Invasive Ductal Carcinoma - just diagnosed aged 39

Hi all

Was diagnosed today with an invasive ductal carcinoma, grade 2, ER+. Lumpectomy should be 16th April, then 4 weeks radiotherapy plus tablets. Also chemo if it's spread - so far lymph nodes appear clear so fingers crossed. Would love to connect with anyone who has been diagnosed with similar, so we can support each other plus share experiences! 

 

  • Hi, I 'm sorry to hear that you have this too. Its all very scary and so easy to overthink things. I was told that the effect would be the same as well, so here's hoping. Please keep us updated on how you get on xxx

  • Hi there,

    I've been a bit quiet of late due to side effects of treatment, but just saw your post and wanted to say hi.

    I was diagnosed last year as stage 3C at 41 years of age so, like others, understand what you are going through.  I've found this place an amazing support and hope that you do too as you go through treatment and learn more about what will happen.

    Haven't been able to have radiotherapy yet due to the spread but well versed on chemo, hope you don't need that though.

    Big hugs,

    LJx

  • Hi

    Thanks so much for your reply. I'm so sorry to hear you're having trouble with the side effects of your treatment. 

    I've found this forum so helpful, and its so reassuring to know that I can just come on here and connect with others who are going through the same thing. Everyone has been a tremendous support so far.

    Best of luck with everything, I hope any remaining chemo treatments go well.

    Andrea xxx

  • Hi

    I hope you ladies don’t mind me joining your conversation. I am 37 and was diagnosed on the 20th March via ultrasound and biopsy. I have been told high grade dcis with a small area of  grade 2 invasive Ductal carcinoma. Hormone receptor positive and her2 borderline ( so they are retesting) I don’t really understand what all this means... and am trying to make some sense of it all which is really hard! I had an mri this last Monday and am waiting for the results for the next step.

    I am really scared of what’s to come and am finding it hard to cope.. I desperately don’t want chemo ( I suffer from a phobia of vomiting).

    sorry this is all coming out so negatively.. I’m having such a down day today.. all this waiting is like torture! I am convinced it’s spreading.. anyone else feel like this or am I going nuts!

    xx

  • Don’t worry keep calm and be strong , i had  the same feeling when I first diagnosed but with time you will fight and after surgery you will dwell better , did they tell you their plan for treatment ?? Your case is similar to mine I i will meet oncologist on 16th April 

  • Hi

    Not at all, you're more than welcome! I'm sorry you've been diagnosed with this hideous disease as well. I can't believe how many women in their 30s are on this forum - I thought I was going to be one of the youngest, but there are so many of us. It's really opened my eyes and got me thinking.

    I'm not sure about the her2 thing yet, I've not had mine confirmed. Hormone receptor positive is a good thing though, as it means it can be treated with hormone blocking tablets, so its one more way of helping to kill it off and stop it coming back.

    It's all very scary - I have a phobia of needles and can't cope with the sight of my own blood so I'm hoping I don't end up with chemo either!! I'm also an all-round wimp when it comes to being ill! I keep thinking it's spread too - every twinge or ache is freaking me out. But a few of the other ladies on the forum have been doing this too so it's a normal reaction.

    Once you know the next step you'll feel a bit calmer, I promise. I've got a lumpectomy on the 16th and provided the senitel node is clear, it will be radiotherapy. If it's not clear it's likely to be chemo but I'm going to try and stay positive and hope its not! The nodes were clear on the ultrasound so I hope it stays that way.

    We've got this. It's a horrible situation to be in but we're all going through it and we're all hear for each other. Keep us updated with how you get on xxx

     

  • My heart goes out to all you lovely young women that are having to go through this.

    Although I’m 70 I was diagnosed last year with high grade DCIS and after treatment of lumpectomy and radiotherapy am now cured.

    now just 12 months later my daughter aged 42 has been diagnosed with invasive ductal carcinoma. So far she’s had lumpectomy and lymph nodes removed. All good so far. Her CT scan was also clear. She saw the surgeon just this week and they’re confident the cancer is gone which is great news. She has opted to take all the treatment on offer to her as she wants to avoid any recurrence of this awful disease. So it’s chemo, radiotherapy and hormone therapy for her. In her own words it’s not the most tastiest cocktail she’s ever ordered but hopefully the most effective!!

    Her results are all oestrogen positive so the hormone therapy is a must.

    Im going to be campaigning for mammograms to be available at a much earlier age as I’m hearing of so many younger women being diagnosed with breast cancer.

    you will get great support on this forum. Always someone there to help you through a tough time.

    Sending hugs to you all - Irene x

     

  • Hi Irene

    can you please tell me about your plan of treatment asi m diagnosed with DCIs as well and IDC together and I had two opinions one is mastectomy and the other is lumpectomy I did lumpectomy so could you please tell me about your experience thanks in advance

  • I had the same diagnosis as you but in both breasts, I was given the same options and chose lumpectomies after a lot of research and talking to medical professionals. There is no difference between mastectomy and lumpectomy in terms of survival. Plus if a recurrence I’d rather have it in breast tissue rather than chest wall. Hopefully it won’t recur and that radiotherapy + hormone therapy has seen the back of it.

     

  • Good to see you back - you have been missed x