemo so I’ve got some stronger painkillers for the next round and was sent home with antibiotics.

    So just taking it easy for the next week until round 5, hopefully it will be bette than round 4.

     

    hope all is ok with everyone.

    x

     

  • I am so pleased you got tested out your mind at rest I know chemo takes a lot out of you as it kills bad cells but also your good cells just rest eat healthy black grapes is especially  good for stopping cells spreading I am always looking 5hings up in google having cancer in my breast a second time think after my heart assessment b3 in for operation in 2 weeks *** myself hate getting put to sleep you got antibiotics as well for your temperature glad  hope next round slot easier take care x

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    Hi Woolylamb,

    Thanks for your update. I'm glad to hear that you are back home again. I am glad to hear that the tests you had showed up nothing untoward with your back. It's not good news that this seems to be the result of chemo, but it's the better of the two options.

    I'm glad to hear that you've got stronger pain killers for round 5. It sounds as if the antibiotics are just precautionary. I can understand why you're dreading  your next session, but hope that it all goes better than your last.

    Kind regards,

    Jolamine xx

     

  • hi everyone, hope all is well.  

    Well 5 down and 1 to go. In 3 weeks time I will have finished chemo....yippee.

    oncologist couldn’t find my lump today so I’ve been referred for an MRI to check the size and whereabouts of it.  So I’m taking that as a positive, even though I hate MRI’s. 

     

    Not looking forward to the side effects over the next week or so bit just need to get on with it.  Starting to think about doing something to mark the end of the chemo before I have my op. Maybe a hot air balloon ride as a family, it’s on my bucket list of things to do and the weather might be good enough for one in September.

    speak soon

    WL

  •  

    Hi Wollylamb,

    I'm glad to hear that you've got no 5 behind you and hopefully, without any nasty side-effects this time. How fantastic that your oncologist couldn't find your lump today, so here's hoping that your MRI doesn't find it either. I don't like MRI's myself but it'll be worth having one if it confirms your oncologist's findings.

    A hot air balloon ride as a family sounds like a fantastic way of celebrating the end of your chemo, or would be if we can ever get this rain to stop.

    Kind regards,

    Jolamine xx