Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

I’ve sent you a friend request if you’d rather talk through private message. 

Sundial

sorry Subdial

ive had a break from the internet for a week, I don’t have a friend request. Hope you’re well xx 

hi Laney 

how you doing? Been thinking about you. Did you get your results? Xx 

hello - after hysteroscopy two weeks ago they decided to take biopsy under anaesthetic. I go into hospital this Friday (3rd) for that procedure. The wait goes on and I was gutted they could not get what they needed two weeks ago - just longer to wait. Apparently they did take a polyp from cervix and that was benign so that’s a positive but my GP said she could have done that at a smear test. Anyway - not long now. Thank you for asking and hope you are well. Will update when I get an update :-)

xx

I thought I would reply, as I’m waiting for a second scan, I’ve had some spotting on and off, then bleeding between periods. I put it down to stress, and then had scan and told one side of womb lining is very thick. I was over 2 weeks late with period which is not normal for me. They want to rescan and have one on the 9th May. I’m so worried. I lost my mum who is 64 7 months ago to uterine cancer, and then my dad died 7 weeks ago at 67. So stress has been full on so that’s what I thought. It’s just the not knowing. I’ve been having lower bk pain, niggly pains on and off in pelvic area, not sure if that’s just me over worrying though x I’m 41 this year. 

so sorry to read of your situation with losing parents. It is the waiting and unknowns that eat away at my brain and I have imagined all sorts of pains etc. I lost my father in Feb and then had a period. But I am post menopausal so that shouldn’t have happened but I put it down to stress and just “mentioned” it at GP appt for a persistent water infection - and that’s when it all kicked off. All womb lining is too thick and specialist talks about a “mass” in the womb - that worries me. However I know it could be other things too and that I’m on cancer pathway as part of NHS protocol. I hope your scan is positive - ask all the questions you can think of as that’s what I didn’t do and wish I had. 

X

hi ladies

following on:-  had my pre-op assessment today and was told it would be a full hysterectomy - i am pre-menopausal ay 47, thought i was just having womb removal, but now will be womb, ovaries & fallopian tubes.  I will go straight to menopause.  Polyp too big to remove in out-patient, womb lining thickened.  Laprascopic / key hole surgery on 2nd may, may be able to come home same day /  overnight if needed.  Best wishes ladies , x

Sorry for your losses. I know it’s easier said than done but try not to worry, I’ve tried to put mine to the back of my mind. I’m thinking I can stress out for the next couple of weeks or try and be calm about it but the outcome will be what it is, so I’m not stressing. Just kind of happy that it’s being looked into and I’m not being fobbed off. I’ve my hystoscopy on the 9th and they will be taking more biopsy’s so will be thinking of you as it’s the same day. Good luck, let me know how you get on please xx 

awww Laney, I guess they’ve got to do it to be on the safe side. I know a couple of people who just had their womb removed and then a couple of years down the line had to have ovaries removed so maybe it’s best they do it all together save you the trauma of a second op. Xx 

Hi 

I hope everything goes well. I have my hysteroscopy on monday 13th might be polyps but not sure until I go . My cervix was 3mm now 13mm in one year.

I'm hoping it's not bad news when I go but keeping open mind . 

I wish you the best

Hi 

I hope everything goes well. I have my hysteroscopy on monday 13th might be polyps but not sure until I go . My cervix was 3mm now 13mm in one year.

I'm hoping it's not bad news when I go but keeping open mind . 

I wish you the best

hi ladies

had my total hysterectomy on thursday 2nd may, 

all went to plan via key-hole.   i have several other medical conditions that casue pain and many allergies / intolerances to medications so i asked if i cud stay in hospital overnight, 

Came home friday aft with only bloodd-thinning post-op injections, managed on paracetamol & ibuprofen for pain relief.

Op went fine, i`m not great at coming round from anaethestics anyway, but was told i could go home same day if i wanted, i must say that i was not up to it, but as i mention i do have a complex medical history.

I was looked after really well by EVERYBODY, from consultants, surgeon, pre-op, theatre staff, anaesthetist : all very professional, caring, respectful and compassionate.  Follow-up appt in 2 -3 weeks, as well as results lab findings on the hysterectomy tissues, then decide if any further treatment needed, plan etc.

xx