Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Hi, had some great news...my biopsies came back clear.  I have to have another colposcopy booked for the 30th March to remove a lesion but no nasty cells.  I was given the option to leave it but decided I wanted to get rid!  Hope you're not waiting too much longer and you get some good news too. 

My biopsy came back clear today too I waited 10 weeks on the results so relieved I had a bleed after being through the menopause and my womb lining was 5 cm the waiting all those weeks is terrible 

Hiya 

im so sorry to disturb you 

I'm just out of my mind and need to speak with someone that has been thru this 

do we have the fear of this returning in the 1st year 

I keep googling and making myself crazy 

I was given the all clear in February 2021, and I am wondering the same thing, all I was told was to look out for bleeding and weight loss, I'm coming up to my 6 month check up, not sure really what to expect.

It has been just over 2 years since my total hysterectomy, which was gladly all that was needed to cure the endometrial cancer.

Obviously its a worry that every niggle / pain in the gynae area  is something to worry about -  but its not always the case.  If you have any worries contact your team, who can get you back in to see them within 2 weeks if they feel it necessary to do so.  I had to call my team one time after cos i thought it was a concern, went in , had some swabs done and was an infection which cleared with antibiotics.

I was given literature after all the follow up appts completed,   patient care plan - and told to look out for any signs such as vaginal bleeding,  abdominal swelling / discomfort, loss of appetite or nausea, etc. but obvs these symptoms can be so many other non-serious things.    If you have completed your treatment they should have given you a doucment explaining this also details of who to contact with any concerns.  My team were brilliant.

I recently had severe stomach  pain and my mum thought the cancer had returned  in my abdomen or elsewhere, it turned out to be an infected / inflamed gall bladder with one huge stone stuck.

I do understand how you feel, if you want to talk offline, send me ` `friend request` on here.

take care

SNOOPY47

Hi Leilani

I hope you are well 

I hope you don't mind me asking 

have you been ok since your op ?

im having my op in 2 weeks 

thank you 

Thank you 

I'm now waiting for my op 

but I'm just so worried 

I had my operation in jan (Total laparoscopic hysterectomy, with both my ovaries removed, with peritoneal washings)  everything went well, I had a little trouble with infections afterwards, but that was probably due to being diabetic and that I easily get infections. All biopsies taken came back negative in early feb. I went home the day after my operation as I was doing well moving around, it really was not too bad pain wise, but I 've being through 4 C sections before, and compared to them it was easier.

Have they indicated at what stage you are, I was stage 1a, I did not find that out till February I know they don't really grade them until after the operation, but they did say they thought they had caught it early before the operation. I also did not need any other treatment which was good, but it was worrying waiting, it took about 2/3 weeks after the operation to find out my biopsy results and for them to stage it, there is a relief once it's finally taken away.

Yes they've said it's grade 1 

stage 1 

I had my mri so they can see it's quite contained 

but he sent me for a ct scan 

that scared me when he sent me for that but he said it was just to tick a box 

he has been quite honest with me through everything 

I've tried looking on here for reoccurring endometrial but I can't find anything 

I'm hoping it's not common but google says otherwise 

hi

i am hoping that you have had a ct scan which showed that the area of concern is contained just to the womb and that surgery is all that is necessary to remove the cancer.

i will be thinking of you

x

hi

i am hoping that you have had a ct scan which showed that the area of concern is contained just to the womb and that surgery is all that is necessary to remove the cancer.

i will be thinking of you

x

I'm waiting for the results 

please God