Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

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    Hi Mejules,

    Sorry to hear about the drain leak. I had one of these the second day after my surgery when I was taking a shower. Fortunately, I was still in hospital at the time and a very helpful nurse came and sorted me out. - It must have been more difficult for you to have to deal with this at home?

    Still, I'm glad that this led to getting your drain out altogether. Here's hoping that there is no sign of a seroma tomorrow.

    This is always a scary time, waiting for results, but no amount of worry will change anything. Still, you can hope for the best and, I sincerely hope that this turns out to be the case.

    Roll on Wednesday!

    Kind regards,

    Jolamine xx

  • Hi BigJean

    Notices you mentioned tiredness, one of the tablets I was given I was recommended to take in the evening rather than the morning asnit causes drowsiness, just wondering whether that is something to talk to them about....bit of a long shot.

     

    i had my head shaved today, no emotion at all which I was surprised about.

    Touch wood, the only side effect I have had is heartburn, so I am knocking peppermint tea back at the minute. Give myself my first injection today so not sure what impact it will have.

    Hope all is well with you.

    WL

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    Hi Woolylamb,

    I'm glad to hear that  the head shaving went without a hitch today and, that it wasn't too emotional for you.

    It's great to hear that heartburn is your only problem at the moment. Here's hoping that the rest of your treatment is plain sailing too.

    Kind regards,

    Jolamine xx

  • Hi WL , 

    thank you for your advice re the tablet for tiredness I will check with them this week when I am there . Can’t believe this Friday I’ll be having my 3rd session of chemo! Weeks are flying by !!

    im so glad you got your head shaved and you weren’t emotional it feels good to be in control. 

    Hope you are keeping well and had a nice weekend. 

    I went to my brother in laws 40 th was very self conscious about wearing the wig and was more worried if anyone said anything!!! 

    I don’t think anyone noticed ( well if they did they didn’t say anything!!) anyway had a good night . 

    Take care 

    j xxx

  • Hi jolamine/WL/bigjean

    had results today from mastectomy. They got it all it was 6.5cm so bit smaller than originally thought and two out of twelve nodes were cancerous but all taken out. Do consultant said I am now cancer free!! Still got to have chemo and radiotherapy- appointment Monday with oncologist but for today I am taking this little bit of good news x

    hope you Are all doing well x take care

  • hi all 

    hope everybody is doing ok. You are all flying with chemo and making the hair loss sound manageable so it’s nice to read and not panic about what may lie ahead

    Mejules great news about u being cancer free it is news not to take lightly and must b celebrated  if lucky to have oncologist appt soon too u will have your plan and c the way forward.   I’m in for third operation next Monday mastectomy on one side part of me thinking will it b only a matter of time before it all kicks off in other breast.  

    How is your arm going mine stiff and tight 

    can I ask you girls have u  kept this news quite outside immediate family and friends. I like having only a small circle knowing but I think as time goes on I have more trouble hiding the truth and beginning to care less I live in a small town  

    regards for now

    Swiperbaby

     

  • Hi swiperbaby

    All the best with your masectomy x I get where you are coming from when you say you think it will be in your breast at some time. I spoke to the cancer nurse today about me not checking my other breast incase I find a lump she said that is normal reaction but encouraged me to do it once a month x 

    my arm is still tight. Struggle to take my tops off without pain. It feels like my arm has bern shortened which I know it hasn’t. Again nurse said need to continue with exercises as when I have radiotherapy i need to be able to put my arm in a certain position.  Do you still do the exercises? 

    I only told close family and a few friends at first but to be honest as time has gone on especially after the Masectomy and as I’m not wearing a softie I tend to tell those friends I see because I feel it’s more noticeable with only having one boob. I think it’s a personal choice hun to you to whom you tell x

    hope you are keeping well or as well in the circumstances x

     

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    Hi Jules,

    This is great news. It's not often that the lump is smaller than expected.

    It's not so good to hear that 2 of your nodes were cancerous, but let's hope that chemo and radiotherapy will zap any nodes left.

    I hope that your appointment with the oncologist goes well on Monday.

    Kind regards,

    Jolamine xx

     

  • Hi jolamine

    how are you? X met with oncologist yesterday and start my chemo week commencing 1 July. Four cycles every three weeks then change the chemo and two cycles every two weeks x twenty weeks in total so not too bad x I’m going to have some dental work done to try and stop the chance of infection before chemo starts and it means I can attend an important event for my son on 28 June and feel ok x 

    hope you doing ok x speak soon 

  • [@Woollylamb]‍ [@BigJean]‍ hi both 

    h‍ow are you both doing with your chemo? Been thinking of you and hope you are doing ok x  

Reply Children
  • Hi [@mejules]‍ [@Woollylamb]‍ 

    sorry haven’t been on in a while. Great to hear you both doing well on your treatment. Good to get the dental work done too . I too find the tiredness hits you all of a sudden. Have had a couple of mouth ulcers but that’s it . 

    Had my 3rd Ac last Friday all going good only one more left to go . Can’t believe it weeks are flying by . 

    Don’t know if any of you ladies experienced this but had slight pain on and off in my good boob and under my arm !!! Will mention it to dr when I go back next Friday. It’s not there all the time just a couple of times also didn’t know if it was related to my period ( 4 days late ) . 

    Hope everyone keeping well . Have a lovely weekend. 

    Take care 

    j xxx

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    Hi BigJules,

    It's good to hear from you and, to discover that you are still managing to cope with your chemo.

    It's hard to believe that your next session will be your last one. It is certainly worth mentioning the slight pain on and off in your good boob and under your arm, when you see your Dr next Friday.

    Here's hoping that it is nothing untoward.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, 

    thank you for your reply. Hope you are keeping well . Yes I will mention it next week just really hope it isn’t anything to worry about as my mind as usual is already thinking the worst !! 

    I will be glad when the AC chemo is finished but to be honest it wasn’t as bad as I thought. I then start Taxol and Herceptin so hopefully that will be as easy and the weeks go quickly aswell .

    Thank you again for taking the time to reply 

    take care 

    j xx

     

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    Hi BigJean,

    Like you, I hope that this is nothing to worry about, but you are best to let the doctors know of any changes as soon as possible

    Will be keeping my fingers crossed for you on Friday.

    Kind regards,

    Jolamine xx

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    just tagging [@babs50]‍ into the thread. Hope everyone is ok.

    I looked into Microblading for eyebrows but they won’t do it due to risk of infection so I have a consultation for henna brows to see if that’s any good. 

     

    Cycle two tomorrow, and my second reiki session today.

    wish me luck.

    WL

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    Hi Woolylamb,

    Please let us know how you find the henna brows.
    I hope that all goes well for cycle 2 tomorrow.

    Kind regards,

    Jolamine xx

     

     

  • hi to all the girls on here 

    Glad to read chemos are moving along without too many side effects however mouth ulcers can be sore and annoying  I get a spray in the chemist and I find it great  Aloclair plus spray 

    i had a rt mastectomy last Monday came home wed   Breast nurses amazing support drain out now so getting on with recovery, exercise and awaiting next step end of this week  prob chemo as nurse said don’t rule it out  

    I will have a month or so reprieve so I’m hoping to do fun things with kids off school before next stage of treatment   How is you arm Mejules hope recovery good and good you have a date for treatment  

    i am still very numb under my arm is this normal .. never to return?

    Regards S

  • Hi swiperbaby

    glad you are recovering well from your mastectomy. My movement is quite good but still can’t raise my arm over my head but still doing the exercises given. My upper arm is still numb but more so underneath. Having to shave my armpit in a mirror as can’t feel what I’m doing. Have been told feeling might not come back but it’s not really an issue until I have to shave. 

    Due to start chemo 5 July . Had tooth out Thursday and now got infection so on strong antibiotics to try and get rid before chemo starts.

    Hopefully you won’t need any further treatment Hun x take care

    x

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    Hi Swiperbaby,

    I’m sure that you are happy to get your mastectomy behind you and, glad that it all went well. Are you due to get your pathology results at the end of this week too? I hope that it is all good news.

    Enjoy your reprieve for the next month or so and, make the most of this time with your children.

    Kind regards,

    Jolamine xx

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    Hi MeJules,

    I am glad to hear that you have had your teeth attended to, but am sorry that you now have an infection. It should heal up in plenty of time for you to start chemo.

    I hope that it all goes well.

    Will be thinking of you on 5th July.

    Kind regards,

    Jolamine xx