Hi Jolamine,

well biopsy now done, he ended up taking 3 just to be safe so currently struggling with the sore and bruised area along with my breast still in agony from the biopsy’s a few weeks ago - apparently I have a haematoma but will drain itself in next few weeks. Sick of all this pain and still no confirmed answers or treatment plan. 9 more sleeps before d-day and time is going so slowly.. I just don’t be able t focus on anything at mo. I’ve been trying to read up on things and confused- currently been diagnosed with DCIS but possible cancer cells in lymph node hence biopsy. But if there is then can I have DCIS and metastatic cancer too or does it all become one thing ? Trying to pre plan treatment too as being a single mum I need to make sure my daughter is safe and looked after but again nothing is saying what it wud be if both ?? Sorry just head a shed again with it all and I know no one can say anything till next Monday but at same time I need to try and prepare myself as much as possible as I’m strong mummy ! 

Sorry again, think I just needed a moan and friends and family r just trying to stay positive so don’t want my doom and gloom thoughts passing over ... I’m already shattered with all this cancer talk in last 3 weeks and that before any treatment starts - hats of to those with patience and wish I cud just fast forward this next week and 2 day :-( 

claire xx 

Hi Claire,

I'm sorry to hear about your haematoma and hope that your breast settles down soon from all the interference.. I can fully understand why you cannot focus on anything at the moment. Your tests become the overriding thing in your life, until you get the results. If it is of any consolation to you, the treatment is easy in comparison to waiting for results.

I hope that your results next Monday are better than you are expecting.

We are here for you whenever you need a good moan - far better than upsetting family members!

Kind regards,

Jolamine xx

fingers crossed you get the treatment you need and it clears the cancer.my partner Jayne had breast cancer,she had a lump removed then had radiotherapy,was given the all clear 10th may 2018.sadly rather than going doctors when she had pain,she texted friends she had made at christies and took there advice that the pains were down to side affects of the drugs and pains you can get when youve had the operation and radiotherapy.sadly the pains she got were also a sign cancer had returned.and by the time we finally got the pains checked out it was way to late.i lost my best friend lover and soul mate within 17 days of finding out she had cancer.i hope things go differently for you and everything works out good for you.

Thanks Jolamine, you're an absolute star!

I'm getting a bit back to normal I think. Just had cycle 3 of the Carboplatin, meant to be 6 in total but each time my bloods are worse and worse so it'll be touch and go until the end whether I can continue it or not.  Still, it seems to be working.

How are you?

LJxx

Hi LJ,

I am delighted to hear that the Carboplatin seems to be working, despite the problems it is causing. I sincerely hope that you can manage to get to the end of your course.

I am keeping well thanks. It's a great relief to find that the query melanoma on my face and leg were both clear upon excision biopsies.

Hang on in there!

Jolamine xx

Hi Claire

sounds like we are having a similar time at the moment.. still in the dark, still confused and still no way forward. The results of my mri cake back as showing something else that needs investigation she said same breast same area but that I need another biopsy?! Which I don’t really understand why I need?! I think I’m going to have to have a guided mri on weds ( anyone had any experience of this?!) sounds horrible

i am so down about it all.. and my armpit is so sore making me scared it’s got into my lymph’s.. although I do poke at it all the time! Could that make it sore?

when do you get your results? I am so hoping for you that  you get a clear way forward soon xx

HI Pepesmama,

Sorry to hear that you are having to have another biopsy too. There is no problem with a guided MRI. 

I have had 2 bouts of breast cancer in the past 9 years and have had to have a number of additional tests. This is frustrating at the time, but shows that your consultant is doing his job properly and, getting the full picture before he undertakes surgery or treatment. It is far better to have a consciencious surgeon at this stage, as opposed to one that doesn't investigate things thoroughly.

Try not to keep poking your armpit, as this will only make your sore area sorer.

I hope that all goes well for you on Wednesday.

Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Pepesmama, oh no, sorry to hear u now need further tests too. It is so frustrating isn’t it and out of your control. I know it’s goid that they are being thorough and ensuring they have all the information before starting with treatment plan but so hard to think like that when this big black cloud is hanging over you . I have no information ref a guided MRI and why, did the consultant or nurse not explain ? 

As for being sore, I’m fully with you on that one but don’t think the poking about will help really ha ha :-) 

D-day is a week today at 9.40 so only 7 more sleeps as I’d say to my daughter. Tbh I’m not even thinking the results more of right let’s get started and get rid one way or the other- I hav no patience at all can you tell ha ha. 

Good of luck for wed and let me know how u get on. How long after this test before you get the results? 

Big hugs 

Claire xx 

Hiya

so the mri I had last week showed things a lot clearer I guess.. and now they are saying the tumour is 28mm and there is an area of what they think is dcis that sort of extends from it that needs a biopsy to confirm... if it is dcis it will take the whole lot to 42mm.. and I guess a much later stage? I don’t know how much of my tumour is Invasive and how much is dcis. I am guessing when the do confirm this new bit is cancer my surgery options will change. 

The mri seems to have shown the original lump I had scanned as double the size! Not sure if that’s common or it’s grown that much in a month?? Is that even possible

The good news from today is that they think they can do an X-ray guided biopsy rather than the vile mri guided one! Got to hold on to the small wins! 

7 more sleeps for you.. it’s so hard! I am going to start keeping a journal ( someone suggested it to me) to try and help keep my anxiety under control... I am trying desperately to find Joy in spending time with my little boy who is 15 months and an absolute character.. I bet you get lots of comfort from your daughter too

xx