Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  • Hi big jean

    That sounds - not sure this is the right word -  lovely and I would likely my partner and kids there too. To be part of the journey. I am toying with the idea of going quite short now I’m readiness for the shave.

    glad you are not feeling too bad albeit very tired x 

    take care

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    Hi BigJean,

    I'm glad to hear that you have done the deed and that you feel good about it. It's almost like taking ownership and control back over your own body, rather than leaving it to fall out as and when it likes.

    I'm glad that your hubby went along to the hairdressers with you and that you had a good laugh about it all. Sorry to hear about the tiredness - that's one thing that I haven't found a cure for. Just give in to your body's needs and rest/sleep whenever you need to.

    Thinking of you.

    Jolamine xx

  • Hi Mejules , 

    i still have a bit of “stubble “ , so not too drastic! 

    It was good to have my husband there as support even though he did try to put me off doing it . 

    Best of luck with yours and let me know how it goes  

    j xx

  • Hi Jolamine, 

    yes im v glad I did it now and your are right I feel much more in control. 

    I can cope with the tiredness just about it’s hard to have to give in to my body’s telling me I need rest when I never sit still !! But it could be worse and I’m thankful I’m able to rest when I need to . 

    Thank you as always for your lovely message. 

    Hope all well with you 

    j xxx

  • Hi

    jolamine

    just letting you know I had my drain out yesterday as it was leaking after bottle changed day before. Unbeknown to me I had pulled the tube out quite far and the drainage holes that should have been inside me were actually on the outside - hence the leakage- ouch! Back tomorrow to check for a setoma but tick against another step to starting treatment. 

    Bit worried about results Wednesday particularly the lymph node results but have to remind myself it is what it is - nothing I can do to change it. 

    Take care all x

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    Hi Mejules,

    Sorry to hear about the drain leak. I had one of these the second day after my surgery when I was taking a shower. Fortunately, I was still in hospital at the time and a very helpful nurse came and sorted me out. - It must have been more difficult for you to have to deal with this at home?

    Still, I'm glad that this led to getting your drain out altogether. Here's hoping that there is no sign of a seroma tomorrow.

    This is always a scary time, waiting for results, but no amount of worry will change anything. Still, you can hope for the best and, I sincerely hope that this turns out to be the case.

    Roll on Wednesday!

    Kind regards,

    Jolamine xx

  • Hi BigJean

    Notices you mentioned tiredness, one of the tablets I was given I was recommended to take in the evening rather than the morning asnit causes drowsiness, just wondering whether that is something to talk to them about....bit of a long shot.

     

    i had my head shaved today, no emotion at all which I was surprised about.

    Touch wood, the only side effect I have had is heartburn, so I am knocking peppermint tea back at the minute. Give myself my first injection today so not sure what impact it will have.

    Hope all is well with you.

    WL

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    Hi Woolylamb,

    I'm glad to hear that  the head shaving went without a hitch today and, that it wasn't too emotional for you.

    It's great to hear that heartburn is your only problem at the moment. Here's hoping that the rest of your treatment is plain sailing too.

    Kind regards,

    Jolamine xx

  • Hi WL , 

    thank you for your advice re the tablet for tiredness I will check with them this week when I am there . Can’t believe this Friday I’ll be having my 3rd session of chemo! Weeks are flying by !!

    im so glad you got your head shaved and you weren’t emotional it feels good to be in control. 

    Hope you are keeping well and had a nice weekend. 

    I went to my brother in laws 40 th was very self conscious about wearing the wig and was more worried if anyone said anything!!! 

    I don’t think anyone noticed ( well if they did they didn’t say anything!!) anyway had a good night . 

    Take care 

    j xxx

  • Hi jolamine/WL/bigjean

    had results today from mastectomy. They got it all it was 6.5cm so bit smaller than originally thought and two out of twelve nodes were cancerous but all taken out. Do consultant said I am now cancer free!! Still got to have chemo and radiotherapy- appointment Monday with oncologist but for today I am taking this little bit of good news x

    hope you Are all doing well x take care

Reply
  • Hi jolamine/WL/bigjean

    had results today from mastectomy. They got it all it was 6.5cm so bit smaller than originally thought and two out of twelve nodes were cancerous but all taken out. Do consultant said I am now cancer free!! Still got to have chemo and radiotherapy- appointment Monday with oncologist but for today I am taking this little bit of good news x

    hope you Are all doing well x take care

Children
  • hi all 

    hope everybody is doing ok. You are all flying with chemo and making the hair loss sound manageable so it’s nice to read and not panic about what may lie ahead

    Mejules great news about u being cancer free it is news not to take lightly and must b celebrated  if lucky to have oncologist appt soon too u will have your plan and c the way forward.   I’m in for third operation next Monday mastectomy on one side part of me thinking will it b only a matter of time before it all kicks off in other breast.  

    How is your arm going mine stiff and tight 

    can I ask you girls have u  kept this news quite outside immediate family and friends. I like having only a small circle knowing but I think as time goes on I have more trouble hiding the truth and beginning to care less I live in a small town  

    regards for now

    Swiperbaby

     

  • Hi swiperbaby

    All the best with your masectomy x I get where you are coming from when you say you think it will be in your breast at some time. I spoke to the cancer nurse today about me not checking my other breast incase I find a lump she said that is normal reaction but encouraged me to do it once a month x 

    my arm is still tight. Struggle to take my tops off without pain. It feels like my arm has bern shortened which I know it hasn’t. Again nurse said need to continue with exercises as when I have radiotherapy i need to be able to put my arm in a certain position.  Do you still do the exercises? 

    I only told close family and a few friends at first but to be honest as time has gone on especially after the Masectomy and as I’m not wearing a softie I tend to tell those friends I see because I feel it’s more noticeable with only having one boob. I think it’s a personal choice hun to you to whom you tell x

    hope you are keeping well or as well in the circumstances x

     

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    Hi Jules,

    This is great news. It's not often that the lump is smaller than expected.

    It's not so good to hear that 2 of your nodes were cancerous, but let's hope that chemo and radiotherapy will zap any nodes left.

    I hope that your appointment with the oncologist goes well on Monday.

    Kind regards,

    Jolamine xx

     

  • Hi jolamine

    how are you? X met with oncologist yesterday and start my chemo week commencing 1 July. Four cycles every three weeks then change the chemo and two cycles every two weeks x twenty weeks in total so not too bad x I’m going to have some dental work done to try and stop the chance of infection before chemo starts and it means I can attend an important event for my son on 28 June and feel ok x 

    hope you doing ok x speak soon 

  • [@Woollylamb]‍ [@BigJean]‍ hi both 

    h‍ow are you both doing with your chemo? Been thinking of you and hope you are doing ok x  

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     Hi Jules,

    I'm glad to hear that the oncologist has laid out your chemo schedule. I'm glad that you are getting your dental work out of the way first and, that you can attend your son's event before it all starts.

    I hope that it all goes well and that you ejoy the day with your son.

    Kind regards,
    Jolamine xx

  • hey mejules

    I am doing ok thanks. Very few side effects , heartburn, mouth ulcers and a bit of tiredness.  Had a review today and all good to go with round 2 next Tuesday.  Got my head shaved  which I’m pleased I did and making sure I take time to moisturise my skin properly.  Not sure what to do about eyebrows.  Our hospital also does free holistic therapies so I had a reiki session today so I’m feeling very relaxed at the minute.

    I’m pleased you have your plan now, at least you know what you are dealing with and when.  

     

    Thanks for getting in touch, look after yourself and let me know how your first session goes.

    WL

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    Hi Wollylamb,

    I'm glad to hear that all is going well for you so far. I suppose that a few minor side-effects, such as uou mention are a small price to pay. I may be wrong, but I'm pretty sure that you can get your eyebrows tattooed on. Perhaps someone who has had this done, can tell you more about it?

    Having holistic therapies available in your hospital is handy - just what you need when you're going through chemo.

    Kind regards,

    Jolamine xx

  • Hi [@mejules]‍ [@Woollylamb]‍ 

    sorry haven’t been on in a while. Great to hear you both doing well on your treatment. Good to get the dental work done too . I too find the tiredness hits you all of a sudden. Have had a couple of mouth ulcers but that’s it . 

    Had my 3rd Ac last Friday all going good only one more left to go . Can’t believe it weeks are flying by . 

    Don’t know if any of you ladies experienced this but had slight pain on and off in my good boob and under my arm !!! Will mention it to dr when I go back next Friday. It’s not there all the time just a couple of times also didn’t know if it was related to my period ( 4 days late ) . 

    Hope everyone keeping well . Have a lovely weekend. 

    Take care 

    j xxx

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    Hi BigJules,

    It's good to hear from you and, to discover that you are still managing to cope with your chemo.

    It's hard to believe that your next session will be your last one. It is certainly worth mentioning the slight pain on and off in your good boob and under your arm, when you see your Dr next Friday.

    Here's hoping that it is nothing untoward.

    Kind regards,

    Jolamine xx