Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

hi abbiie

yes, its tough isn`t it.  At least if things are moving quickly its gonna be treated sooner rather than later.  I think my endometrial was 19mm.  It`s all mentally draining which of course brings on physical symptoms too - i am just so very tired all the time, and hoping that when i have the hysterectomy, all being well by key-hole, that things improve.  My MRI showed no other issues within the pelvis area, but i have rectum pain and just hoping that is  part of the same issue.  Take care, x

hi Snoopy 

I  hope thngs go well with surgery for you. I’m here if you ever fancy a chat. It’s nice to speak to someone who knows what you’re going through. Keep me updated please xx

Hello!

its the waiting - I agree. Had my hysteroscopy last Monday. My appt was an hour and a half late and they ran out of the instruments needed to remove polyps!

Awaiting results of biopsy now - but not clear how I will get results as hospital were so behind on appts on day they said it would either be a phone call, letter or GP! 

I have now been told I have to go in for an op on 3rd May for day surgery to remove polyps from womb and investigate further. To be honest I don’t have a clue what’s going on and so sitting tight until 3rd May and hoping biopsy results come through.

I remain in limbo about what’s going on and the fact the nurse and specialist at my hysteroscopy would not answer my questions just worries me more. I think if I knew what I was dealing with I’d feel more in control.  The waiting goes on  ~ take care everyone. X

hi Laney

it is so hard not knowing. My consultant has been straight with me, explaining everything each step of the way, he’s quite frank but that’s how I want it, can’t bear thinking that he would just sugar coat anything and I then get a massive shock. Would rather be prepared and if it’s bad news then I’m half way to accepting it. Hope your surgery goes well.  Keep in touch please xx 

i had the hysteroscopy done and a week later go a call on the friday afternoon to say the consultant wanted to see me monday, so knew sumthing not right.

I have had good communications from the consultant team, secretary and supportive gynae specialist  Macmillan nurses who are there to speak to in office hours.

I asked the specialist nurses a bit more about whether the op would be key-hole and hey did not reply, i suppose that from when the hysteroscopy , biopsies etc are done things can change the day of surgery. It`s all such a worry, take care, xx

take care, deffo gud to know sumone else knows EXACTLY what i am going through, xx

thank you. It’s certainly helping speaking to you lovely ladies and knowing you’re going/gone through the same thing xxx

Hi ladies

Just found this thread and thought I would add my experience. I’m the other end of the journey from you and have just had my first post treatment follow up where I was told there was no sign of cancer. 

I was diagnosed in April 2018 with endometrial cancer after scans and hysteriscooy. I had keyhole surgery to  remove everything in May 2018 and stayed in hospital overnight. I had a second op to remove lymph nodes in July 2018 again an overnight stay. Fortunately they were clear and I had three sessions of internal radiotherapy in September. If you have any questions please ask and I will answer based on my experience. However everyone’s plan is different and suited to them individually. 

I hope everyone’s journey goes well Hugs to you all.

Sundial

hi sundial

appreciate your repsonse, x

Good to hear that you are doing well

How soon after the surgery were you able to do things like going out - i have a concert with VIP extras , 3 weeks after the surgery date , i will be attending the concert on my own, i know its not a necessity for me to go , bu i enjoy such events and am using it as my goal after surgery.

I also have other medical conditions that may contribute to a longer recovery - ME / CFS / FM, so hoping these don`t cause too many extra issues.

Post -op pain relief is one of my major concerns as the ME / CFS / FM causes chronic pain anyway and  am on maximum pain relief that i can tolerate for that - so wondering how that will go

After the initial key-hole hysterrectomy, how soon was the radiotherapy started, and i respect your privacy here, but did you have any side effects of internal radiotherapy

Am very concerned about `the menopause` symptoms, i am 47 years old and have had random symptoms for approx 6 months, but no proper `period`, 

tks for response and info, its much appreciated

xx

Hi

i recovered pretty quickly. It took me about four weeks to really be back to normal, I still got tired and outings were good but tiring so I made sure I rested the day before and the day after. I had a problem with one of my wounds infecting and had to go back into hospital overnight for IV antibiotics so that slowed me down a bit. I’ve also been type 1 diabetic for 57 years on insulin injections. However I managed to sort that out pretty quickly. I don’t drive so can’t tell you about when you’ll be fit for that so it might be worth considering other transport means if you can. Also a good tip is to do the exercises they recommend and try to walk upright. There is a temptation to lean forward which I did unspwiitingly and it left me with a painful lower back. 

As for pain I suggest you discuss that with your surgeon, I was fortunate in that I had very little pain and paracetamol was enough for the first few days. although I know some people have more pain so it’s worth discussing it, They gave me a spinal injections before the general anaesthetic which I think was intended to reduce pain. It certainly worked in my case.

i had internal radiotherapy which I believe is usuallly carried out at about six weeks after surgery.  Mine was slightly different because I had to have a seconded op. Internal radiotherapy has fewer side effects that re usually temporary. I had a few issues with constipation which was soon remedied, I believe there can be temporary uribary issues but I didn’t get any. The RT itself is painless. I hardly knew anything was being done. However it is a leave your dignity at the door occasion. Lol. It actually sounds far worse than it is.

i had already gone through the menopause so it wasn’t an problem for me. Again discuss it with a specialist nurse. There are meds’ they can give you if you need them, 

Will you see your consultant again before surgery or do you have a specialist nurse contact number? It might be an idea to write down these questions and ask them. I found that they are vary helpful.

I hope everything goes well. Please keep in touch. Don’t hesitate if you have more questions, I’m sending a virtual squeeze from my hand to yours. 

Sundial

Hi

i recovered pretty quickly. It took me about four weeks to really be back to normal, I still got tired and outings were good but tiring so I made sure I rested the day before and the day after. I had a problem with one of my wounds infecting and had to go back into hospital overnight for IV antibiotics so that slowed me down a bit. I’ve also been type 1 diabetic for 57 years on insulin injections. However I managed to sort that out pretty quickly. I don’t drive so can’t tell you about when you’ll be fit for that so it might be worth considering other transport means if you can. Also a good tip is to do the exercises they recommend and try to walk upright. There is a temptation to lean forward which I did unspwiitingly and it left me with a painful lower back. 

As for pain I suggest you discuss that with your surgeon, I was fortunate in that I had very little pain and paracetamol was enough for the first few days. although I know some people have more pain so it’s worth discussing it, They gave me a spinal injections before the general anaesthetic which I think was intended to reduce pain. It certainly worked in my case.

i had internal radiotherapy which I believe is usuallly carried out at about six weeks after surgery.  Mine was slightly different because I had to have a seconded op. Internal radiotherapy has fewer side effects that re usually temporary. I had a few issues with constipation which was soon remedied, I believe there can be temporary uribary issues but I didn’t get any. The RT itself is painless. I hardly knew anything was being done. However it is a leave your dignity at the door occasion. Lol. It actually sounds far worse than it is.

i had already gone through the menopause so it wasn’t an problem for me. Again discuss it with a specialist nurse. There are meds’ they can give you if you need them, 

Will you see your consultant again before surgery or do you have a specialist nurse contact number? It might be an idea to write down these questions and ask them. I found that they are vary helpful.

I hope everything goes well. Please keep in touch. Don’t hesitate if you have more questions, I’m sending a virtual squeeze from my hand to yours. 

Sundial

I’ve sent you a friend request if you’d rather talk through private message. 

Sundial

sorry Subdial

ive had a break from the internet for a week, I don’t have a friend request. Hope you’re well xx