Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

Parents
  • Hello!

    thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

     

    I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

  • hi laney

     

    Appreciate your reply

    I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

     

  • Hi Nikki

    i am awaiting a scan after a polyp removal. I’m told the polyp was late stage cancerous stage 3 but ovaries and endometrium were fine. 

    Hysterectomy was mentioned. So I’m at the waiting stage for the scan. Now experiencing what feels like severe indigestion which could be anxiety or another symptom?

    has anyone experienced cancerous polyp? I would welcome any advice and support 

  • Hi,

     

    i had my last period in march 2018 and then a few pink shows and period pain 10 days ago which lasted 2 days, the bleeding was minimal and all stopped by Wednesday, I did go to see my gp and had a vaginal scan today and also seen the specialist after. She told me that a normal thickness should be anything between 4 and 5mm but mine is 5.8mm so she did a biopsy, I am worried but on reading some of your stories on here some of you have thicknesses of about 16mm, surely 5.8mm can't be that bad or are they just being over cautious. 

     

    Any thoughts will be appreciated xx

  • Hi Nikki my name is Lesley and I’m at the same stage as you I’m waiting for an MRI next week I am not coping well with the not knowing and have gt myself in an anxious state.  How are u coping xx

  • Hi Lesley

    I know exactly how you are feeling. I went through an agonising wait with a roller coaster of emotions. I  ouldnt discuss with anyone my emotions as everyone was just so busy. I found this forum very supportive knowing other people were going through a similar journey as me

     My journey started on the 27th of September. I had a gruelling 2 months of tests and waiting and then further tests. I am happy to say after all the trauma the results have been confimed as clear.

     Looking back i am glad i had everything checked and all the consultants are doing, is eliminating various factors which may be causing the symtons. My only dissappointment is how it was all managed by my GP and the length of time to report the result. I only found out my result last week because i was doing all the chasing. They had the results from 2 weeks ago but no one could report them to me as the consultant was on vacation. This is quite bad because it is us patients who are anxiously waiting. If the consultant is on holiday and his secretary is not in a position to report the results then surely there should be a back up person. Beside this, the NHS are doing a great job. They explained everything clearly and were surprised the way my GP hadled every thing.

    Did you have your ultrasound and then get referred for an mri, or was it after your hysteroscopy? Did you get your hysteroscopy results. I was told it take 2 to 4 weeks for hysteroscopy result.

    I met 2 lovey women while i was in the hospital who had  been fast tracked and had a hysterectomy, fortuneately their cancer was in the early stages and because they were fast tracked it had been removed. 

     Because i have been in the postion you are in, i cant say to you " dont worry" because we will worry.  I had planned the whole process in my mind   i had planned what treatment i would require, how long i may need to be off work etc etc

    Please reach out to  me if you need a chat  xx

     

     

  • Hi Sally

    Not sure if you are still reading posts on this forum. Just to update you, i finally got my results last week after constantly chasing everyone  i have the all clear .however i have enetered another battle where i would like a smear test as i am still spotting but GP is refusing as it can only be done either every 3 years below the age of 50 and every 5 years after 50. Let's see.  

     

    I am so happy to have discovered this platform. It was a huge support to me during my journey. The support enabled me to ask questions and know that there are other women feeling the way i did and its ok im not alone.

    Remember to keep following up with your GP or consultants.

    Good luck everyone xx

  • Hi Niki.  Ty so much for replying after having bleeding last year and tests I just had polyps and a D and C op done.  This yr I had the same bleeding agn but not as heavy and convinced myself all was ok.  So having the diagnosis has knocked me for six and I Am on tranquillisers to cope.  I am having a mri and ct scan on Monday nxt week then they will plan whichhospital I will go to etc x

  • Hi Lesley

    Sorry to hear you have already had the diagnosis. However look at this positively. You are being followed up early. You were checked last year and had the all clear but it's only this year they have identified the cancer. This means it hasnt been lurking around for many years , hopefully it will be in the early stages and simply require a hysterectomy. Or whatever the consultant thinks is necessary. 

    Did they insert the mirena coil last year? When i went  for my biopsy they inserted the mirena and said it would help with the thickening of the womb.

    Please Lesley dont make yourself ill with the worry. Trearment has progressed so much in the past 15 years and we have earlier diagnosis which all good.

    All the best Lesley xx

  • Hi Nicki

    Ty so much again for ur reply ..no I wasnt offered the coil maybe because of my age I'm 60 !  It's made me feel a bit better hearing ur news and I am trying to be more positive.  Have u made many friends on here as ur the only one that answered me.  I live in Hertfordshire what about u ? X

     

  • hi

     

     i had an endometrial cancer diagnosis in april this year,  had bleeding / offensive smell, had ultrasound & hysteroscopy which found a large polyp and thickened lining,  had laproscopic hysterectomy surgery  a few weeks later in may and am now  passed cancer free - the surgery is all that was needed thankfully.    I only had an overnite stay  and basic pain relief for a week or so. Mine was very early stage 1a , I am 47 years old,  so the surgery put me straight into menopause.  My  gynae consultant & support team at my local hospital  have been , and still are, fantastic

     

    Have a read through everyones different experiences, as each is different , depending on individual circumstances.  Earlier in the year , on here ,i did a quick re-cap of `my` experience.

     

    Everyone on here has been SO SUPPORTIVE.

     

    You know your`e own body, don`t be fobbed off be ANYONE

     

    if you want to message me privately on here thats fine

    take care

     

    x

     

  • Ty so much for your reply I have fr req u I live in Hertfordshire and am just 60 yrs old. I was diagnosed on Monday and on tranquilizers to cope having an MRI and Ct on Monday x

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