Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

hi

my womb lining biopsy did not hurt, just slightly uncomfortable, like a crampy feeling and a slight tug of the lining, told to `cough` when took sample.

hope all goes ok for you

x

Hi Peapaluka

I had my biopsy 3 weeks ago. They had first tried taking a sample without anasthetic and i did feel pain during the procedure but it was afterwards when i had a lot of cramping pain. Unfortuneately they didnt take enough sample so i had to endure the same procedure a week later. They wanted to remove a polyp and insert the mirena. The consultant said i needed an anasthetic so i had a choice of an epidural or general anasthetic. I opted for the epidural. There was very little pain. Procedure lasted about 20 minutes. It was done in an operating theatre. You get to see everything on the monitor. They removed the polyp and took sample of the womb lining and then inserted the mirena coil. I did not suffer the cramping pain afterwards. I am still bleeding/spotting 3 weeks later.

I was fast tracked because my ultrasound report showed i had thickening of the womb. The lining was 16mm. But, when i was in the operating room i asked the consultant if the liningvwas unusually thick and she said no the lining wasnt too thick. It was only thick where the polyp was.

Please feel free to ask me any questions and dont fear the procedure because its a means of identifying what the problem is. If anything is identified then a plan can be put into place for treatment.

I wish everyone all the best who are on this journey.

Nikki x

Bless you thank you for replying, that gives me hope. Thank you so much, its nice to read all the people who understand your fears etc. Thank you again

I have posted previously as I was post op following a hysterectomy for endometrial cancer on 8th Oct and awaiting histology reports to see if further treatment, eg radiotherapy was required..

I have a six week consultant appointment on 18th Nov but did not want to wait so long for the result. I e mailed my cancer nurse at the hospital to request that she let me know ASAP if the result came through.

They have a multi disciplinary meeting with relevant people to discuss each case and decide on the way forward once the result is through.

The specialist nurse phoned yesterday to say that they had managed to eradicate the cancer with the op alone and I need no further treatment. Massive relief.

if you are waiting for a result phone or e mail to chase it up.

Also tell all women friends and family to go to their GP for any changes in their body however small, 

I had the tiniest whisper of staining on my pants, post menopausal. It would have been so easy to ignore or to "wait and see" but I went straight away and caught it at what has been finally diagnosed as stage 1, grade 1. It was caught so as soon as it possibly could have been.

We all have family committments, work responsibilities, plans or head in the sand attitudes that make us put things off. I had my daughters wedding BUT putting off checking potential cancer risks the disease progressing and being much worse in the long run.

I have had a lucky escape and look forwatd to continuing in good health for many years to come.

Hi Nikki

i am awaiting a scan after a polyp removal. I’m told the polyp was late stage cancerous stage 3 but ovaries and endometrium were fine. 

Hysterectomy was mentioned. So I’m at the waiting stage for the scan. Now experiencing what feels like severe indigestion which could be anxiety or another symptom?

has anyone experienced cancerous polyp? I would welcome any advice and support 

Hi,

i had my last period in march 2018 and then a few pink shows and period pain 10 days ago which lasted 2 days, the bleeding was minimal and all stopped by Wednesday, I did go to see my gp and had a vaginal scan today and also seen the specialist after. She told me that a normal thickness should be anything between 4 and 5mm but mine is 5.8mm so she did a biopsy, I am worried but on reading some of your stories on here some of you have thicknesses of about 16mm, surely 5.8mm can't be that bad or are they just being over cautious. 

Any thoughts will be appreciated xx

Hi Nikki my name is Lesley and I’m at the same stage as you I’m waiting for an MRI next week I am not coping well with the not knowing and have gt myself in an anxious state.  How are u coping xx

Hi Lesley

I know exactly how you are feeling. I went through an agonising wait with a roller coaster of emotions. I  ouldnt discuss with anyone my emotions as everyone was just so busy. I found this forum very supportive knowing other people were going through a similar journey as me

 My journey started on the 27th of September. I had a gruelling 2 months of tests and waiting and then further tests. I am happy to say after all the trauma the results have been confimed as clear.

 Looking back i am glad i had everything checked and all the consultants are doing, is eliminating various factors which may be causing the symtons. My only dissappointment is how it was all managed by my GP and the length of time to report the result. I only found out my result last week because i was doing all the chasing. They had the results from 2 weeks ago but no one could report them to me as the consultant was on vacation. This is quite bad because it is us patients who are anxiously waiting. If the consultant is on holiday and his secretary is not in a position to report the results then surely there should be a back up person. Beside this, the NHS are doing a great job. They explained everything clearly and were surprised the way my GP hadled every thing.

Did you have your ultrasound and then get referred for an mri, or was it after your hysteroscopy? Did you get your hysteroscopy results. I was told it take 2 to 4 weeks for hysteroscopy result.

I met 2 lovey women while i was in the hospital who had  been fast tracked and had a hysterectomy, fortuneately their cancer was in the early stages and because they were fast tracked it had been removed. 

 Because i have been in the postion you are in, i cant say to you " dont worry" because we will worry.  I had planned the whole process in my mind   i had planned what treatment i would require, how long i may need to be off work etc etc

Please reach out to  me if you need a chat  xx

Hi Sally

Not sure if you are still reading posts on this forum. Just to update you, i finally got my results last week after constantly chasing everyone  i have the all clear .however i have enetered another battle where i would like a smear test as i am still spotting but GP is refusing as it can only be done either every 3 years below the age of 50 and every 5 years after 50. Let's see.  

I am so happy to have discovered this platform. It was a huge support to me during my journey. The support enabled me to ask questions and know that there are other women feeling the way i did and its ok im not alone.

Remember to keep following up with your GP or consultants.

Good luck everyone xx

Hi Niki.  Ty so much for replying after having bleeding last year and tests I just had polyps and a D and C op done.  This yr I had the same bleeding agn but not as heavy and convinced myself all was ok.  So having the diagnosis has knocked me for six and I Am on tranquillisers to cope.  I am having a mri and ct scan on Monday nxt week then they will plan whichhospital I will go to etc x

Hi Niki.  Ty so much for replying after having bleeding last year and tests I just had polyps and a D and C op done.  This yr I had the same bleeding agn but not as heavy and convinced myself all was ok.  So having the diagnosis has knocked me for six and I Am on tranquillisers to cope.  I am having a mri and ct scan on Monday nxt week then they will plan whichhospital I will go to etc x

Hi Lesley

Sorry to hear you have already had the diagnosis. However look at this positively. You are being followed up early. You were checked last year and had the all clear but it's only this year they have identified the cancer. This means it hasnt been lurking around for many years , hopefully it will be in the early stages and simply require a hysterectomy. Or whatever the consultant thinks is necessary. 

Did they insert the mirena coil last year? When i went  for my biopsy they inserted the mirena and said it would help with the thickening of the womb.

Please Lesley dont make yourself ill with the worry. Trearment has progressed so much in the past 15 years and we have earlier diagnosis which all good.

All the best Lesley xx

Hi Nicki

Ty so much again for ur reply ..no I wasnt offered the coil maybe because of my age I'm 60 !  It's made me feel a bit better hearing ur news and I am trying to be more positive.  Have u made many friends on here as ur the only one that answered me.  I live in Hertfordshire what about u ? X

hi

 i had an endometrial cancer diagnosis in april this year,  had bleeding / offensive smell, had ultrasound & hysteroscopy which found a large polyp and thickened lining,  had laproscopic hysterectomy surgery  a few weeks later in may and am now  passed cancer free - the surgery is all that was needed thankfully.    I only had an overnite stay  and basic pain relief for a week or so. Mine was very early stage 1a , I am 47 years old,  so the surgery put me straight into menopause.  My  gynae consultant & support team at my local hospital  have been , and still are, fantastic

Have a read through everyones different experiences, as each is different , depending on individual circumstances.  Earlier in the year , on here ,i did a quick re-cap of `my` experience.

Everyone on here has been SO SUPPORTIVE.

You know your`e own body, don`t be fobbed off be ANYONE

if you want to message me privately on here thats fine

take care

x

Ty so much for your reply I have fr req u I live in Hertfordshire and am just 60 yrs old. I was diagnosed on Monday and on tranquilizers to cope having an MRI and Ct on Monday x

Hiya, I'm new to this site and have posted but had no replies, sorry to jump on your post, 

I'm currently waiting for biopsy results, I'm 46, had abnormal heavy periods (always been light) periods a bit irregular, my gp said it was start of menopause, 

Was finally referred for internal scan, the radiologist said he saw a polyp and measured at 10mm, referred for hysteroscopy,  the gyny consultant said it wasnt a polyp but needed to take biopsy, I asked him what he saw and he was very evasive and said I'd get results through post in 2 -3 weeks?

hi

tks for replying to my post

the waiting for results is scary, cos you just don`t know whats happening, 

the hysteroscopy is not painful , just a little uncomfortable, but  nurses are there to re-assure  /hand-hold etc.  They could not remove my polyp as it was too big, but did a lining biopsy which felt like a little cramp for a few seconds.

It really helps if you can get someone to go with you to the appointment for support.

I hope all goes well for you

if you want to talk privately off here, just `friend request` me

best wishes

x

Hiya

I had the hysteroscopy last Monday, expecting to have polyp removed, the radiologist said polyp and my pre appointment with gyny said polyp, 

But during hysteroscopy he said theres no polyp but needs to take biopsy from the same area? I asked him " if it's not a polyp then what is it"

He was very evasive with me and just said, biopsy results will be direct to my home in 2-3 weeks

If something showed on vaginal scan yet consultant said it's not a polyp, why couldn't he tell me what it was?

Hi there I’m at the exact same stage as you have u had ur MRI yet ? X

I'm waiting for biopsy results so not been offered anything else, I'm worried like all on here, the waiting is agonising, I'm just *** off that the gyny consultant said my vaginal scan showed a polyp 10mm yet during hysteroscopy he said theres no polyp but I need a biopsy? I kept asking him, what is it then if it's not a polyp, he was almost ignoring me and just said that I'd get results through the post.

I suffer with anxiety anyway so some sort of answer from him would have been nice

Hi there did he mention anything about the lining being thickened I had the same last ur and had biopsies which all came bk ok try not to worry. Of course I've not been so lucky this time ! X