Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

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  • Good Evening

    Sorry to jump on this post..

    I'm Kelly, I joined yesterday. 

    I'm 42 in March. I have 4 children. I finally went to the doctor back in November regarding some symptoms I had been having for around 6 months. Irregular periods (either every 2/3wks or going 6/8wks being super heavy and lasting upto 10days) spotting in-between periods, bleeding after intercourse. Pain constantly over left Ovary. Pain during intercourse. Bloating, weight loss. I was sent for a ultrasound and to have a smear. When I went for my smear the Nurse decided to send me straight to Colposcopy clinic due to previous history of CIN3 & GCIN in 2014 and the fact I started to bleed as she took a sample. I was fast tracked to the clinic. I had another ultrasound as they didn't have results which showed my lining to be 14cms thick and a small cyst on Right Ovary. Left despite the constant pain couldn't be seen, which they said is a good thing as its likely stuck due to adhesions. As I suffer with Seizures (FND) they arrange to do a hysteroscopy & Biopsy under GA and a CA125 blood test. I had my procedure 25th Jan. Beforehand I saw 2 doctors. 1 saying they thought I had polyps and having a moan about me not wanting an IUD. 2 saying my CA125 was 43 so they did think there was an issue with the cyst (but not necessarily cancer) and that they would have a good look and together with Biopsy result make a plan of action. In recovery room I was told I didnt have any polyps and all looked good. I would receive my biopsy results in 3 weeks. On Friday I had a call from the MRI dept asking me to come in yesterday. I was waiting for a MRI for my shoulder so naturally assumed it was for this. I've had no paperwork come through. Yestwrday I went to find it was for a Pelvis MRI with contrast. I argued I wasn't there for it but they explained that my notes said the Consultant had arranged it as something was picked up on Ultrasound that needed further imaging.

    So now I am assuming the worst because everything I have read says you have a MRI as part of the diagnosis to determine what grade it is.... 

    Has anyone had a MRI alongside investigations that wasnt part of a diagnosis? 

     

  • Hi I'm new to this post too. I'm 54 and 2 years ago periods were messing about - went a good few months with nothing then heavy bleeding out of the blue. Referred by GP, had internal scan and biopsies, came back clear....Happy days! Everything settled down eventually and went 287 days with nothing (tracked on my Garmin app) - was out running on day 288 and felt a real dragging sensation and found I'd started bleeding. Ignored it for a few days but asked to speak to a  nurse when I booked my flu jab. She called me straight in and referred me there and then on 2week wait. Called in for internal scan and blood test on26/2 then given appt to see consultant who I saw on 2/2. He tried to do biopsy of womb in clinic...but couldn't do it (v painful) so called me in for colposcopy on 5/2 as had also spotted a lesion on my cervix. Good news as bloods normal but now waiting for results of biopsies from womb and cervix. Just not sure....should I be worried? 

    Thanks for listening x 

     

  • Before my periods stopped for 2 years my periods were really bad, irregular, heavy prolonged bleeding with lots of blood clots, my longest time bleeding was 4 months, I suffered for over 15 years, I saw different specialists over the years but was told it was due to my thyroid. I think if anything is different to your usual you should query it, it might be something and nothing but it's better to be safe, at the time my periods stopped it was a bit of a relief, I was given a hormone cream which started me bleeding again like before my periods stopped, so because I'd got no where before I did not to to see the drs, I was not aware at the time this was not normal, if not for the heart attack I still would not of gone to the drs, my cancer would of being a lot worse.

    I think the blood tests they did test for was ovarian cancer, I don't believe blood tests show anything for womb cancer, I have no idea about the cervix.

    I do believe from my own experience they get in touch with you a lot faster, and arrange appointments faster, the more concerned they are about test results, the longer the leave it usually means things are not too bad.

    I never had an MRI only a CT, but think the use both of these to help them properly diagnose you, sometimes things are not totally clear on ultrasounds and they need better imaging to help in there diagnoses. It good they are being thorough in there investigations.

Reply
  • Before my periods stopped for 2 years my periods were really bad, irregular, heavy prolonged bleeding with lots of blood clots, my longest time bleeding was 4 months, I suffered for over 15 years, I saw different specialists over the years but was told it was due to my thyroid. I think if anything is different to your usual you should query it, it might be something and nothing but it's better to be safe, at the time my periods stopped it was a bit of a relief, I was given a hormone cream which started me bleeding again like before my periods stopped, so because I'd got no where before I did not to to see the drs, I was not aware at the time this was not normal, if not for the heart attack I still would not of gone to the drs, my cancer would of being a lot worse.

    I think the blood tests they did test for was ovarian cancer, I don't believe blood tests show anything for womb cancer, I have no idea about the cervix.

    I do believe from my own experience they get in touch with you a lot faster, and arrange appointments faster, the more concerned they are about test results, the longer the leave it usually means things are not too bad.

    I never had an MRI only a CT, but think the use both of these to help them properly diagnose you, sometimes things are not totally clear on ultrasounds and they need better imaging to help in there diagnoses. It good they are being thorough in there investigations.

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