Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

hi

sorry to jump on this thread. I’ve been looking for endometrial cancer threads. Sorry to hear of your diagnosis. 

So I went to my GP a month or so ago as I had 7 periods in 6 weeks  didn’t think anything of it as I’m 45 and thought maybe I was going through the change.  Had a scan and last week saw the consultant who carried out a biopsy as my endometrial is 16mm.  I’m waiting on my results but I’m kind of thinking I already know what the results will be. Have a hysteroscopy booked for 9th may but consultant said he’d be seeing me a lot sooner if anything comes back.  The not knowing is mentally draining.  

hi abbiie

yes, its tough isn`t it.  At least if things are moving quickly its gonna be treated sooner rather than later.  I think my endometrial was 19mm.  It`s all mentally draining which of course brings on physical symptoms too - i am just so very tired all the time, and hoping that when i have the hysterectomy, all being well by key-hole, that things improve.  My MRI showed no other issues within the pelvis area, but i have rectum pain and just hoping that is  part of the same issue.  Take care, x

hi Snoopy 

I  hope thngs go well with surgery for you. I’m here if you ever fancy a chat. It’s nice to speak to someone who knows what you’re going through. Keep me updated please xx

Hello!

its the waiting - I agree. Had my hysteroscopy last Monday. My appt was an hour and a half late and they ran out of the instruments needed to remove polyps!

Awaiting results of biopsy now - but not clear how I will get results as hospital were so behind on appts on day they said it would either be a phone call, letter or GP! 

I have now been told I have to go in for an op on 3rd May for day surgery to remove polyps from womb and investigate further. To be honest I don’t have a clue what’s going on and so sitting tight until 3rd May and hoping biopsy results come through.

I remain in limbo about what’s going on and the fact the nurse and specialist at my hysteroscopy would not answer my questions just worries me more. I think if I knew what I was dealing with I’d feel more in control.  The waiting goes on  ~ take care everyone. X

Hello!

its the waiting - I agree. Had my hysteroscopy last Monday. My appt was an hour and a half late and they ran out of the instruments needed to remove polyps!

Awaiting results of biopsy now - but not clear how I will get results as hospital were so behind on appts on day they said it would either be a phone call, letter or GP! 

I have now been told I have to go in for an op on 3rd May for day surgery to remove polyps from womb and investigate further. To be honest I don’t have a clue what’s going on and so sitting tight until 3rd May and hoping biopsy results come through.

I remain in limbo about what’s going on and the fact the nurse and specialist at my hysteroscopy would not answer my questions just worries me more. I think if I knew what I was dealing with I’d feel more in control.  The waiting goes on  ~ take care everyone. X

hi Laney

it is so hard not knowing. My consultant has been straight with me, explaining everything each step of the way, he’s quite frank but that’s how I want it, can’t bear thinking that he would just sugar coat anything and I then get a massive shock. Would rather be prepared and if it’s bad news then I’m half way to accepting it. Hope your surgery goes well.  Keep in touch please xx 

i had the hysteroscopy done and a week later go a call on the friday afternoon to say the consultant wanted to see me monday, so knew sumthing not right.

I have had good communications from the consultant team, secretary and supportive gynae specialist  Macmillan nurses who are there to speak to in office hours.

I asked the specialist nurses a bit more about whether the op would be key-hole and hey did not reply, i suppose that from when the hysteroscopy , biopsies etc are done things can change the day of surgery. It`s all such a worry, take care, xx

hi Laney 

how you doing? Been thinking about you. Did you get your results? Xx 

hello - after hysteroscopy two weeks ago they decided to take biopsy under anaesthetic. I go into hospital this Friday (3rd) for that procedure. The wait goes on and I was gutted they could not get what they needed two weeks ago - just longer to wait. Apparently they did take a polyp from cervix and that was benign so that’s a positive but my GP said she could have done that at a smear test. Anyway - not long now. Thank you for asking and hope you are well. Will update when I get an update :-)

xx

hi ladies

following on:-  had my pre-op assessment today and was told it would be a full hysterectomy - i am pre-menopausal ay 47, thought i was just having womb removal, but now will be womb, ovaries & fallopian tubes.  I will go straight to menopause.  Polyp too big to remove in out-patient, womb lining thickened.  Laprascopic / key hole surgery on 2nd may, may be able to come home same day /  overnight if needed.  Best wishes ladies , x

awww Laney, I guess they’ve got to do it to be on the safe side. I know a couple of people who just had their womb removed and then a couple of years down the line had to have ovaries removed so maybe it’s best they do it all together save you the trauma of a second op. Xx 

Hi 

I hope everything goes well. I have my hysteroscopy on monday 13th might be polyps but not sure until I go . My cervix was 3mm now 13mm in one year.

I'm hoping it's not bad news when I go but keeping open mind . 

I wish you the best

hi ladies

had my total hysterectomy on thursday 2nd may, 

all went to plan via key-hole.   i have several other medical conditions that casue pain and many allergies / intolerances to medications so i asked if i cud stay in hospital overnight, 

Came home friday aft with only bloodd-thinning post-op injections, managed on paracetamol & ibuprofen for pain relief.

Op went fine, i`m not great at coming round from anaethestics anyway, but was told i could go home same day if i wanted, i must say that i was not up to it, but as i mention i do have a complex medical history.

I was looked after really well by EVERYBODY, from consultants, surgeon, pre-op, theatre staff, anaesthetist : all very professional, caring, respectful and compassionate.  Follow-up appt in 2 -3 weeks, as well as results lab findings on the hysterectomy tissues, then decide if any further treatment needed, plan etc.

xx

Hi

I am going through a rollercoaster of emotions. I had a scan a week ago. Radiographer said everything was fine and nothing to worry about. So can you imagine the shock when i went to the GP 2 days ago and she said we need to fast track you for a hyteroscopy because your endometrial lining is 16mm. It didnt sink in and i still thought it was precautionary. I said should i be worried and her response was " yes if i were you i would be very worried"  i cant seem to focus. I have so many questions going round in my head. I am 52 and having irregular periods, so didnt think anything abnormal about spotting after my period.  I just put it down to menopausal symtoms. Is having a 16mm lining definitely indicative of cancer? Can it just be a thick lining?  I remember having a hysteroscopy in 2014 when they removed a polyp and they said then that i had a thick lining but not cancerous. Nothing was done and i had no further  investigations or tests. Now 5 years on i have cramping pain, bleeding/ spotting nearly every week for a few days. Waiting for my hysteroscopy next week. Looking for support and guidance as i am very confused. Thank you

Hi All

I had my last period in late summer 2017 and a Small spotting in 2018.  GP told me probably fine but if it happens again to go back.  It happened again this August so am now about to start tests.  I guess you don’t know until you have tests however does anyone have knowledge or advice on how long cancer takes to develop to the various stages?  Or is it  different for everyone?   

It’s reassuring to find this thread.   

Xxxxx