I didn't like the bone scan they inject radiation into a vain then you wait in a room for 3 hours for it to go round your body then then they scan you, it does not hurt it's the waiting (worried you might glow in the dark) hope to hear from you soon.

Billy

P.s I remembered how to do it you should have it your end (request) 

Hi is everything OK have you found when you take the scans yet. Hope everything is OK.

Billy 

Morning Billy.

Sorry for not getting back to you sooner but have been quite busy with stuff! You know the kind of stuff, playing golf, washing my car, worrying endlessly, chasing appointments etc etc. I finally had my CT scan and my bone scan last week. I had to push forcibly for both esp the bone scan. I have been going to a private clininc under the NHS protocols and their information on their computers was not being read by the NHS computers at the NHS hospital I am due to go to. Its been an absolute dogs dinner but I am going to see the specialist today at 1pm and I am dreading it. However, I am trying to take some comfort from the fact that the Consultants secretary rang me up on Monday and said that he would see me next week in a very off hand manner. I am going to Portugal on Sunday for 6 days playing golf and the secretary knew this so she rearranged an appointment for me for today. If I hadn`t been pushing for every appointment to be brought forward I feel as though I wouldn`t have been given a prognosis for mnay weeks. 

Anyway, today is the day when I hear what is going to happen for the rest of my life. I am hoping that the cancer hasn`t spread too far and that I can be treated and "cured". I take some slight consolation in that I am only 60, fit and strong and am stubborn as hell. I`m going to beat this with the help of the Doctors, nurses and other staff. I`ll let you know how I go on.

Regards.

Mick 

Hi glad your still OK I thought something might have happened to you not hearing from you. Sounds like you've been playing hell with them. Did you see were my cancer is I think yours will be about the same I hope it's not but I have my doubts remember. I've been over 3 years now there's someone on one of the strings been over 8 years with it so you never know nice to hear from you don't be so long next time. Good luck best wishes.

Billy

P.s from finding C to start of treatment took me 4 months. 

Gleason score of 4+3=7

PSA level 5.8 form 3.6 the year before I was 66 at the time.

my personal thought was remove it asp. It’s a personal decision You can get hung up on test results.

when my anal biopsy results were shown to me it demonstrated that 85% good cells existed and 15% bad cells. However the biopsy results are on a small length of the prostate perimeter.

Having requested removal the following histology results came back from my removed prostate the bad tissue content was 85% and the good cells 15 %...Yes totally the reverse of what I had been told only 6 weeks before.

take careful notes of your chosen surgeon and how many Radical protatesectomy he/ she has undertaken. . Before the operation practise stopping yourself peeing mid stream as this is the muscle you will need to retrain. No incontinence erectile function needs more encouragement but certainly remains.

my advice to everyone is to have it removed.

Hi again, no good having mine removed with having cancer other places more of a chance of spreading cancer to other places so not worth it, best wishes... Billy 

Good evening, I am sorry to hear the news that you have been diagnosed at Gleeson 9, however, nothing to be depressed about. You are now in a selective club with many others who have gone though exactily what you are going through. Firstly, the matter of positive mind is an important way forward, secondly whatever will be will be. It my sound harsh but, medical advances these days have gone substantial way to helping us with our difficulties and ailments.

If you would like to know my story.

At the age of 55 I was diagnosed with prostate cancer Gleason scale 7. However, after various tests it was determined that I had Gleeson scale nine. I had no symptoms but I was aware of the perhaps a weak urinry stream.

The NHS service was absolutely brilliant. it was suggested that I had a major prostatectomy.  A place sitting was available within the next two weeks... long story, but I had it done about 3.5 weeks later. The biopsy revealed it was on the margins, surgeons did what they could to remove the offending matter. I had robotic surgery. Various options were posed but at the time that is what I opted for.

PSA went right down. Monitoring continued every 3 months with regular blood tests. All seemed to be ok for a period of time and then the PSAs sarted rising again. Radiotherepy and hormone treatment was recomended.... yes "hormone".  Radiotherapy 5 days a week for 6 weeks 2018. Traveling took 1.20 hour each way but treatment like clockwork less than 10 minutes a go.  Regular blood tests for PSA monitoring on 3 monthly basis. Pleased  to say, seems all clear for now. (Wife thinks that is good news so who am I to argue!)  Monitoring 6 monthly now. Obviously a number of interventions throughout that period but this a brief summary.

I hope this gives you a positive view on the future, Gleason Scale 9 is not final. Many people out there much worse off then us with other ailments! I found all the practitioners, doctors, consultants and nurses extremely professional and supportive in their roles.

Just because one has this diagnosisis not necessarily the one that you should be concerned about as we are all here for a limited amount of time. All I can suggest is that you have a positive mind and share your love with everyone around you Tell them that you love them, We are all too secretive about that and give them all a big hug, they may be surprised but they will love it. If they don't their loss.

There are many supportive groups out there, MacMillan being just one, perhaps speak to them as they have much useful information and if required support. You are not alone here.

I understand PSA is just a guide, it is the Gleeson level that is important. There is always hope. Be positive!

One asp suggestion is prayer, if you are that way inclined, for some, it may help.

God bless, I do hope I have been positive in my post.

Seasons greetings to all.

Ron

Hi all

I had prostate surgery 3 weeks ago. Stage was 2a, Gleason was 7 at biopsy, but histology found it to be 9. I was totally shocked (I'm only 49). The surgeon said it came out cleanly and the margins were clear. He said my prognosis is still good but there's a chance I may need further therapy down the line. Needless to say, I will need very regular PSA checks which will be nerve-wracking but I've gotta get on with life.

P.

Hi Ron
Thanks for your positive story, my Gleason score was 9 when the did the surgery 3 weeks ago (biopsy revealed 7). The surgeon didn't seem too concerned as it hadn't penetrated the capsule. But he said I might need further treatment down the line in addition to rigorous PSA checks.

P.