Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

  • hi Sm24

     

    the hysteroscopy was a little uncomfortable, but not painful, there were staff there to hold my hand , reassure etc to get you through it, if it hurts just let them know.

    Hope all goes ok, i  had very early stage 1a, earliest detected,  i was lucky enough not to have needed anything other than surgery for a hysterectomy.  

     

    take care & best wishes

     

  • Hi snoopy

    Thank you for your reply

    That's comforting to hear, as an fm sufferer you'd think I'd be used to pain but I'm actually a bit of a baby lol

    I'm obviously hoping that the tests come back negative but I'm also prepared for the official diagnosis and hopefully if it is that they've caught it early

    Thanks again 

  • Hi sm24

    Similar to yourself, i was fast tracked within 2 weeks of having a scan with possible endometrial cancer. I had a hysteroscopy 2 weeks ago where she saw a polyp and took a biopsy sample. She was unable to remove the polyp and the biopsy sample was not sufficient. So last friday i had another hysteroscopy, the polyp was removed, uterine biopsy taken and mirena coil fitted. I had the option of having a GA or epidural. I really wanted nothing but it was in my best interest to have some sort of anasthetic due to size and location of polyp. The staff were excellent nurses really did look after me and the process was full of mixed emotions but it definetely was not painful. Please dont worry too much about the process its best to have it done and then know what the next plan of action is. The process wasnt too long. 1st hysteroscopy was only 10 mins and the one under epidural was probably around 30 minutes. Everything can be viewed on the monitor  if you wish. You are offered pain relief as well neurofen or paracetamol. I am on co codamol anyway so thats what i took before going into the theatre.

    Please feel free to ask any questions. For me its the waiting thats more agonising

    Best of Luck

    Nikki

     

     

  • Hi Nikki 

    Thanks for the reply 

    That's reassuring to hear, how did they get in touch with you was it by phone or letter? I'm walking round with my phone glued to my hand scared in case I miss a call 

    I hope I'm not waiting too long as I agree it's awful, just want to know when they're going to be and then I can mentally prepare for it

    Thanks again 

    Sally 

  • Hi sally

    After having my scan i went to the GP for the results, thats when she said possible cancer and then  booked a hystersocopy through the GP system whilst i was sat there. It was fast tracked so i was booked in witihin 7 days. When i had the 1st hysteroscopy i must have been squeezed into a busy clinic because the consultant was jus rushing me, took a sample and confirmed there was a polyp.  She said the hospital would contact me for the 2nd hysteroscopy. 

    A week later i got a phone call asking to come in for a pre op assesment for last wednesday and the 2nd hysteroscopy was done friday so within 2 weeks and arranged over the phone.

    Yes like you i was glued to the phone. As you can see i am still glued to the phone because i am awaiting my results. No idea how they will feed back to me. Im at work but i just cannot focus, just waiting for the results. Can't even focus on half term activities. I had next week booked off for half term but walking around in a daze at the moment.

    Luv nikki xx

  • Nikki I will keep everything crossed for you, it's no good coming out with all the usual platitudes of try not to worry as that's pointless, i just hope you're not waiting too long

    I've just received a letter with a password saying if the clinic haven't rung me by tomorrow I have to ring the clinic, oh well looks like things are moving fast, which is good but scary 

    I'm glad I found this forum, it has helped 

    Big hug

    Sally x

  • Hi Sally

    Thankyou so much. Yes its good to chat to others in the same boat. When i look around me, everyone is so busy in their own world with their own issues. Where as i feel as though i'm in limbo, do not know which direction my life will be going in. 

    A friend of mine said her biopsy took 10 working days, and I'm only on day 3 at the moment...........gosh a long wait ahead of me.

    5 days after the hysteroscopy i can say i am still experiencing occasional pain in my tummy and still bleeding lightly, which should settle down in the coming days. 

    I hope your apppointment comes through today, and if it dosn't please remember to chase them.

     All the best.

    Nikki xx

  • Hi Nikki 

    Got my appointment for a week on Thurs, would they be taking the biopsy on that appointment do you think?

    Oh I'm dreading the wait for the results, it's going to feel like forever! 

    I've only told my immediate family but I feel that I'm the only one that's keeping positive about the tests coming back negative, they're all thinking it's going to be bad news and it's really getting on my nerves! 

    Hope you're wait goes quickly 

    Sally xx

  • Hi Sally

    That's good your appointment is sorted now. Did they say over the phone if they were going to do a hysteroscopy?  I am not quite sure how it works. I was referred by the GP straight for the hysteroscopy which is when they take a biopsy as well, so i'm presuming it should be the same for you, but not 100% sorry. Your GP or the person booking the appointment would have confirmed with you what the appointment is for.  Either way not long left now. I hope it all goes smoothly for you. Please stay positive, that's the only thing that will keep you going each day. I had a very low day yesterday, i created my own future with  "if this" and "if that" not very good thoughts at all. So Today i i was off work and thought no way am i going to let this ruin my present day. What ever it is i will deal with it. Sod everything im going to enjoy my time. So off i went picked up my son and my nephews from school and arranged a sleepover. They have kept me busy today and hoping to have fun with them all weekend.

    My thoughts are with you and i hope it all goes well for you on Thursday. Keep me posted please. My results should hopefully be out end of next week. Even if the results are not what we desire, at least we know what the root cause is and deal with the issue before it gets worse.

    Good luck and thinking of you.

     

    Nikki xx

  • take care all

    especially thinking of those of you awaiting your tests / results

     

    xx