Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

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  • Hello!

    thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

     

    I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

  • hi laney

     

    Appreciate your reply

    I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

     

  • I'm 37 and still have periods but they abit all over the spot , it is really worrying, especially when they say they don't think it's out sinister but then want to take biopsy's and tests ! I am waiting on the cervix biopsy but now need one on the 10mm thickness in womb , and wot looks like a polyp! They said ! Scared out my wits as my boy only 5 ! Just strange having both going on at once ! You sound like your having a lot of pain. Mine is just dull aches in tummy and back xx  

  • I've got dullache all the time like a water infection the horrible pain i get at least once a day just be nice to get to bottom of it at least your gynae is doing all the right tests for you and just hope they give you some answers my scan showed my fibroids had gone just wall thickening and I gained a very small  ovarian cyst so that changed from my previous scan at xmas where fibroids were shown and a thin wall I'll just see what hysteroscopy throws up in 2 week cos last time they couldn't biopsy cos womb was thin etc although he said it looked fine but like you I want to know why it's gone thick and why I'm in pain and it's awful when life throws things like this at you cos you automatically think crap my kids still need me mine are 22 and 25  bless ya it's awful worrying and I had to laugh when you use the word out (owt ) cos that's how I speak x

  • Hi all,

     

    I am currently waiting for the results of my biopsy... was taken 2 weeks today. I spoke to my consultants secretary yesterday and she said they weren't back as yet :( It's really hard to know whether that's a good thing or a bad thing. As everyone has said, it's the waiting that is the hardest part. 

    I am 32, have no children and my consultant is convinced my irregular periods and cycle are down to my weight. Have already started losing weight as he said whatever the outcome that will help going forward. I am really trying to stay positive but it's getting harder the longer I have to wait! 
    Thanks for taking the time to read! Xx

  • Hi , hope all goes well with the biopsy and the waiting must be awful  was it an in office biopsy or hysteroscopy with biopsy  you had and good luck with the weightloss journey x

  • Hi, thank you for taking the time to reply... it was an in the office biopsy. I had an internal ultrasound the week before and then a smear and swabs the day after the ultrasound! 

  • Hi , I'm sure you will hear soon i know some hospitals write your results in the letter they send a copy to yourself and gp and usually phone if it's a positive result so fingers crossed this is the case with you but the waiting must be awful for you was the ultrasound ok x

  • Ultrasound was uncomfortable, she couldn't find my left ovary and she also told me she hadn't seen anything horribly horrendous. She believe the heavy bleeding was most likely an early miscarriage. I thought that was such an odd phrase. GP went through what was seen the next day... my endometrial lining was thick, I believe 15-16mm and no sign of my left ovary. At this point she said it would be a referral to Gyne and it was after smear, swabs and exam that she said it would be under the 2 week referral. It wasn't until I then saw the consultant who then told me they may have seen cysts at the ultrasound but they weren't sure. 

  • Hello I've just come across your post hope you don't mind me asking but have you had your results yet ! I'm 37 and waiting on what's next after my scan on Thursday came up as thick womb lining and possibly 10mm polyp terrified 

  • I'm unsure of my lining thickness I don't remember them telling me just 10 mm polyp possibly, on Thursdays scan , just waiting on what's next now not been told what's next just probably have to get it tested , hope you get sorted soon sounds like it's been a while for you , i can't cope with this horrible feeling on fear and anxiety! 

Reply
  • I'm unsure of my lining thickness I don't remember them telling me just 10 mm polyp possibly, on Thursdays scan , just waiting on what's next now not been told what's next just probably have to get it tested , hope you get sorted soon sounds like it's been a while for you , i can't cope with this horrible feeling on fear and anxiety! 

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