Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Hi everyone

Thank you Snoopy and Tinkabelle.

I have been going to the GP since last year and each time my symtoms were dismissed as menopausal.. I agree please listen to you bodies. 

Well today was the day of my hysteroscopy. I am still in pain and bleeding. Biopsy was taken and she also found a polyp.  Unfortunately she couldnt remove the polyp today as she did not have the equipment.  Si being fast tracked for removal of the polyp within 2 weeks.  Consultant said i would need a GA or spinal anesthetic for the procedure.

The waiting continues, endometrial biopsy done today and then will need to wait for the polyp biopsy.  This is the most angonising bit of the journey.

I am so grateful for these forums. I am seen as the solid supportive person who is always there for everyone else. I am always picking up and supporting others, i cannot break down and talk to them. They all have so much on their plate. :-(

I wish everyone best of luck  on this difficult  journey xx

Hi Niki26

I agree the waiting is the worst part along with the feeling that you’ve somehow missed the point or not being told everything? (In my experience anyway, but then that’s me!) I too am the stalwart of the family and my stance was that whatever the outcome I had to be positive for them. I took some time for me - I work fulltime in quite a high pressured job and am the main breadwinner (just for added pressure :confused: ) so have started to exercise more and eat more healthily so I could get through this. Though at the time I didn’t have anyone else to talk to I felt that to get through this I had to be strong mentally and physically. So be kind to yourself, have a plan and you will get through this and don’t forget that you have a strong team that are working for you in the NHS and that they deal with this every day. 

All the best for good results :) 

After the nurse found a polyp 2 months ago I ended up on the 2 week pathway, where they also found cysts etc.  I never had the GA hysteroscopy and polypectomy I was due to have in the end, the recommendation changed to a full hysterectomy which may well  be by open.  Then I get the biopsy results and take it from there.  I am terrified of having a major op but the last 2 months has been so slow and stressful, and I still don't know if I actually have a malignancy or not, I am hoping it will reduce risk of going through this again as I'm 50 and if they do the ovary removal which was originally the plan, and then find endometrial biopsy not clear I will have to go through it all again!

Hi Snoopy47

I have some of the symptoms you described in your post particularly PCOS, being overweight together with the rectum pain, so am interested if your hysterectomy improved any of these. 

I appreciate it if this is too public arena but would be genuinely interested and if you would rather reply privately that would be good.

 Thanks x

Hi everyone

Thankyou for everyone's feedback

What a whirlwind of emotions. So i have a date for my polpectomym its this Friday 18th of october whch is 2 weeks from the date i had my hyteroscopy.   I phomed up today if they had the result of biopsy, only to be told that that the sample they took during the hysteroscopy was inadequate and now they will take another sample when they remove the poly and put in the mirena. What i cannot understand is that they are adamant that i have all this done under GA. I dont want a GA.  Can they force me to go under GA? I had a polyp removed 5 years ago and i didnt have anything. She said well things have changed since then and we now do them under GA  i have my pre op assesment on wednesday and i will air my views of not wanting a GA.

Waiting game continues!!!!!

I have had remains of one removed under GA as they couldn't see the starting point.  They may have reason, but it's so hard when they don't have time to explain, I ralise hey spend a lot of the discussing and reaching conclusions without us involved, so yes, you have to keep asking qu and persevere  until clear on reasons,  I mean it's us that live with consequences. 

Thanks daisy. 

How long were you under GA? Did you get to go home the same day. Yes i do understand they may have their reasons but its good to be informed why they are doing things the way they want to  i have so much fear of GA, my mother had difficulty coming round from a small endoscopy procedure when the consultant gave her a GA. So i have my personal reservations against a GA.

I hope you are feeling better after your procedure. I guess we have to wait around 2 weeks for the biopsy results.

Good luckxx

Hi ladies I'd already posted in general before I found this thread

I had scan on Fri afternoon, told I needed a gynaecology referral, was rung by gp as I arrived home asking me to go in on Monday

Went in today to be told they think I have endometrial cancer and am on a 2wk urgent referral for tests. I'm shocked, numb, and I've convinced myself they're wrong and it will all be ok

Reading your experiences has really helped me, I just wondered if the procedures were painful 

hi Sm24

the hysteroscopy was a little uncomfortable, but not painful, there were staff there to hold my hand , reassure etc to get you through it, if it hurts just let them know.

Hope all goes ok, i  had very early stage 1a, earliest detected,  i was lucky enough not to have needed anything other than surgery for a hysterectomy.  

take care & best wishes

Hi snoopy

Thank you for your reply

That's comforting to hear, as an fm sufferer you'd think I'd be used to pain but I'm actually a bit of a baby lol

I'm obviously hoping that the tests come back negative but I'm also prepared for the official diagnosis and hopefully if it is that they've caught it early

Thanks again 

Hi snoopy

Thank you for your reply

That's comforting to hear, as an fm sufferer you'd think I'd be used to pain but I'm actually a bit of a baby lol

I'm obviously hoping that the tests come back negative but I'm also prepared for the official diagnosis and hopefully if it is that they've caught it early

Thanks again