Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Thank you so much for helping. My Gynaecology appointment has been brought forward to Tuesday 16th.I will defo let you know what happens.

Hi just had my biopsy today as I had thickening, consultant didn't say how much and I didnt ask. Due to covid the expect tge results to take 8 weeks. The only parting comment he left me with was it happens to 5 or 10 per cent of women my age and if it is cancer its very easily treatable. So I cannot get this comment out of my head that he is pre warning me. Can they see anything other than the thickness when they carried out the scan. I just have to out it to tge back of my head and wait 8 weeks.

Same here...was told mine was thicker than it should be but no detail. Also small cysts on ovaries they are not worried about due to normal blood tests. Patch on cervix was an extra - never missed a smear test but did have a cervical erosion about 30 years ago  Appintments have come through very quickly so far so grateful for that. Was told 2-4 weeks for results but should probably expect longer.  

The waiting is the worse part, the not knowing, it weighs heavy on your mind, I had a 3 week wait from my biopsy results, but at the time they did not really say what they were testing for so therefore I was not really worried, that is until they rang me. I do know some areas are quicker than others with testing but do know Covid is slowing everything down, I had to wait an extra 3 months for another CT Scan.

They usually catch womb cancer early due to the bleeding issues that go with it, most people go to see their GP pretty much straight away.

I had a total laparoscopic hysterectomy my ovaries and cervix were also removed, all tests afterwards ( came back within 3 weeks) say all my cancer is gone, so I do not need any other treatments, which is a great big relief, but they will keep an eye on me for next 2 years, I was told to look out for unexplained weight loss and any vaginal bleeding, any of those and I'm supposed to go see my drs. They will do a 6 week and a 6 month check, the first one will be a phone consultation, the second is an appointment.

Thanks for your reply its always good to share stories and experience. Think a stiff drink tonight is in order. I didnt have bloods taken. Im also based in scotland so will be interesting to see how far apart our results arrive. A lot of people on this forum post and never come back on possibly due to good news so I've convinced myself ill be in that percentage bracket that mine is cancer. I too am pleased how fast I've been seen and glad I went to the gp after 1 bleed and didn't dismiss it.im sure I will tackle it face on positively whatever it maybe just is rather know one way or the other and sooner. Im currently supporting my sister in law who was diagnosed with stage 2 breast cancer 3 days before Xmas and it was only picked up on mammogram she had no symptoms. She had her surgery a week ago. 

Will follow your story and see what your outcome is 

Hello - nearly 3 weeks in and no news. How are you doing? 

Hello just added you as friend so I could message you. nope nothing from me as yet just as well as I have some stressful stuff going on right now. I had a full mot at that time so my thyroid has came back fine and they ran some other tests when I was bleeding at the GPS and they have come back fine. 

Hi, had some great news...my biopsies came back clear.  I have to have another colposcopy booked for the 30th March to remove a lesion but no nasty cells.  I was given the option to leave it but decided I wanted to get rid!  Hope you're not waiting too much longer and you get some good news too. 

My biopsy came back clear today too I waited 10 weeks on the results so relieved I had a bleed after being through the menopause and my womb lining was 5 cm the waiting all those weeks is terrible 

Hiya 

im so sorry to disturb you 

I'm just out of my mind and need to speak with someone that has been thru this 

do we have the fear of this returning in the 1st year 

I keep googling and making myself crazy 

Hiya 

im so sorry to disturb you 

I'm just out of my mind and need to speak with someone that has been thru this 

do we have the fear of this returning in the 1st year 

I keep googling and making myself crazy 

I was given the all clear in February 2021, and I am wondering the same thing, all I was told was to look out for bleeding and weight loss, I'm coming up to my 6 month check up, not sure really what to expect.

It has been just over 2 years since my total hysterectomy, which was gladly all that was needed to cure the endometrial cancer.

Obviously its a worry that every niggle / pain in the gynae area  is something to worry about -  but its not always the case.  If you have any worries contact your team, who can get you back in to see them within 2 weeks if they feel it necessary to do so.  I had to call my team one time after cos i thought it was a concern, went in , had some swabs done and was an infection which cleared with antibiotics.

I was given literature after all the follow up appts completed,   patient care plan - and told to look out for any signs such as vaginal bleeding,  abdominal swelling / discomfort, loss of appetite or nausea, etc. but obvs these symptoms can be so many other non-serious things.    If you have completed your treatment they should have given you a doucment explaining this also details of who to contact with any concerns.  My team were brilliant.

I recently had severe stomach  pain and my mum thought the cancer had returned  in my abdomen or elsewhere, it turned out to be an infected / inflamed gall bladder with one huge stone stuck.

I do understand how you feel, if you want to talk offline, send me ` `friend request` on here.

take care

SNOOPY47

Thank you 

I'm now waiting for my op 

but I'm just so worried 

hi

i am hoping that you have had a ct scan which showed that the area of concern is contained just to the womb and that surgery is all that is necessary to remove the cancer.

i will be thinking of you

x

I'm waiting for the results 

please God