Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Hi there had Scans today with needle in arm for dye etc.  Just another wait now for more results and treatment plan . How are u ? X

Awwww sounds like u had a full day,I'm still waiting anxiously for postman to deliver my results

Aww remind we where abouts u are in this journey hun ? X

I had a biopsy 8 days ago and waiting results, had thickening 10mm which radiologist thought was a polyp, when consultant had a look inside he said no polyp there, but needed to take biopsy

Hi again i think you will hear in next couple of days mine took about 10 days.  Did they say you have to go bk to see the consultant again ? i now have another wait for my MRI results x

Yes he said I would need to see him and appointment will be sent to me

Well that’s good I have been speaking to someone who’s consultant called them with results. My hospital said they don’t do tht. X

Hi there may I ask wht stage urcancer was please ? X

Hi there, hope you are well.  I am new to this site and came across your post and wonder if you can share your experiences of radiotherapy/brachytherapy. I had radical hysterectomy for womb cancer in Jan 2020, one session of chemo and consultant is suggesting 25 radiotherapy and 3 brachytherapy sessions.  The side effects concern me and wonder how you getting on!  Any info / advice would be appreciated.  Thank you so much.

Hi hope your doing ok can i ask what your symtoms were I had a hysteroscopy in Dec 19 due to post menopausal bleed struggled doing the test because of tilted cervix he just said I've seen enough womb is atrophic but dry and cracked due to menopause no biopsie was taken   and a benign polp removed fast track to now and I'm in excruciating pelvic pain radiating down my leg and round lower back I cant even rest my hand over one specific area lower abdomen I have an urgency to wee all the time but no bleeding I've had a repeat transvaginal which as shown endometrial thickening 12.5mm with trace of fluid and a very small 1cm cyst in right ovary I'm petrified and thinking the worse doc wants a repeat hysteroscopy but the pain last time was horrific 

Hi hope your doing ok can i ask what your symtoms were I had a hysteroscopy in Dec 19 due to post menopausal bleed struggled doing the test because of tilted cervix he just said I've seen enough womb is atrophic but dry and cracked due to menopause no biopsie was taken   and a benign polp removed fast track to now and I'm in excruciating pelvic pain radiating down my leg and round lower back I cant even rest my hand over one specific area lower abdomen I have an urgency to wee all the time but no bleeding I've had a repeat transvaginal which as shown endometrial thickening 12.5mm with trace of fluid and a very small 1cm cyst in right ovary I'm petrified and thinking the worse doc wants a repeat hysteroscopy but the pain last time was horrific 

Hi Marth, hope you are ok, its not east waiting for results, but keeping busy does help.  To be honest apart from very severe bleeding and fatigue/breathlessness I had no other symptoms.  I was prescribed iron tablets for anaemia which was why doc said I was tired and breathless.  My bleeding continued for 2-3 years and I was told it was due to perimenopause.  After seeing yet another doctor I had an ultrasound and transvaginal ultrasound. Radiographer said she was referring me fora hysteroscopy as she could see fibroids and polyps in my womb and my womb lining was thickened.  I was on the 2 week pathway but I waited 17 weeks for the hysteroscopy appoibtment then 7 weeks for the biopsy result.  I was called in for my results to be told I had endometrial cancer.  But can I just say that fibroids/polyps/thickening does not necessarily mean cancer.  But even if it does, they will come up with a treatment plan and as long as you take each part step by step, you can do it.  Treatments have come a long way in recent years.  I was diagnosed Dec 2019, had my op endJan 2020 and finished my treatment this week.  I know its difficult but try not to worry.  I am here if you have any more questions or just want to chat. Take care. x

Thankyou for your reply and glad your treatment as gone well for you   I had fibroids last yr but they have gone due to menopause and the polyp was removed off my cervix which was benign it's the pain I'm in everyday for the last 2 week that's worrying me I've always had a dullache almost like a constant urine infection for 4 month  but last week I had the dog leant against my pelvic bone and pelvic area (hes a small jack russell)  and I've been in terrible pain had no bleeding just a very wate like clear discharge  I've been checked for infection etc I'll just have to see what the next plan is just hope i get to see a gynae face   to face but dont hold much hope during covid thankyou so much for replying and wish you well x

Hi Marth, you say your womb is atrophic. Im not a doctor but that in itself can cause urinary problems and if it has been like this for a while that could be causing your symptoms. Put your trust in your doctor and if you need more tests or investigations then there will be a reason.  They are covering all bases.  Here if you need to talk. x

Hysteroscopy results from Dec mentioned atrophic womb and now transvaginal saying 12.5mm thickness are these 2 separate things or as my womb gone from one extreme to the other I'm getting confused with it all and googling all sorts 

Hi Marth, I wish I could help but I'm really not sure but I do know that atrophy of the womb/vagina is common in post menopusal women due to hormone changes and these changes can also affect thickness of womb lining.  Hope you get an appointment soon. x

Thankyou for your help x