Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

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  • Hello!

    thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

     

    I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

  • hi laney

     

    Appreciate your reply

    I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

     

  • Hi Niki.  Ty so much for replying after having bleeding last year and tests I just had polyps and a D and C op done.  This yr I had the same bleeding agn but not as heavy and convinced myself all was ok.  So having the diagnosis has knocked me for six and I Am on tranquillisers to cope.  I am having a mri and ct scan on Monday nxt week then they will plan whichhospital I will go to etc x

  • Hi Lesley

    Sorry to hear you have already had the diagnosis. However look at this positively. You are being followed up early. You were checked last year and had the all clear but it's only this year they have identified the cancer. This means it hasnt been lurking around for many years , hopefully it will be in the early stages and simply require a hysterectomy. Or whatever the consultant thinks is necessary. 

    Did they insert the mirena coil last year? When i went  for my biopsy they inserted the mirena and said it would help with the thickening of the womb.

    Please Lesley dont make yourself ill with the worry. Trearment has progressed so much in the past 15 years and we have earlier diagnosis which all good.

    All the best Lesley xx

  • Hi Nicki

    Ty so much again for ur reply ..no I wasnt offered the coil maybe because of my age I'm 60 !  It's made me feel a bit better hearing ur news and I am trying to be more positive.  Have u made many friends on here as ur the only one that answered me.  I live in Hertfordshire what about u ? X

     

  • hi

     

     i had an endometrial cancer diagnosis in april this year,  had bleeding / offensive smell, had ultrasound & hysteroscopy which found a large polyp and thickened lining,  had laproscopic hysterectomy surgery  a few weeks later in may and am now  passed cancer free - the surgery is all that was needed thankfully.    I only had an overnite stay  and basic pain relief for a week or so. Mine was very early stage 1a , I am 47 years old,  so the surgery put me straight into menopause.  My  gynae consultant & support team at my local hospital  have been , and still are, fantastic

     

    Have a read through everyones different experiences, as each is different , depending on individual circumstances.  Earlier in the year , on here ,i did a quick re-cap of `my` experience.

     

    Everyone on here has been SO SUPPORTIVE.

     

    You know your`e own body, don`t be fobbed off be ANYONE

     

    if you want to message me privately on here thats fine

    take care

     

    x

     

  • Ty so much for your reply I have fr req u I live in Hertfordshire and am just 60 yrs old. I was diagnosed on Monday and on tranquilizers to cope having an MRI and Ct on Monday x

  • Hiya, I'm new to this site and have posted but had no replies, sorry to jump on your post, 

    I'm currently waiting for biopsy results, I'm 46, had abnormal heavy periods (always been light) periods a bit irregular, my gp said it was start of menopause, 

    Was finally referred for internal scan, the radiologist said he saw a polyp and measured at 10mm, referred for hysteroscopy,  the gyny consultant said it wasnt a polyp but needed to take biopsy, I asked him what he saw and he was very evasive and said I'd get results through post in 2 -3 weeks?

  • hi

     

    tks for replying to my post

    the waiting for results is scary, cos you just don`t know whats happening, 

    the hysteroscopy is not painful , just a little uncomfortable, but  nurses are there to re-assure  /hand-hold etc.  They could not remove my polyp as it was too big, but did a lining biopsy which felt like a little cramp for a few seconds.

    It really helps if you can get someone to go with you to the appointment for support.

    I hope all goes well for you

    if you want to talk privately off here, just `friend request` me

    best wishes

     

    x

     

     

     

  • Hiya

     

    I had the hysteroscopy last Monday, expecting to have polyp removed, the radiologist said polyp and my pre appointment with gyny said polyp, 

    But during hysteroscopy he said theres no polyp but needs to take biopsy from the same area? I asked him " if it's not a polyp then what is it"

    He was very evasive with me and just said, biopsy results will be direct to my home in 2-3 weeks

    If something showed on vaginal scan yet consultant said it's not a polyp, why couldn't he tell me what it was?

  • Hi Abbie sorry to jump on your post but I’m going through same how are u now ? X

  • Hi there I’m at the exact same stage as you have u had ur MRI yet ? X

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