Hi as Maria says the radiotherapy doesn’t hurt at the time ,the journey to and from hospital takes up the time. The after effed to start around week 3 of treatment gently to start with then gradually build up .

ask at your m d t meeting for tumour size and any spread and are you h p v 16+ which makes a difference to treatment .

Try and keep off dr google so much bad and miss leading info it scare you. Like my oncolgist says in 5 mins on dr google even he could self diagnose himself dead . Keep on here recognised blogs and macmillima have a community web site .

keep in touch private message me if you need anything have accepted your friend request .easy for me  to say I know but try and keep calm ,one cry a day is allowed. .

positive mental attitude git me through it .

Hazel xx

Hi Hazel no problem you have been lovely , oh bless you weather awful here lol but sometimes nice to be home , take care gonna have nice afternoon kip now lol 

maria xxxx

Just had mine quick 20 min power nap sees me through it yes deffo ready fir real life here’s great but we live a fantasy life it’s nit real. Lol xx

Oh god wish I could just have a power nap but I can't. , never got to sleep bloody dog wouldn't stop pestering me lol , I'm not sleeping at night that's the trouble so I'm bloody knackared all the time , hoping as I've not had any sleep today I might sleep tonight. , yea that's the trouble it's not real life is it be nice if it was haha cxxx

Took me months to have a full nights sleep at least 7 months or so n whatbwith water for dart mouth am uo for loo some nights although this trip I’ve done a lot of 7 hour sleeps !!!!!!!!! The xyimelts do help with dry mouth 

fingers x for u tonight H x

Yea it's horrible ain't it yea have used them few times keep bloody forgetting lol , thank you I've got everything crossed haha xxx night 

maria xxx

So it's starting to get real ! Had my scan last Thursday and now waiting for results , to say I'm scared is an under statement , I was told on the day that my results will go to my dr and should be available by Monday , dunno if I have to phone to make appointment or what ?? Any one else had that , hope u all doing well xxxx

Hi Maria 

umm I got my results from my oncologist 10 days after the scan. Was it a pet ct scan or a ct scan ? I was uve. My appointment before my scan so maybe ring the hospital. Don’t fret am sure all will be fine. Try and sleep tonight let us know what you hear and good luck am sure once agin all will be ok. how are yiu progressing ?

Hazel xx

Hi hazel was a pet/ct I thought I would have to see consultant but apparently not , bloody horrible this waiting , just hoping all ok my last two cameras down the throat were clear so hoping that's a good sign apart from that not too bad , see dietician couple weeks ago , when I had camara down , they were but concerned about my weight but I've managed to put on 5lb since then so hoping they will take my feeding tube out next time , sitill have some sores on one side of my throat , but apart from that and the gunk and the dry mouth I'm ok lol , how about you hope all ok xxxx